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Bendy Bodies with Dr. Linda Bluestein

Dr. Linda Bluestein
Ehlers-Danlos Syndrome
Mast Cell Activation Syndrome
Chronic Pain
Hypermobility
Ehlers-Danlos Syndromes
Hypermobility Spectrum Disorder
Dysautonomia
Mental Health
POTS
Patient Advocacy
Joint Hypermobility
Connective Tissue Disorders
Hypermobility Spectrum Disorders
Postural Orthostatic Tachycardia Syndrome
Chronic Illness
Long COVID
Pain Management
Physical Therapy
Hypermobile Ehlers-Danlos Syndrome
Healthcare System

Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should kno... more

PublishesWeeklyEpisodes201Founded6 years ago
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EducationMedicineSelf-ImprovementHealth & Fitness

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Artwork for Bendy Bodies

Latest Episodes

You have been told it is just weight. Just diet. Just effort.

For millions of women with lipedema, that is not just wrong. It is decades of unnecessary suffering.

In this episode of Bendy Bodies, I sit down with Kasi Grosvenor and Jesse Cochrane fr... more

Most people with EDS or HSD have been told to "exercise more," "eat better," and "sleep on a schedule," usually by someone who has never tried to do any of those things in a hypermobile, pain-flaring, dysautonomic body.

This episode is different.

D... more

What if being too flexible is exactly what makes surgery fail? And what if your doctor thinks your shoulder is fine because you can lift your arm to 90 degrees, not realizing that for you, 90 degrees might as well be a frozen joint?

Your joints ben... more

In this "MythBusters" edition of the Bendy Bodies Podcast, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight tackle the persistent misconceptions surrounding Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and their fr... more

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Recent Guests

Dr. Dacre Knight
Medical Director of the UVA Health EDS and Hypermobility Disorders Center
UVA Health
Episode: Why Everything You've Been Told About EDS Lifestyle Is Wrong with Dr. Dacre Knight (Ep 197)
Dr. Jocelyn Wittstein
Orthopedic surgeon at Duke University School of Medicine, sports injuries and joint conditions
Duke University School of Medicine
Episode: Too Flexible to Fix? Orthopedic Surgery and Hypermobility with Dr. Jocelyn Wittstein (Ep 196)
Dr. Jessica Eccles
Award-winning neurodevelopmental psychiatrist and researcher
University/ Brighton and Sussex Medical School (as referenced)
Episode: Told You’re “Too Sensitive”? It Might Be ADHD, Autism, and Hypermobility with Jessica Eccles (Ep 194)
Dr. Andrew Callen
Neuroradiologist and founder/director of CU CSF Leak Program
University of Colorado School of Medicine
Episode: Why Your MRI Looks “Normal” but You Still Have a CSF Leak with Dr. Andrew Callen (Ep 193)
Brooke Winder
Pelvic health physical therapist and dance science expert
Clinical practice; California State University Long Beach
Episode: Tight Muscles, Loose Joints, Pelvic Pain: The Hypermobility Paradox with Dr. Brooke Winder (Ep 192)
Dr. Anne Maitland
Medical director of the MUSC Ehlers-Danlos Center, allergy/immunology expert
MUSC Ehlers-Danlos Center
Episode: Mast Cells to Microplastics with Dr. Anne Maitland and cohost Dr. Dacre Knight (Ep 191)
Eric Singman
Neuro-ophthalmologist, University of Maryland School of Medicine
University of Maryland School of Medicine
Episode: Eye Problems in EDS with Dr. Eric Singman and cohost Dr. Dacre Knight (Ep 189)
Dr. Forest Tennant
Physician and researcher in addiction and pain management; expert on arachnoiditis
Arachnoiditis Hope / Tennant Foundation
Episode: Arachnoiditis: The Severe Pain Condition Doctors Miss with Dr. Forest Tennant (Ep 188)
Dr. Ina Stephens
Integrative Medicine Specialist; Associate Medical Director of the UVA Health EDS and Hypermobility Disorders Center
University of Virginia
Episode: Lifestyle Factors That Truly Change EDS Outcomes with Dr. Ina Stephens (Ep 187)

Host

Dr. Linda Bluestein
Host of Bendy Bodies Podcast

Reviews

4.9 out of 5 stars from 469 ratings
  • Knowledge, Validation, and Hope in Every Episode

    Thank you so much, Linda, and the entire podcast team. I dip in and out of the Bendy Bodies Podcast series, and so much of the content resonates deeply with me. The podcasts have not only helped me feel less alone, but have also significantly improved my understanding of how to better manage my hEDS and associated conditions, as well as navigate and access the healthcare support I need.

    As someone living with hEDS and complex co-occurring conditions, I especially value the depth, compassion, and... more

    Apple Podcasts
    5
    Sarah Clark.
    United Kingdom20 days ago
  • Always a great listen

    Always a great listen. So informative and it helped/helps me continue to learn more about my condition. Appreciated hearing Dr. Knight and Dr. Stephens recently as one of the new patients at the UVA center!

    Apple Podcasts
    5
    Knatash
    United States4 months ago
  • Eternally grateful

    Wonderfully informative podcast, which has helped me learn and navigate the mysteries and care available for hEDS. There is something very special about clinicians with lived experience. Thank you Dr Bluestein!

    Apple Podcasts
    5
    Mrs Kafoops
    Australia9 months ago
  • Huge Help

    I’ve felt like a medical mystery for decades as I’ve had test after test and seen specialist after specialist. Then I was diagnosed with CRPS in 2017 and most doctors I see blame CRPS for anything they can’t explain. My GP has always had my back, and we’ve gone through it all together. Then recently she told me she’d been listening to this podcast, Bendy Bodies, and that I was the first person she thought of. She thinks I have EDS, MCAS, & POTS. Listening to your podcasts and your guests (like D... more

    Apple Podcasts
    5
    24lernin71
    United States10 months ago
  • LOVE

    I have felt very alone on my health journey, as I live in an area where no one really even wants to recognize hEDS, POTS, MALS or MCAST ( I also have FMD) I have nearly lost my life twice to ruptured aneurysm, spontaneous subdural Bleed and now living with pretty sure MCAST of which I feel so pushed aside because none of my Drs want to even recognize it is a thing. ….. Thank you so so so so much for all of your information. It is encouraging to know someone hears me, and so many like me.

    Apple Podcasts
    5
    gardengirl100
    United States10 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

- Strong community feel; listeners appreciate the evidence-based, empathetic approach to complex conditions.
- Positive impact on navigating care pathways and finding resources.
- High regard for guest expertise and the host's lived experience with hypermobility.
- Informative and supportive, with clinicians and patients sharing practical insights.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Too Flexible to Fix? Orthopedic Surgery and Hypermobility with Dr. Jocelyn Wittstein (Ep 196)
Q: What should patients ask surgeons if they suspect hypermobility affects surgical outcomes?
Ask how the surgeon would alter their technique for hypermobility, whether they've treated many patients with joint laxity, and what non-surgical options have been tried before proceeding to surgery.
Too Flexible to Fix? Orthopedic Surgery and Hypermobility with Dr. Jocelyn Wittstein (Ep 196)
Q: When is imaging helpful in evaluating hypermobile joints vs when is it not?
Imaging helps identify structural contributors like capsular volume, labral tears, cartilage damage, or bony shapes that contribute to instability. It's less helpful for dynamic instability that's not tied to a clear anatomic abnormality.
Too Flexible to Fix? Orthopedic Surgery and Hypermobility with Dr. Jocelyn Wittstein (Ep 196)
Q: Can you define instability, laxity, and hypermobility for listeners who might feel confused by the terms?
Instability refers to joints that move in ways that aren't controlled by the surrounding structures, laxity is the looseness in the joint capsule or ligaments, and hypermobility is a general heightened range of motion. The key is how well a person can control those movements in daily life.
Why Everything You've Been Told About EDS Lifestyle Is Wrong with Dr. Dacre Knight (Ep 197)
Q: What should patients do when they feel physical therapy doesn't work for them?
The host emphasizes that not all PTs are equally knowledgeable and that some approaches can be harmful; the path is to seek providers who understand HEDS/HSD, be cautious with aggressive stretching, and recognize the need to tailor therapy to avoid deconditioning and injury.
Why Everything You've Been Told About EDS Lifestyle Is Wrong with Dr. Dacre Knight (Ep 197)
Q: How should someone find a physical therapist who can work with EDS or hypermobility disorders?
The guest suggests looking for therapists who are fellowship-trained or have demonstrated knowledge about EDS/hypermobility, using provider directories (e.g., EDS Society), seeking local referrals, and considering personal compatibility, with a willingness to try multiple therapists until finding a good fit.

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Frequently Asked Questions About Bendy Bodies

What is Bendy Bodies about and what kind of topics does it cover?

The show centers on hypermobility, connective tissue disorders, and the lived experience of EDS and related conditions. Across episodes, listeners hear from clinicians, researchers, patients, and advocates about diagnosis, treatment sequencing, and practical strategies to manage pain, dysautonomia, mast cell activation, and related comorbidities. The hosts emphasize patient advocacy, multidisciplinary care, and humane, real-world approaches to navigating complex medical systems. A standout aspect is the blend of medical expertise with personal experience, creating a supportive, educational community for both patients and professionals. This podcast is likely to attract healthcare practitioners, patients, caregivers, and dancers or athletes ... more

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Which podcasts are similar to Bendy Bodies?

These podcasts share a similar audience with Bendy Bodies:

1. ADHD Women's Wellbeing Podcast
2. The Dr. Brighten Show
3. ADHD Experts Podcast
4. The Dr. Hyman Show
5. Dr. Ruscio Radio, DC: Health, Nutrition and Functional Healthcare

How many episodes of Bendy Bodies are there?

Bendy Bodies launched 6 years ago and published 201 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Bendy Bodies?

Recent guests on Bendy Bodies include:

1. Dr. Dacre Knight
2. Dr. Jocelyn Wittstein
3. Dr. Jessica Eccles
4. Dr. Andrew Callen
5. Brooke Winder
6. Dr. Anne Maitland
7. Eric Singman
8. Dr. Forest Tennant

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