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Artwork for MS Living Well: Key Info from Multiple Sclerosis Experts

MS Living Well: Key Info from Multiple Sclerosis Experts

Barry Singer, MD
Multiple Sclerosis
Diet
Myelin
Neurology
Clinical Trials
Neuromyelitis Optica Spectrum Disorder
Exercise
Oligodendrocytes
B Cells
Neuroimaging
Brain Health
Sleep Health
Lifestyle Medicine
Artificial Intelligence
Drug Development
Mental Health
Stress Management
Complementary and Alternative Medicine
Cannabis
Physiology

Barry Singer, MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center, interviews global expert guests about the latest treatments, innovations and tips for people living with multiple sclerosis.

PublishesMonthlyEpisodes60Founded7 years ago
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MedicineHealth & Fitness

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Artwork for MS Living Well: Key Info from Multiple Sclerosis Experts

Latest Episodes

Many people with multiple sclerosis say fatigue is their most disabling symptom, and one of the hardest to explain. Unlike sleepiness, it often doesn't lift after a night's rest, and medications have offered limited help. In this episode of MS Living... more

Few conversations in the MS clinic generate as much anxiety as the one about cancer. Disease-modifying therapy labels can carry explicit malignancy warnings, and patients understandably arrive asking whether the drug meant to protect their brain migh... more

Maintaining a healthy weight may be particularly important in multiple sclerosis, as excess fat tissue can promote inflammation and contribute to other health conditions that may complicate MS. GLP-1 medications such as Ozempic and Mounjaro have tran... more

When multiple sclerosis enters a family, it doesn't just change the life of the person diagnosed. It reshapes the daily routines, roles, and futures of the people who love them. A spouse steps into new responsibilities, a child learns to help in ways... more

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Recent Guests

Rona Moss-Morris
Professor of Psychology as Applied to Medicine at King's College London and MS fatigue researcher
King's College London
Episode: Getting Your Energy Back: Managing Sleep and MS Fatigue
Tiffany Braley
MS neurologist at the University of Michigan and founder of its Multidisciplinary MS Fatigue and Sleep Clinic
University of Michigan
Episode: Getting Your Energy Back: Managing Sleep and MS Fatigue
Ronald Chervin
Sleep medicine professor and director of the Sleep Disorders Center at the University of Michigan
University of Michigan
Episode: Getting Your Energy Back: Managing Sleep and MS Fatigue
Esther Melamed
Board-certified neurologist and associate professor in the Department of Neurology at Dell Medical School; research focuses on environmental factors and the immune system in neuroinflammatory disease
Dell Medical School; University of Texas at Austin
Episode: Cancer Risk in MS
Melinda Magyar
Director of the Danish Multiple Sclerosis Registry; Senior Consultant Neurologist
Danish MS Registry; Rigshospitalet; University of Copenhagen
Episode: Cancer Risk in MS
Olaf Stuve
Professor of Neurology and Head of the MS and Neuroimmunology Section
University of Texas Southwestern Medical Center; VA North Texas Health Care System
Episode: GLP-1s, Weight and Exercise in MS
Trevor Wicken
Founder of the MS Gym, movement and exercise expert for MS
MS Gym
Episode: GLP-1s, Weight and Exercise in MS
Kenneth Pakenham
Emeritus professor of clinical and health psychology
University of Queensland, Australia
Episode: Caregiving in MS
Dan Shaul
Caregiver to Kim who has MS; former state representative and association director
Missouri Grocers Association; MS Bright Spots of Hope (board)
Episode: Caregiving in MS

Hosts

Barry Singer
Neurologist and director of the MS Center for Innovations in Care
Jamie Holloman
Neurologist at the MS Center for Innovations in Care

Reviews

4.9 out of 5 stars from 183 ratings
  • Great podcast!

    Thanks for putting a great podcast series together! Many patients and healthcare professionals will find this so valuable!

    Apple Podcasts
    5
    Victoria Levasseur
    United States3 months ago
  • Accessibly understandable experts - very helpful

    Unfortunately, in a doctors office, there is not unlimited time, but with a disease so serious, it is worth spending time accessing disease research. This podcast - that’s is, Dr Singer and his guests — is (are) excellent at bringing the research to a non medically trained audience. I continue to be better informed thanks to it which allows one to be better situated to make decisions about one’s or a loved one’s treatment.

    Apple Podcasts
    5
    WhitE1900
    United States2 years ago
  • So informative and helpful!

    Dr. Singer is so knowledgeable and respectful of the guests he has on the show, who are very well chosen and extremely knowledgeable as well. I am really appreciating the information I'm leaving from this podcast!!

    Apple Podcasts
    5
    Crystal N.S.
    United States3 years ago
  • Wonderful Information

    I love the podcast!! Thank you, thank you thank you!! I’ve lived with MS for over 18 years. And am so grateful to have found this podcast in the past 6 months! So much good information and very thoughtful questions that make the information easier to grasp and relevant. Keep up the great work!

    Apple Podcasts
    5
    ADickson02
    United States3 years ago
  • Amazing Resource for Info on MS

    My wife was recently diagnosed with MS and this podcast has fantastic for all the information we are able to learn from it about MS. We have been listening to every episode from the beginning. It has helped answer so many of our questions about the disease. Dr Singers guests are always from the research hospitals and attended some of the most prestigious medical programs in the country and worldwide. This helps put our minds at easy knowing that the info is coming from trusted sources (at a time... more

    Apple Podcasts
    5
    whduevsirogbsd
    United States3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners value clear explanations that make MS research understandable to people without medical training.
The practical information helps listeners understand symptoms, treatment choices and questions to raise with clinicians.
Reviews praise the hosts' knowledge, respectful interviews and thoughtful questions.
Listeners describe the expert guests as credible and well chosen, and the guidance as useful for patients and families.
Listeners find the delivery friendly and easy to follow, with episodes that hold their interest.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Getting Your Energy Back: Managing Sleep and MS Fatigue
Q: Could you explain a little bit more about the approach when you're talking with a patient about fatigue and trying to parse out maybe what's MS-related fatigue versus co-occurring sleep problems?
Braley recommends examining symptom timing and patterns, aggravating and alleviating factors, and signs of sleepiness or sleep disorders. MS fatigue often rises through the day, while fatigue from a sleep disorder may already be pronounced at the start of the day.
Getting Your Energy Back: Managing Sleep and MS Fatigue
Q: Can you start off by telling our audience about the difference between fatigue and sleep difficulties in MS?
Moss-Morris distinguishes sleepiness, which should improve after sleep, from fatigue, which may persist and involve physical heaviness and unclear thinking.
Caregiving in MS
Q: What does the READY for MS intervention aim to teach, and how is it delivered?
READY for MS teaches six sets of skills that collectively form psychological flexibility, including clarifying values, goal setting, present-moment awareness, diffusion, and acceptance; it can be delivered in group formats and adapted for online use, following Acceptance and Commitment Therapy principles.
Caregiving in MS
Q: A lot of your research on multiple sclerosis in caregivers uses the term invisible patient. Could you tell our audience what that means?
The term refers to young carers who take on substantial responsibilities within the family before MS is formally diagnosed, and to the broader recognition gap where caregiver burdens are not visible to outsiders.
Maintaining Employment with MS and Applying for Disability
Q: How should someone approach applying for disability benefits while still trying to remain employed?
Begin with exploring all accommodations and returns-to-work options, document medical status and functional abilities, and prepare with a disability attorney to gather solid medical opinions and evidence before filing; avoid filing too early to maximize chances at appeal levels.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

A physician-led guide to living with multiple sclerosis, combining clinical research with practical advice for patients, families, caregivers and clinicians. Regular hosts Barry Singer and Jamie Holloman interview neurologists, psychologists, imaging researchers, rehabilitation specialists and other experts about treatment decisions, symptoms and everyday challenges. Topics range from disease-modifying therapies, MRI and emerging research to fatigue, cognition, exercise, nutrition, caregiving, employment and disability benefits.

The format pairs specialist perspectives with actionable guidance, often translating technical findings into questions and strategies people can use in conversations with their care teams. Personal accounts from pe... more

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. Living Well with Multiple Sclerosis
2. RealTalk MS
3. MeSsy with Christina Applegate & Jamie Lynn Sigler
4. 10% Happier with Dan Harris
5. The Dr. Hyman Show

How many episodes of this podcast are there?

this podcast launched 7 years ago and published 60 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Rona Moss-Morris
2. Tiffany Braley
3. Ronald Chervin
4. Esther Melamed
5. Melinda Magyar
6. Olaf Stuve
7. Trevor Wicken
8. Kenneth Pakenham

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