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Bendy Bodies with Dr. Linda Bluestein

Dr. Linda Bluestein
Ehlers-Danlos Syndrome
Mast Cell Activation Syndrome
Hypermobility
Chronic Pain
Ehlers-Danlos Syndromes
Hypermobility Spectrum Disorder
Dysautonomia
Mental Health
POTS
Patient Advocacy
Joint Hypermobility
Connective Tissue Disorders
Hypermobility Spectrum Disorders
Postural Orthostatic Tachycardia Syndrome
Long COVID
Chronic Illness
Physical Therapy
Pain Management
Hypermobile Ehlers-Danlos Syndrome
Neuroinflammation

Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should kno... more

PublishesWeeklyEpisodes215Founded7 years ago
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MedicineEducationHealth & FitnessSelf-Improvement

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Latest Episodes

Why can you feel almost functional one day and completely wrecked the next with hypermobile EDS, HSD, POTS, or MCAS? And how do you know whether you need more treatment, more rest, more movement, or an entirely different approach?

In this special ep... more

What if some of the most disabling symptoms in EDS, HSD, POTS, MCAS, ME/CFS, and long COVID are being driven by something we still struggle to see on standard testing?

In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by guest co-host D... more

What if being “naturally flexible” is actually the thing putting you at risk for injury?

Dr. Linda Bluestein welcomes back Dr. Emily Scherb, known as The Circus Doc, for a fascinating conversation about what circus performers can teach all hypermobi... more

Tongue tie and POTS? EDS without obvious hypermobility? Perimenopause making symptoms worse? And tongue numbness after a nerve block? In this listener Q&A, Dr. Linda Bluestein, the Hypermobility MD, and recurring co-host Dr. Dacre Knight, medical dir... more

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Recent Guests

Christy Jagdfeld
CPA, patient advocate, co-founder of Brain Inflammation Collaborative
Brain Inflammation Collaborative
Episode: Is Brain Inflammation the Missing Link? Brain Inflammation Collaborative & Dr. Ina Stephens | Ep 211
Dr. Megan Fitzgerald
Neuroscientist, scientific director at Brain Inflammation Collaborative
Brain Inflammation Collaborative
Episode: Is Brain Inflammation the Missing Link? Brain Inflammation Collaborative & Dr. Ina Stephens | Ep 211
Dr. Emily Scherb
Circus medicine expert, The Circus Doc
Circus Doc / physical therapist
Episode: Flexibility as a Liability: What Circus Teaches Us about Hypermobility w/ Dr. Emily Scherb (Ep 210)
Abbey Phillipson
Head strength coach for Paralympic and Adaptive Sports at the University of Michigan; founder of the Collagen Advocacy Network
Collagen Advocacy Network / University of Michigan
Episode: Is the Ehlers-Danlos Umbrella Helping... or Hurting? with Abbey Phillipson (Ep 208)
David Nutt
Professor of Psychopharmacology; cannabis and psychedelics researcher
DrugScience / University affiliations
Episode: Medical Cannabis, hEDS, and the Sensitized Nervous System with Professor Dave Nutt & Lucy Stafford (Ep 206)
Lucy Stafford
PhD student researching endocannabinoid system and hypermobility disorders
Independent researcher / hypermobility community
Episode: Medical Cannabis, hEDS, and the Sensitized Nervous System with Professor Dave Nutt & Lucy Stafford (Ep 206)
Dr. Ina Stephens
Infectious disease specialist, integrative medicine physician, associate medical director of UVA Health EDS and Hypermobility Disorders Center
UVA Health
Episode: The Hidden Link Between Long COVID, Lyme Disease & Hypermobility with Dr. Ina Stephens (Ep 205)
Rebecca Gluck
Physician assistant with genetics and connective tissue disorders expertise
Ehlers-Danlos Society Medical and Scientific Advisory Board; Road to 2026 Research Committee
Episode: EDS Information Overload: How to Know What to Trust | Ep. 202
Morgan Groover
Physical therapist specialized in EDS
Independent PT / EDS-focused practice
Episode: Physical Therapy for EDS: Why It Fails and How to Make It Work | Ep. 201

Host

Dr. Linda Bluestein
Host of Bendy Bodies Podcast; Mayo Clinic-trained physician focusing on hypermobility and EDS

Reviews

4.9 out of 5 stars from 500 ratings
  • Episode with Dr. Anne Maitland!

    10 stars! Thank you from myself , also a practitioner with all of this …

    Apple Podcasts
    5
    Allie159
    United States23 days ago
  • Life Changing Podcast

    In December 2024, I developed long COVID. Without knowing I had hEDS, I was facing the onset of symptoms completely alone (as a ‘fit and healthy’ 29 year old male I was dismissed by most doctors).

    YouTube’s algorithm pointed me in your direction, and it’s the best things that has happened to me.

    Over the past 18 months, my quality of life has improved significantly to the point where I’m now able to return to work as an Engineering Geologist here in Australia.

    This podcast has been one of th... more

    Apple Podcasts
    5
    Sh9203
    Australia3 months ago
  • Knowledge, Validation, and Hope in Every Episode

    Thank you so much, Linda, and the entire podcast team. I dip in and out of the Bendy Bodies Podcast series, and so much of the content resonates deeply with me. The podcasts have not only helped me feel less alone, but have also significantly improved my understanding of how to better manage my hEDS and associated conditions, as well as navigate and access the healthcare support I need.

    As someone living with hEDS and complex co-occurring conditions, I especially value the depth, compassion, and... more

    Apple Podcasts
    5
    Sarah Clark.
    United Kingdom4 months ago
  • Always a great listen

    Always a great listen. So informative and it helped/helps me continue to learn more about my condition. Appreciated hearing Dr. Knight and Dr. Stephens recently as one of the new patients at the UVA center!

    Apple Podcasts
    5
    Knatash
    United States7 months ago
  • Eternally grateful

    Wonderfully informative podcast, which has helped me learn and navigate the mysteries and care available for hEDS. There is something very special about clinicians with lived experience. Thank you Dr Bluestein!

    Apple Podcasts
    5
    Mrs Kafoops
    Australiaa year ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The show is described as a reliable resource for patients and clinicians alike, with strong community support.
Listeners praise practical tips for navigating complex care and multidisciplinary teams.
The host delivers clear, evidence-based guidance with empathy and patient voice at the center.
Guests are consistently experts, adding credibility and actionable insights for bendy communities.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Unpredictability in EDS: Flares, Shame & What Actually Helps | Office Hours
Q: How should families respond to last-minute cancellations?
Offer flexible accommodations, express understanding, and propose practical alternatives like taking out or shortening plans, rather than pressuring the person to push through a hard day.
Unpredictability in EDS: Flares, Shame & What Actually Helps | Office Hours
Q: What is the single most important thing families should understand about variability day to day?
Families should understand that day-to-day variability is real and multifactorial, driven by sleep, weather, hormones, hydration, stress, infection, and activity, and it should be met with belief and practical support rather than blame.
Tongue Tie, Trauma, Menopause & More: Your EDS Questions Answered with Dr. Dacre Knight (Ep 209)
Q: Amy requests a guest expert on MCAS and postmenopause for postmenopausal bleeding evaluation in the context of EDS.
They acknowledge the need for a gynecologist with expertise in connective tissue disorders and plan to feature discussions on endometriosis, menopausal management, and pelvic health in future episodes.
Tongue Tie, Trauma, Menopause & More: Your EDS Questions Answered with Dr. Dacre Knight (Ep 209)
Q: Brooke asks about hypermobile EDS in men and how to evaluate a non-hypermobile brother who has symptoms.
The doctors explain that men can have EDS/HSD, though less commonly; evaluation should start with clinical history and exam, and consider autonomic issues like POTS, with open discussion about genetic or developmental differences and a tailored plan with a clinician.
Tongue Tie, Trauma, Menopause & More: Your EDS Questions Answered with Dr. Dacre Knight (Ep 209)
Q: Samantha asks about tongue tie and whether adult tongue tie releases help people with EDS.
Dr. Knight suggests that tongue tie release may be helpful for some patients, but clinicians should be selective and consider other factors like sleep, breathing, and TMJ issues; ongoing research and multidisciplinary assessment are important before proceeding with a release.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About Bendy Bodies

What is Bendy Bodies about and what kind of topics does it cover?

The show centers on hypermobility and connective tissue disorders, especially EDS/HSD, with clinicians, researchers, and patient voices unpacking practical management, diagnostics, therapies, and advocacy. Episodes frequently cover multidisciplinary care, movement, symptom management, and navigating healthcare systems, all while highlighting patient experiences and lived realities. A notable strength is the blend of clinical expertise with patient perspective, offering actionable tips for care teams, as well as robust resources for listeners. The format often includes Q&A, expert interviews, and discussions of latest research, making it a valuable resource for patients, caregivers, and professionals seeking evidence-based, empathetic guidan... more

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How many episodes of Bendy Bodies are there?

Bendy Bodies launched 7 years ago and published 215 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Bendy Bodies?

Recent guests on Bendy Bodies include:

1. Christy Jagdfeld
2. Dr. Megan Fitzgerald
3. Dr. Emily Scherb
4. Abbey Phillipson
5. David Nutt
6. Lucy Stafford
7. Dr. Ina Stephens
8. Rebecca Gluck

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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