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MS-Perspektive - The Multiple Sclerosis Podcast

Nele von Horsten
Multiple Sclerosis
Patient Advocacy
Clinical Trials
Mental Health
Health Disparities
Brain Health
Ocrelizumab
Mediterranean Diet
Neuroinflammation
Extracellular Vesicles
Late-Onset Multiple Sclerosis
Cognitive Function
Healthcare
DNA Methylation
Mindfulness
Neuromyelitis Optica
B-Cell Depletion Therapies
Rituximab
Sleep Quality
Diversity and Inclusion

In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics... more

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Latest Episodes

In this episode, Nele talks with neurologist Dr. Thomas Grüter about vaccinations and multiple sclerosis. The original interview was published in German in December 2024. This English version has been translated and adapted for an international audie... more

In this episode, Nele speaks with Dr. Ayush Chandra and Dr. Avinash Chandra about multiple sclerosis in Nepal. They explain why MS is still often diagnosed late, how limited access to MRI, neurologists and treatment affects people in rural and mounta... more

In this episode, Dr. Isabel Voigt from the MS Center Dresden introduces the MS360° approach, a digital-first hybrid care model designed to make multiple sclerosis care more continuous, proactive, and personalized. She explains why today's MS care can... more

In episode #167, Sanam Saeedi shares her perspective on living with MS, fatigue, walking and energy. Diagnosed in 2019, she explains how symptoms such as foot drop, balance issues and fatigue changed her daily life — and why pushing through is not al... more

What are unseen MS symptoms really like? In this inspiring episode, Hjördís Ýrr Skúladóttir from Iceland shares her personal journey with multiple sclerosis, from diagnosis and burnout to becoming a patient advocate and former Chair of the Icelandic ... more

What does it really mean to live a meaningful life with multiple sclerosis?

In this episode, Patti Bevilacqua shares her deeply personal journey after being diagnosed with MS at just 22 years old. Instead of trying to "push through," she chose a di... more

The EMSP 2026 Conference in Berlin highlighted how much is currently evolving in multiple sclerosis (MS) – from improved diagnostics and emerging therapies to long-overdue topics like fatigue, PIRA, and menopause.

In this episode, I share my person... more

In this episode, I speak with neurologist and researcher Professor Barbara Willekens about one of the most exciting and complex developments in MS research: CAR-T cell therapy.

Originally developed for blood cancers, this innovative treatment is no... more

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Recent Guests

Ayush Chandra
Founder Secretary of the Multiple Sclerosis Society of Nepal (MSSN); MS advocate and clinician
Multiple Sclerosis Society of Nepal (MSSN)
Episode: #169: Multiple Sclerosis in Nepal. Diagnosis, Treatment and Access to Care
Avinash Chandra
Neurologist specializing in MS in Nepal
Nepal (government hospital)
Episode: #169: Multiple Sclerosis in Nepal. Diagnosis, Treatment and Access to Care
Isabel Voigt
MS Center Dresden researcher and clinician
MS Center Dresden
Episode: #168: From Fragmented Care to Connected Care: The MS360° Approach with Dr. Isabel Voigt
Hjördís Ýrr Skúladóttir
Patient expert and former chair of the Icelandic MS Society, teacher, police officer by training
Icelandic MS Society (former chair)
Episode: #166: Unseen MS Symptoms: A Patient Expert's Perspective from Iceland with Hjördís Ýrr Skúladóttir
Patti Bevilacqua
MS advocate, educator, and creator of online MS community; author
Founder of a Canadian MS-focused Facebook group for women
Episode: #165: MS Doesn't Define Me – How Patti Bevilacqua Turned Multiple Sclerosis into a Life of Purpose
Barbara Willekens
Neurologist and researcher
University/Institute in Belgium (Antwerp)
Episode: #163: CAR-T Cell Therapy for MS: Hype, Hope, or Future Standard? – A Global Research Update with Prof. Barbara Willekens
Camelia Ionescu
Neurologist and pain therapist
Marianne Strauss Clinic, Germany
Episode: #162: The Art of Pain Relief. Multimodal Approaches to MS (with Dr. Camelia Ionescu)
Thomas Knoll
Neurologist with 30 years of MS clinical experience
Neurologist in Munich, Germany
Episode: #161: Progressive MS (PMS) – Understanding and Treating PPMS with Dr. Thomas Knoll
Dr. Ulrich Rüffer
Physician and oncologist, advocate for patient participation
Cologne University Hospital / Shared2Care
Episode: #158: Shared Decision Making in Multiple Sclerosis: How Patients and Doctors Make Better Decisions Together (PD Dr. Ulrich Rüffer)

Host

Nele von Horsten
Host of the MS Perspektive Podcast (also referred to in episode materials as MS-Perspektive).

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Talking Points

Recent interactions between the hosts and their guests.

#149: What Your Mouth Reveals About MS. Prof. Dr. Ashutosh Mangalam on the Oral Microbiome and Future Therapies
Q: What is the potential for combining different biomarker sources for MS personalization?
Combining oral, gut, and blood-based markers could improve personalization by providing a fuller picture of systemic and local inflammatory status, allowing clinicians to tailor interventions based on integrated metabolic pathways.
#149: What Your Mouth Reveals About MS. Prof. Dr. Ashutosh Mangalam on the Oral Microbiome and Future Therapies
Q: Why is saliva a good sample type for longitudinal MS research?
Saliva offers high compliance and ease of collection, enabling longitudinal sampling across many patients and time points to monitor oral microbiota and related metabolites in relation to disease activity and progression.
#149: What Your Mouth Reveals About MS. Prof. Dr. Ashutosh Mangalam on the Oral Microbiome and Future Therapies
Q: How do metabolites factor into MS pathology compared to the bacteria themselves?
Metabolites are described as the currency of microbial activity; the same bacterial community can have different effects depending on the metabolites they produce, such as hypertorine and phytoestrogen-derived compounds, which influence immune homeostasis and myelination.
#149: What Your Mouth Reveals About MS. Prof. Dr. Ashutosh Mangalam on the Oral Microbiome and Future Therapies
Q: What were your key findings about the oral microbiome in relapsing-remitting MS?
MS patients showed dysbiosis in the oral microbiome, with reduced abundance of beneficial bacteria such as Streptococcus and Actinomyces and increased presence of Fusobacterium and Peel-looks-like bacteria, alongside altered metabolic pathways and downregulated redox-related processes, suggesting an inflammatory milieu linked to oral microbial changes.
#168: From Fragmented Care to Connected Care: The MS360° Approach with Dr. Isabel Voigt
Q: What makes MS360° different from current MS care?
MS360° shifts from reactive, snapshot-based decisions to continuous, data-driven care that integrates daily-life data with clinical care, enabling earlier detection and more personalized treatment decisions.

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Frequently Asked Questions About MS-Perspektive

What is MS-Perspektive about and what kind of topics does it cover?

The show centers on living with multiple sclerosis through a mix of expert interviews, patient perspectives, and practical management strategies. Episodes frequently tackle cutting-edge MS research, diagnostic criteria, treatment advances, and real-world challenges such as accessibility, mental health, and gender-specific issues. A notable strength is translating complex neuroscience and clinical developments into accessible insights, often featuring neurologists, researchers, clinicians, and patient advocates who illuminate both medical and everyday aspects of MS. The format also includes personal reflections and lifestyle-oriented discussions that broaden the conversation beyond pure medicine, making it useful for both people living with ... more

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Which podcasts are similar to MS-Perspektive?

These podcasts share a similar audience with MS-Perspektive:

1. MS Living Well: Key Info from Multiple Sclerosis Experts
2. RealTalk MS
3. The MS Trust podcast
4. Living Well with Multiple Sclerosis
5. The MSing Link

How many episodes of MS-Perspektive are there?

MS-Perspektive launched 3 years ago and published 172 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on MS-Perspektive?

Recent guests on MS-Perspektive include:

1. Ayush Chandra
2. Avinash Chandra
3. Isabel Voigt
4. Hjördís Ýrr Skúladóttir
5. Patti Bevilacqua
6. Barbara Willekens
7. Camelia Ionescu
8. Thomas Knoll

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