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Artwork for Help! I'm Hypermobile

Help! I'm Hypermobile

Alexandra Orfanides
Hypermobility
Hypermobile Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome
Pregnancy Guidelines
Ankle Sprain
Strength Training
Hypermobility Spectrum Disorder
HEDS
Hypermobility Spectrum Disorders
Anesthesia
Eye Health
Joint Hypermobility Syndrome
Rehabilitation
PCOS
Crossfit
Surgery
Gastrointestinal Issues
Fatigue
Mental Health
Personal Health Journeys

Forget the misconceptions—being hypermobile doesn't mean you're stuck without options. Join hypermobility expert Alex as she reveals exciting breakthroughs and practical tips for managing hypermobility, HSD, and hEDS, as well as sharing insight from her own personal journey. Get ready for engaging discussions, relatable anecdotes, and a few laughs along the way. Prepare to feel inspired, informed,... more

PublishesTwice monthlyEpisodes25Founded3 years ago
Number of ListenersCategory
Health & Fitness

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Artwork for Help! I'm Hypermobile

Latest Episodes

What does it really look like to be a working model with hEDS, chronic illness, and disability?

I'm joined by editorial and runway model Emily Massey for an honest conversation about navigating the modelling industry with a chronic illness, includin... more

YouTube

Listening to your body is hard – ESPECIALLY when you're hypermobile and struggle to feel things in the first place.

On this episode I'm joined by strength and longevity coach Karima Adi (@caffeinated_curves) to talk about our shared experiences wit... more

YouTube

Is it really “just” an ankle sprain?

WE’RE BACK (again!) and this episode, I’m joined by physiotherapist and clinic founder Charlie Goodchild @physio.coach.london to talk about ankle sprains and hypermobility, and why these injuries are often more c... more

YouTube

Dealing with hEDS/HSD and co-occurring conditions, including scoliosis, is anything but easy.

In this episode, I’m joined by Ellen to talk about the realities of dealing with some of the more complex issues relating to hypermobility (which in her c... more

YouTube

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Recent Guests

Emily Massey
Model and patient with HEDS/HSD
Independent model, health advocate
Episode: Modelling, hEDS, and Disability: Real Talk with Emily Massey
Karima Adi
Longevity Coach and CrossFit Coach
CrossFit/Longevity coaching
Episode: Hypermobility & Strength Training: Listening to Your Body with Coach Karima
Lorraine Ansel
Author and advocate sharing her personal journey with HSD/EDS and eye health
Author of The Surrender Agenda
Episode: The Surrender Agenda: Living With Chronic Illness, Pain & Self-Compassion
Sean Thompson
Level 2 CrossFit trainer, movement expert
CrossFit / fitness coaching
Episode: Training With Coach Sean: My hEDS Experience with Exercise and Why Strength Training Isn’t Enough
Dr. Sally Pezaro
Academic midwife and professor, co-creator of the pregnancy guidelines
Heads Together; ElpEC consortium (Elastano Society related)
Episode: Pregnancy and Hypermobility: The Must-Know hEDS/HSD Pregnancy Guidelines with Dr. Sally Pezaro

Host

Alex
Host of Help! I'm Hypermobile and hypermobile movement advocate

Reviews

4.9 out of 5 stars from 114 ratings
  • A lifeline!

    I’m so grateful for these frank and thoughtful discussions. Thank you.

    Apple Podcasts
    5
    Eebygumm
    United Kingdom4 months ago
  • Such a great find!

    This is such a brilliant podcast for those of us living with symptomatic Hypermobility and anyone treating it.

    Alex is a wonderful voice in your ear - an absolute wealth of knowledge but also a friendly reassuring voice. She invites on a great range of expert guests who help us understand this multifaceted condition from their own perspectives.

    Apple Podcasts
    5
    Ease Therapies
    United Kingdom5 months ago
  • Thank you!

    I’ve just found this podcast and so grateful. After knowing that I’m hypermobile for many years, I dismissed it as a quirk that made me clumsy and a chronic ankle sprainer. Then I hit my 40s and have begun to suffer in other ways (back pain), and my fantastic physio explained it’s from my hypermobile posture! Anyway I want to learn more but don’t know where to start, we all know how pressed the NHS is & let’s face it the average GP probably won’t understand… half way through listening to the fi... more

    Apple Podcasts
    5
    Soozb82
    United Kingdoma year ago
  • “So helpful” - my PTs, Chiro, Massage Therapist, and me

    This show has helped me inform so many about what it means to live with hypermobility. In particular, the “Uncurable not Untreatable” episode has been incredibly educational for my own treatment team, because it describes what can be so hard to describe myself. The clear, research-backed, and approachable way she explains everything helps me understand me and others. Thank you so much!

    Sincerely,

    Never Writes Reviews But Props Where Props Are Due

    Apple Podcasts
    5
    Britney27
    United States3 years ago
  • Alex is the real deal, sharing her educated perspective on the hypermobile experience. Her analogies make so much sense!

    Podcast Addict
    5
    bookworm
    3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

high-quality audio and accessible explanations are repeatedly praised
diverse expert guests add credibility and breadth to coverage
frank discussions and practical insights are highly valued by listeners
the show is a go-to resource for families and patients navigating hypermobility
listeners feel seen and better informed about hypermobility and treatment options

Talking Points

Recent interactions between the hosts and their guests.

Training With Coach Sean: My hEDS Experience with Exercise and Why Strength Training Isn’t Enough
Q: How do you approach programming for someone with hypermobility to avoid overdoing it while still making progress?
He emphasizes variability, scaling, monitoring feedback, and aligning workouts with the client's daily life goals, rather than forcing a rigid 12-week plan, to ensure safe progression.
Pregnancy and Hypermobility: The Must-Know hEDS/HSD Pregnancy Guidelines with Dr. Sally Pezaro
Q: What are guidelines in a clinical context, and why were these pregnancy guidelines for hypermobile individuals created?
Guidelines are evidence-based recommendations to standardize care when evidence varies; these pregnancy guidelines were created to offer a structured, multidisciplinary pathway for managing pregnancy in people with hEDS/HSD, helping patients and clinicians anticipate issues and make informed decisions.
The Surrender Agenda: Living With Chronic Illness, Pain & Self-Compassion
Q: What role does community play in your journey with chronic illness?
A supportive community provides direct, authentic communication, practical tips, and emotional validation, which reduces isolation and helps people cope.
The Surrender Agenda: Living With Chronic Illness, Pain & Self-Compassion
Q: How did your diagnosis change your approach to daily life and self-advocacy?
It validated years of symptoms, shifted focus to informed self-management, and motivated advocacy for myself and others with similar conditions.
Hypermobility and Me: My Story
Q: How would you explain HEDS to somebody who hasn't got a clue?
HEDS is a genetically inherited connective tissue disorder affecting various bodily systems, feeling like everything is not quite where it should be all the time.

Audience Metrics

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Frequently Asked Questions About Help! I'm Hypermobile

What is Help! I'm Hypermobile about and what kind of topics does it cover?

A show centered on hypermobility, HSD, and hEDS blends personal experiences with practical guidance for managing chronic conditions, pain, and daily life. Across episodes, listeners encounter a mix of medical explanations, movement coaching, rehabilitation strategies, and lived experiences from patients, athletes, and clinicians. Noteworthy is the host's focus on empowerment, self-coaching, and multidisciplinary approaches, making complex medical topics accessible and actionable for real people navigating hypermobility in work, sport, and family life. The format often features expert guests who translate research into practical tips, along with candid, relatable storytelling that validates invisible symptoms and promotes proactive self-care... more

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Which podcasts are similar to Help! I'm Hypermobile?

These podcasts share a similar audience with Help! I'm Hypermobile:

1. Bendy Bodies with Dr. Linda Bluestein
2. Best of Both Worlds Podcast
3. Bendy & Strong Podcast
4. This American Life
5. Up First from NPR

How many episodes of Help! I'm Hypermobile are there?

Help! I'm Hypermobile launched 3 years ago and published 25 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Help! I'm Hypermobile?

Recent guests on Help! I'm Hypermobile include:

1. Emily Massey
2. Karima Adi
3. Lorraine Ansel
4. Sean Thompson
5. Dr. Sally Pezaro

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