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Bendy Bodies with Dr. Linda Bluestein

Dr. Linda Bluestein
Ehlers-Danlos Syndrome
Mast Cell Activation Syndrome
Hypermobility
Chronic Pain
Ehlers-Danlos Syndromes
Hypermobility Spectrum Disorder
Dysautonomia
Mental Health
POTS
Patient Advocacy
Joint Hypermobility
Connective Tissue Disorders
Hypermobility Spectrum Disorders
Postural Orthostatic Tachycardia Syndrome
Chronic Illness
Long Covid
Pain Management
Physical Therapy
Hypermobile Ehlers-Danlos Syndrome
Genetic Testing

Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should kno... more

PublishesWeeklyEpisodes213Founded6 years ago
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MedicineEducationHealth & FitnessSelf-Improvement

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Latest Episodes

What if being “naturally flexible” is actually the thing putting you at risk for injury?

Dr. Linda Bluestein welcomes back Dr. Emily Scherb, known as The Circus Doc, for a fascinating conversation about what circus performers can teach all hypermobi... more

Tongue tie and POTS? EDS without obvious hypermobility? Perimenopause making symptoms worse? And tongue numbness after a nerve block? In this listener Q&A, Dr. Linda Bluestein, the Hypermobility MD, and recurring co-host Dr. Dacre Knight, medical dir... more

Could lumping every type of Ehlers-Danlos syndrome under one umbrella actually be doing more harm than good?

In this thought-provoking episode, host Dr. Linda Bluestein, the Hypermobility MD, is joined by Abbey Phillipson, who was born with COL5A1 c... more

Are surgical risks in EDS exaggerated, underestimated, or simply misunderstood? And how can patients tell the difference between a promising treatment and an expensive procedure being marketed ahead of the evidence?

In this listener Q&A episode, hos... more

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Recent Guests

Abbey Phillipson
Head strength coach for Paralympic and Adaptive Sports at the University of Michigan; founder of the Collagen Advocacy Network
Collagen Advocacy Network / University of Michigan
Episode: Is the Ehlers-Danlos Umbrella Helping... or Hurting? with Abbey Phillipson (Ep 208)
David Nutt
Professor of Psychopharmacology; cannabis and psychedelics researcher
DrugScience / University affiliations
Episode: Medical Cannabis, hEDS, and the Sensitized Nervous System with Professor Dave Nutt & Lucy Stafford (Ep 206)
Lucy Stafford
PhD student researching endocannabinoid system and hypermobility disorders
Independent researcher / hypermobility community
Episode: Medical Cannabis, hEDS, and the Sensitized Nervous System with Professor Dave Nutt & Lucy Stafford (Ep 206)
Rebecca Gluck
Physician assistant with genetics and connective tissue disorders expertise
Ehlers-Danlos Society Medical and Scientific Advisory Board; Road to 2026 Research Committee
Episode: EDS Information Overload: How to Know What to Trust | Ep. 202
Morgan Groover
Physical therapist specialized in EDS
Independent PT / EDS-focused practice
Episode: Physical Therapy for EDS: Why It Fails and How to Make It Work | Ep. 201
Moira McCormack
Professional dancer, chartered physiotherapist, dance health specialist and early researcher on hypermobility in dancers
Independent/Various academic affiliations (as discussed)
Episode: Hypermobility Then and Now | Episode 200
Dr. Gregory Plotnikoff
Medical expert focusing on vitamin D
Unknown from transcript
Episode: Fatigue, Pain, Poor Sleep? It Could Be Vitamin D. | Dr. Gregory Plotnikoff & Dr. Dacre Knight (Ep. 199)
Kasi Grosvenor
MBA and project manager at the Lipedema Foundation; lives with Lipedema and related conditions
Lipedema Foundation
Episode: Why Lipedema Resists Diet and Exercise with the Lipedema Foundation (Ep 198)
Dr. Jesse Cochrane
VP of Research at the Lipedema Foundation; researcher with MIT/Yale background
Lipedema Foundation
Episode: Why Lipedema Resists Diet and Exercise with the Lipedema Foundation (Ep 198)

Host

Dr. Linda Bluestein
Host of Bendy Bodies Podcast; The Hypermobility MD

Reviews

4.9 out of 5 stars from 500 ratings
  • Life Changing Podcast

    In December 2024, I developed long COVID. Without knowing I had hEDS, I was facing the onset of symptoms completely alone (as a ‘fit and healthy’ 29 year old male I was dismissed by most doctors).

    YouTube’s algorithm pointed me in your direction, and it’s the best things that has happened to me.

    Over the past 18 months, my quality of life has improved significantly to the point where I’m now able to return to work as an Engineering Geologist here in Australia.

    This podcast has been one of th... more

    Apple Podcasts
    5
    Sh9203
    Australia3 months ago
  • Knowledge, Validation, and Hope in Every Episode

    Thank you so much, Linda, and the entire podcast team. I dip in and out of the Bendy Bodies Podcast series, and so much of the content resonates deeply with me. The podcasts have not only helped me feel less alone, but have also significantly improved my understanding of how to better manage my hEDS and associated conditions, as well as navigate and access the healthcare support I need.

    As someone living with hEDS and complex co-occurring conditions, I especially value the depth, compassion, and... more

    Apple Podcasts
    5
    Sarah Clark.
    United Kingdom3 months ago
  • Always a great listen

    Always a great listen. So informative and it helped/helps me continue to learn more about my condition. Appreciated hearing Dr. Knight and Dr. Stephens recently as one of the new patients at the UVA center!

    Apple Podcasts
    5
    Knatash
    United States7 months ago
  • Eternally grateful

    Wonderfully informative podcast, which has helped me learn and navigate the mysteries and care available for hEDS. There is something very special about clinicians with lived experience. Thank you Dr Bluestein!

    Apple Podcasts
    5
    Mrs Kafoops
    Australiaa year ago
  • Huge Help

    I’ve felt like a medical mystery for decades as I’ve had test after test and seen specialist after specialist. Then I was diagnosed with CRPS in 2017 and most doctors I see blame CRPS for anything they can’t explain. My GP has always had my back, and we’ve gone through it all together. Then recently she told me she’d been listening to this podcast, Bendy Bodies, and that I was the first person she thought of. She thinks I have EDS, MCAS, & POTS. Listening to your podcasts and your guests (like D... more

    Apple Podcasts
    5
    24lernin71
    United Statesa year ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Knowledge, Validation, and Hope in Every Episode – listeners value depth, compassion, and patient advocacy tales.
Always a great listen – appreciated the clinical guests and practical insights.
Enthusiastic feedback on how the show helps with navigating hypermobility and related conditions.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Is the Ehlers-Danlos Umbrella Helping... or Hurting? with Abbey Phillipson (Ep 208)
Q: What is the core concern about grouping rare and ultra-rare EDS types under a single umbrella?
It risks obscuring distinct needs and care pathways; precise naming based on genetics can improve diagnosis, resource allocation, and personalized care, though it must be balanced with clinician practicality and patient acceptance.
Are EDS Treatments Moving Faster Than the Evidence? with Dr. Dacre Knight (Ep 207)
Q: What should patients watch for when clinics push broad IV therapies before full workups?
Patients should ensure labs are reviewed, treatments are tailored to individual deficiencies, dosing respects body size and sensitivities, and there is a clear plan for monitoring adverse reactions and stopping the therapy if problems arise.
Are EDS Treatments Moving Faster Than the Evidence? with Dr. Dacre Knight (Ep 207)
Q: Would you like to tackle the concern that some surgeons may downplay risks for EDS patients?
Yes. While some surgeons reassure patients, it's important to recognize that surgical outcomes can be complicated by connective tissue disorders; the best approach is careful selection of experienced surgeons, comprehensive preoperative planning, and informed discussions about risks and expected recoveries.
Medical Cannabis, hEDS, and the Sensitized Nervous System with Professor Dave Nutt & Lucy Stafford (Ep 206)
Q: Lucy, what do you wish clinicians understood better about how medically complex patients can or are actually using cannabis in the real world?
Open-mindedness and understanding that patients often seek cannabis after other options have failed. They tailor usage to individual symptoms, combining multiple product forms and dosing strategies, and they rely on clinicians who are informed and supportive rather than dismissive.
Medical Cannabis, hEDS, and the Sensitized Nervous System with Professor Dave Nutt & Lucy Stafford (Ep 206)
Q: But there's going to be people that don't know that we have an endogenous endocannabinoid system. And if one of you would like to explain that, I think it would help people understand that we have endogenous endocannabinoids, right?
The endocannabinoid system is a fundamental, naturally occurring regulatory system that balances brain function, the nervous system, immune response, and gut activity. Cannabinoids from outside the body can interact with this system to recalibrate overactive or dysregulated signaling, which may help with pain, autonomic symptoms, and gut function in hypermobility disorders.

Audience Metrics

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Frequently Asked Questions About Bendy Bodies

What is Bendy Bodies about and what kind of topics does it cover?

A highly practical, clinician-led show centered on hypermobility, EDS, POTS, MCAS, and related conditions. Episodes blend medical expertise with patient experiences to demystify complex multisystem disorders, offering actionable advice on movement, sleep, nutrition, and interdisciplinary care. Across interviews with physicians, surgeons, therapists, and patient advocates, the program emphasizes validation, accessible explanations, and real-world strategies for living with bendy bodies. A notable strength is the consistent focus on patient-centered care, biopsychosocial perspectives, and collaboration across specialties, making it a valuable resource for patients, caregivers, and healthcare professionals seeking evidence-informed guidance an... more

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Bendy Bodies launched 6 years ago and published 213 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Bendy Bodies?

Recent guests on Bendy Bodies include:

1. Abbey Phillipson
2. David Nutt
3. Lucy Stafford
4. Rebecca Gluck
5. Morgan Groover
6. Moira McCormack
7. Dr. Gregory Plotnikoff
8. Kasi Grosvenor

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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