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Artwork for I'm Aware That I'm Rare: the phaware® podcast

I'm Aware That I'm Rare: the phaware® podcast

phaware global association
Pulmonary Hypertension
Pulmonary Arterial Hypertension
Advocacy
Clinical Trials
Chronic Thromboembolic Pulmonary Hypertension
Patient Registries
Patient Advocacy
Chronic Conditions
Systemic Scleroderma
Pulmonary Fibrosis
Lung Transplant
Double Lung Transplant
Pediatric Pulmonary Hypertension
Cardiac Catheterization
PHAR Registry
Emergency Care Access
Nursing
Hereditary Hemorrhagic Telangiectasia
Health Challenges
Self-Advocacy In Healthcare

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversat... more

PublishesDailyEpisodes1121Founded8 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for I'm Aware That I'm Rare: the phaware® podcast

Latest Episodes

The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don't un... more

The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don't un... more

YouTube

Why Families Belong at the Table: PHriends of the PPHNet

Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care mus... more

Why Families Belong at the Table: PHriends of the PPHNet

Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care mus... more

YouTube

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Recent Guests

Eric Borstein
Pulmonary arterial hypertension patient and advocate
Episode: Episode 536 - Eric Borstein
Rodolfo Estrada
Pulmonologist at UT Health San Antonio and leads the pulmonary hypertension program.
UT Health San Antonio
Episode: Episode 523 - Rodolfo Estrada, MD
Nicole Fitzgerald
A 44-year-old patient living with Pulmonary Hypertension
Episode: Episode 493 - John Kingrey, MD and Nicole Fitzgerald

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Episode 536 - Eric Borstein
Q: Can you tell me a little bit about how in your brain you go from this selfish to selfless role?
Helping others came naturally to me due to my philanthropic background and instinct to give back.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

A series focused on raising awareness of pulmonary hypertension, featuring compelling narratives and discussions from patients, caregivers, and medical professionals worldwide. The episodes highlight a range of topics, emphasizing the importance of early diagnosis and treatment in saving lives. From personal stories of resilience amid hardship to advancements in medical care and advocacy efforts, the content serves not only to inform but also to inspire and unite the global community affected by this condition. The unique blend of personal journeys and expert insights aims to deepen the understanding of pulmonary hypertension, while promoting the urgency of awareness around misdiagnosis and the need for improved patient support.

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. The Joe Rogan Experience

How many episodes of this podcast are there?

this podcast launched 8 years ago and published 1121 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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Recent guests on this podcast include:

1. Eric Borstein
2. Rodolfo Estrada
3. Nicole Fitzgerald

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