
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversat... more
| Publishes | Daily | Episodes | 1165 | Founded | 9 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | MedicineHealth & Fitness | |||

From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still can't breathe? Dr. Jenny Yang explains how new testing and team-based care are solving one of pulmonary medici... more
From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still can't breathe? Dr. Jenny Yang explains how new testing and team-based care are solving one of pulmonary medici... more
Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step pulling "EB" further from an IC... more
Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step pulling "EB" further from an IC... more
Don't Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world,... more
Don't Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world,... more
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered
From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and community carried his family through their darkest momen... more
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and community carried his family through their darkest moment a... more
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This program centers on pulmonary hypertension (PH), weaving patient journeys, caregiver perspectives, and professional insights to illuminate diagnosis, treatment, and advocacy. Across episodes, topics span from genetic factors and rare TBX4-related conditions to advances in neonatal care, telehealth, artificial intelligence in diagnosis, and emerging therapies. A notable throughline is patient and family advocacy, collaboration across medical specialties, and the role of patient support networks in accelerating research and improving care. Standout elements include deeply personal caregiver and patient narratives, the international scope of PH discussions, and emphasis on actionable pathways for awareness, early diagnosis, and better outc... more
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this podcast launched 9 years ago and published 1165 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on this podcast include:
1. Florin Dumitrescu
2. Terrie Keplinger
3. Rey Adam Rodriguez
4. Nicholas Kolaitis
5. Lala Juarez
6. Angela Brown
7. Dr. Khushboo Goel
8. Eric Borstein
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