
Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should kno... more
| Publishes | Weekly | Episodes | 188 | Founded | 6 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Self-ImprovementMedicineEducationHealth & Fitness | |||

POTS is a real diagnosis, but it isn’t always the whole story. In this episode of Bendy Bodies, Dr. Linda Bluestein takes a deep dive into POTS imitators: conditions that can mimic, worsen, or coexist with postural orthostatic tachycardia syndrome an... more
Why are people with Ehlers-Danlos syndromes, POTS, and mast cell disorders so frequently misdiagnosed, or dismissed entirely? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Dacre Knight, Medical Director of the UVA Health EDS a... more
Pelvic pain, bladder symptoms, and sexual health concerns are incredibly common in people with Ehlers-Danlos Syndromes, yet they’re often misunderstood, dismissed, or treated in isolation.
In this episode of Bendy Bodies, Dr. Linda Bluestein is join... more
What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home?
In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched Unive... more
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Always a great listen. So informative and it helped/helps me continue to learn more about my condition. Appreciated hearing Dr. Knight and Dr. Stephens recently as one of the new patients at the UVA center!
Wonderfully informative podcast, which has helped me learn and navigate the mysteries and care available for hEDS. There is something very special about clinicians with lived experience. Thank you Dr Bluestein!
I’ve felt like a medical mystery for decades as I’ve had test after test and seen specialist after specialist. Then I was diagnosed with CRPS in 2017 and most doctors I see blame CRPS for anything they can’t explain. My GP has always had my back, and we’ve gone through it all together. Then recently she told me she’d been listening to this podcast, Bendy Bodies, and that I was the first person she thought of. She thinks I have EDS, MCAS, & POTS. Listening to your podcasts and your guests (like D... more
I have felt very alone on my health journey, as I live in an area where no one really even wants to recognize hEDS, POTS, MALS or MCAST ( I also have FMD) I have nearly lost my life twice to ruptured aneurysm, spontaneous subdural Bleed and now living with pretty sure MCAST of which I feel so pushed aside because none of my Drs want to even recognize it is a thing. ….. Thank you so so so so much for all of your information. It is encouraging to know someone hears me, and so many like me.
Thank you Dr Bluestein for sharing your wealth of knowledge. After my hEDS diagnosis I found few resources or people talking about what can be done. Hearing you and your guests have made me feel less alone and help me navigate what is going on with my body.
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The content focuses extensively on connective tissue disorders, particularly Ehlers-Danlos Syndromes (EDS), and the myriad challenges faced by individuals with hypermobility. Each episode features Dr. Linda Bluestein, who provides unique insights into managing complications and enhancing the quality of life for those affected by these often-overlooked conditions. The podcast distinctly emphasizes the importance of patient education, self-advocacy, and collaboration with healthcare providers while fostering a community of support among listeners who share similar experiences.
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Bendy Bodies launched 6 years ago and published 188 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on Bendy Bodies include:
1. Dr. Dacre Knight
2. Dr. Lawrence Afrin
3. Dr. Eric Singman
4. Dr. Robert Hacker
5. Professor Tara Renton
6. Skylar Brandt
7. Dr. Janet Settle
8. Tilly Rose
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