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MS-Perspektive - The Multiple Sclerosis Podcast

Nele von Horsten
Multiple Sclerosis
Patient Advocacy
Mental Health
Mediterranean Diet
Extracellular Vesicles
B-Cell Depletion Therapies
Neuromyelitis Optica
Neuroinflammation
Car-T Therapy
Diversity and Inclusion
Health Disparities
Vitamin D
Cultural Stigma
Ublituximab
Ofatumumab
Rituximab
Ocrelizumab
Immunotherapy
Neuromyelitis Optica Spectrum Disorder
Community Support

In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics... more

PublishesWeeklyEpisodes140Founded2 years ago
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Latest Episodes

In this episode, we explore key insights from the ECTRIMS 2025 session "Symptoms and Symptom Management". Four young researchers share findings that go beyond MRI scans and lab data — focusing on what truly matters in daily life with MS.

🧠 Andreas... more

In this episode, we dive into five innovative rehabilitation studies presented at ECTRIMS 2025. From the validation of digital assessments to family-centered care and home-based rehabilitation, these studies offer promising insights for people living... more

In this episode, I explore five exciting studies from ECTRIMS 2025 that reveal how cognitive training, mindfulness, and smart rehab planning can support brain function and independence in people with MS.

You can read the text version here: https://... more

In this insightful episode, I talk with Dr. Melika Arab Bafrani, postdoctoral researcher at the University of California, San Francisco (UCSF), about a topic that deserves far more attention — vaginal health and MS.

MS affects not only the nervous ... more

In this solo episode from ECTRIMS 2023, I share the highlights from the inspiring lecture by Prof. Maria Pia Amato on cognition and multiple sclerosis. Cognitive changes are common in MS and affect nearly half of all patients – from attention and mem... more

Read the full blog article here: ms-perspektive.com – ECTRIMS 2025 MS Highlights

ECTRIMS 2025 MS Highlights: First Insights for Patients

ECTRIMS is the world's largest MS conference, and in 2025 it takes place in Barcelona. Thousands of researche... more

Access to MS treatments worldwide remains highly unequal. While research and innovation are making great strides, many people with multiple sclerosis are not benefiting from these advances. In this episode, Anne Helme, Head of Research and Access at ... more

👉 Read the full blog article here: ms-perspektive.com/131-joke-soetart

In this inspiring interview, Belgian midwife and patient expert Joke Soetaert shares how her 2019 MS diagnosis became a catalyst for growth, advocacy, and community. Sh... more

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Recent Guests

Joke Soetaert
Midwife and MS patient advocate
Episode: #131: Living with MS. Joke Soetaert on empowering youth, patient advocacy & life as a midwife
Robert Joyce
Patient advocate and MS researcher from Ireland, now living in Spain
Episode: #130: Living with MS Abroad: A Conversation with Robert Joyce on Research, Resilience and Life in Spain
Luca Peruzzotti Jametti
A neurologist and researcher focused on neural stem cell therapy for Multiple Sclerosis.
Cambridge University
Episode: #129: Hope for Myelin Repair: How Stem Cells Could Change the Future of Progressive MS with Dr. Luca Peruzzotti Jametti
Dr. Luca Peruzotti-Giametti
Discussion on myelin repair and future implications for progressive MS
Episode: #128: AI-driven reclassification of Multiple Sclerosis – A new way of understanding MS
Bruno Moral
Digital communication professor and consultant
Independent Consultant
Episode: #126: From MS Diagnosis to GregoryAi. Bruno's Journey Through aHSCT and Innovation
Barbara Willekens
Neurologist at Antwerp University Hospital and researcher focused on multiple sclerosis care and treatment
Antwerp University Hospital
Episode: #125: The MS Brain Health Strategy: Treatments, Cognitive Tools & Patient Empowerment with Prof. Barbara Willekens
Professor Barbara Willikens
Professor of Neurology at University of Antwerp with a passion for MS and rare CNS neuroimmune disorders.
Antwerp University Hospital
Episode: #124: Multiple Sclerosis Clinical Trials – Discover the Benefits, Ease the Worries
Christelle Taute
MS advocate and Vice-Chair of the MS Society of South Africa
Multiple Sclerosis Society of South Africa
Episode: #122: Living with MS in South Africa. Insights from Advocate & MSSA Vice-Chair Christelle Taute
Susanne Melanie Schmid
MS patient, participant in the May 50K challenge and author
Living in Bavaria, Germany
Episode: #121: TheMay50K, and mental strength – a conversation with Susanne Melanie Schmid

Host

Nele von Horsten
Host and MS patient advocate, offering insights and support related to living with Multiple Sclerosis.

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Talking Points

Recent interactions between the hosts and their guests.

#081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic
Q: What roles do social support networks and community resources play in supporting MS and NMOSD and MOGAD patients in Montenegro?
They play a pivotal role in enhancing public awareness and understanding, offering individuals a platform to share experiences, receive encouragement, and reduce feelings of isolation.
#081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic
Q: What cultural stigmas or misconceptions exist surrounding MS, NMOSD, and MOGAD in Montenegro?
Common misconceptions include the belief that MS is contagious and leads to severe disability, which often hinders patient comfort and adherence to treatment. There's also a lack of understanding regarding the conditions, with older individuals being less informed than the younger population.
#081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic
Q: What are some of the challenges faced by MS, NMOSD and MOGAD patients in Montenegro regarding access to health care and support services?
Medication procurement and accessing specialized services are major challenges, particularly for patients from distant areas who must travel to the capital for treatment monitoring. There's a lack of approved treatments for NMOSD and MOGAD, and access to physical therapy can be limited.
#082: Living with neuromyelitis optica (NMO) in Denmark with Leda Bresnov
Q: What role do family members and caregivers play in supporting individuals with NMO?
They provide essential support, understanding, and encouragement during tough times.
#082: Living with neuromyelitis optica (NMO) in Denmark with Leda Bresnov
Q: How important is mental health and emotional well-being for individuals with NMO?
Mental health is critical, as stress and negative emotions exacerbate symptoms.

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Frequently Asked Questions About MS-Perspektive

What is MS-Perspektive about and what kind of topics does it cover?

The focus is on providing valuable insights and support to individuals living with multiple sclerosis (MS). Through expert interviews, personal stories, and related educational content, the episodes aim to empower listeners with information and practical strategies for effectively managing the condition. Key themes include patient advocacy, mental resilience, research developments, and the importance of community engagement. Notably, the podcast highlights not just medical insights but also personal journeys, fostering a sense of connection among listeners who may be experiencing similar challenges.

Where can I find podcast stats for MS-Perspektive?

Rephonic provides a wide range of podcast stats for MS-Perspektive. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to MS-Perspektive and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does MS-Perspektive get?

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What are the audience demographics for MS-Perspektive?

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How many subscribers and views does MS-Perspektive have?

To see how many followers or subscribers MS-Perspektive has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to MS-Perspektive?

These podcasts share a similar audience with MS-Perspektive:

1. MS Living Well: Key Info from Multiple Sclerosis Experts
2. RealTalk MS
3. MeSsy with Christina Applegate & Jamie Lynn Sigler
4. The Doctor's Kitchen Podcast
5. The Dr Louise Newson Podcast

How many episodes of MS-Perspektive are there?

MS-Perspektive launched 2 years ago and published 140 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact MS-Perspektive?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for MS-Perspektive?

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What guests have appeared on MS-Perspektive?

Recent guests on MS-Perspektive include:

1. Joke Soetaert
2. Robert Joyce
3. Luca Peruzzotti Jametti
4. Dr. Luca Peruzotti-Giametti
5. Bruno Moral
6. Barbara Willekens
7. Professor Barbara Willikens
8. Christelle Taute

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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