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Bendy Bodies with Dr. Linda Bluestein

Dr. Linda Bluestein
Ehlers-Danlos Syndrome
Mast Cell Activation Syndrome
Hypermobility
Chronic Pain
Ehlers-Danlos Syndromes
Hypermobility Spectrum Disorder
Dysautonomia
Mental Health
POTS
Patient Advocacy
Joint Hypermobility
Connective Tissue Disorders
Hypermobility Spectrum Disorders
Chronic Illness
Postural Orthostatic Tachycardia Syndrome
Long COVID
Pain Management
Physical Therapy
Hypermobile Ehlers-Danlos Syndrome
Neuroinflammation

Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should kno... more

PublishesWeeklyEpisodes226Founded7 years ago
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MedicineEducationHealth & FitnessSelf-Improvement

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Latest Episodes

What if the place that hurts most is not where your chronic pain actually comes from?

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein, talks with Brian Tuckey about a new, research-backed way of understanding fascia, the lymphatic s... more

What happens when real chronic illness meets a social media algorithm that rewards hospital photos, medical devices, and dramatic symptom posts?

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein, is joined by Dr. Dacre Knight and Dr. ... more

Why are so many women with hypermobile EDS, mast cell activation syndrome (MCAS), and dysautonomia told their symptoms are “just anxiety,” and how do you tell real anxiety from a body-driven feeling of dread?

In this episode of the Bendy Bodies Podc... more

If an infection triggered your mast cell activation syndrome (MCAS), Sjögren’s, or dysautonomia, can treating that infection reverse it?

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein and Dr. Ina Stephens answer a listener question... more

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Recent Guests

Dacre Knight
Medical Director of the UVA Health EDS and Hypermobility Disorders Center
UVA Health
Episode: Sickfluencers & Cyberchondria on Social Media | Drs. Ina Stephens & Dacre Knight | Ep 221
Ina Stephens
Associate Director of the UVA Health EDS and Hypermobility Disorders Center
UVA Health
Episode: Sickfluencers & Cyberchondria on Social Media | Drs. Ina Stephens & Dacre Knight | Ep 221
Tracy Shevell
Board-certified high-risk OBGYN with 25 years of experience in academic medicine
Episode: Hormones, Histamine, and Hypermobility with Dr. Tracy Shevell | Ep 220
Dr. Kathleen King
Physical therapist and neuroscience-based mind-body practitioner; founder/CEO of Primal Trust Academy and Community
Primal Trust Academy and Community
Episode: Can Brain Retraining Actually Heal Chronic Illness? with Dr. Cathleen King (Ep 218)
Dr. Ina Stephens
Associate Director of the UVA Health EDS and Hypermobility Disorders Center
UVA Health EDS Center
Episode: EDS, MCAS & Dysautonomia: Autoimmunity Triggers & Brain Retraining with Dr. Ina Stephens | Ep 217
Dr. Sarah Cohen Solomon
Board-certified pediatrician specializing in Ehlers-Danlos syndromes and related conditions
UVA Health, Growing EDS and Hypermobility Disorders Program
Episode: EDS & Hypermobility in Kids: Growing Pains, POTS & Signs We Miss w/ Dr. Sarah Cohen Solomon | Ep 216
Dr. William Ericson
Orthopedic hand surgeon with extensive training in upper extremity surgery; specializes in dynamic nerve problems and proximal nerve entrapment in EDS
Ericson Hand and Nerve Center, Seattle
Episode: Hand Pain, Numbness & Weakness in EDS: Missed Nerve Problems with Dr. William Ericson | Ep 214
Michael Turken
Physician, programmer, and patient; internist at UCSF; founder of My Doctor Friend
University of California, San Francisco; My Doctor Friend
Episode: What AI Gets Wrong About Your Health with Michael Turken, MD (Ep 213.5)
Christy Jagdfeld
CPA, patient advocate, co-founder of Brain Inflammation Collaborative
Brain Inflammation Collaborative
Episode: Is Brain Inflammation the Missing Link? Brain Inflammation Collaborative & Dr. Ina Stephens | Ep 211

Host

Dr. Linda Bluestein
Host of Bendy Bodies Podcast; Mayo Clinic-trained physician focusing on hypermobility and EDS

Reviews

4.8 out of 5 stars from 526 ratings
  • My go-to

    I have hEDS, ME/CFS and POTS and this podcast is one of my absolute go-to’s. It helps me keep informed about my conditions, helps me direct my conversations with my medical team, and honestly gives me hope that life won’t always be so hard. People like Dr. Bluestein make a huge difference even without being directly in my life, and I’m tremendously grateful. Have been a listener for about 3 years now and will be listening as long as she continues to do these.

    Apple Podcasts
    5
    avisser90
    Canadaa month ago
  • Knowledgeable caring EDS doc

    One of the best podcasts for medical education and support that I have ever seen. Dr. Bluestein is an amazing advocate and treating Dr. She is very active in EDS Society. She is an excellent speaker that every Medical center should consider having. Enjoy listening to these great episodes.

    Apple Podcasts
    5
    Diane Stein
    United States2 months ago
  • Episode with Dr. Anne Maitland!

    10 stars! Thank you from myself , also a practitioner with all of this …

    Apple Podcasts
    5
    Allie159
    United States3 months ago
  • Life Changing Podcast

    In December 2024, I developed long COVID. Without knowing I had hEDS, I was facing the onset of symptoms completely alone (as a ‘fit and healthy’ 29 year old male I was dismissed by most doctors).

    YouTube’s algorithm pointed me in your direction, and it’s the best things that has happened to me.

    Over the past 18 months, my quality of life has improved significantly to the point where I’m now able to return to work as an Engineering Geologist here in Australia.

    This podcast has been one of th... more

    Apple Podcasts
    5
    Sh9203
    Australia6 months ago
  • Knowledge, Validation, and Hope in Every Episode

    Thank you so much, Linda, and the entire podcast team. I dip in and out of the Bendy Bodies Podcast series, and so much of the content resonates deeply with me. The podcasts have not only helped me feel less alone, but have also significantly improved my understanding of how to better manage my hEDS and associated conditions, as well as navigate and access the healthcare support I need.

    As someone living with hEDS and complex co-occurring conditions, I especially value the depth, compassion, and... more

    Apple Podcasts
    5
    Sarah Clark.
    United Kingdom6 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The show is described as a reliable resource for patients and clinicians alike, with strong community support.
Listeners praise practical tips for navigating complex care and multidisciplinary teams.
The host delivers clear, evidence-based guidance with empathy and patient voice at the center.
Guests are consistently experts, adding credibility and actionable insights for bendy communities.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Sickfluencers & Cyberchondria on Social Media | Drs. Ina Stephens & Dacre Knight | Ep 221
Q: What suggestions do you have for people to use online tools and AI in the best possible way?
Ina Stephens recommends recognizing that symptoms involve real physiological responses and learning ways to calm those responses. The conversation also advises checking AI and online information against multiple reliable sources, consulting healthcare professionals, and monitoring whether media use is empowering or increasing fear.
Sickfluencers & Cyberchondria on Social Media | Drs. Ina Stephens & Dacre Knight | Ep 221
Q: What are your thoughts about how clinicians should address a patient who says they think they have EDS because they read about it online or heard someone else's story?
Dacre Knight says the source of a patient's information should not determine whether their concerns merit evaluation. If suffering or questions affect daily life, clinicians should listen, assess the patient, and provide answers rather than dismissing how they learned about a condition.
Hormones, Histamine, and Hypermobility with Dr. Tracy Shevell | Ep 220
Q: If somebody has a lot of symptoms, how do they present them without overwhelming a clinician? And also, when do you know when it's time to move on?
Shevell recommends prioritizing symptoms by impact, grouping related concerns, and bringing a concise list. Consider changing doctors if appointments leave you feeling belittled, the doctor is unwilling to consider referrals or second opinions, or they dismiss your concerns outright.
Hormones, Histamine, and Hypermobility with Dr. Tracy Shevell | Ep 220
Q: So what do you think should happen when the tests come back normal?
Shevell suggests asking what the normal tests rule out and what other evaluations could help explain persistent symptoms, since normal results do not rule out every possible cause.
Infections, Vaccines, and GLP-1s for Hypermobility with Dr. Ina Stephens | Ep 219
Q: How should people think about flu and COVID vaccines, and what can they do about post-vaccine symptoms?
Stephens recommends vaccination for influenza and shingles, while advising against another COVID booster after a severe, persistent worsening of symptoms. She suggests planning around possible short-lived reactions and using acetaminophen rather than NSAIDs for fever or pain, because NSAIDs may blunt the vaccine response.

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Frequently Asked Questions About Bendy Bodies

What is Bendy Bodies about and what kind of topics does it cover?

The show centers on hypermobility and connective tissue disorders, especially EDS/HSD, with clinicians, researchers, and patient voices unpacking practical management, diagnostics, therapies, and advocacy. Episodes frequently cover multidisciplinary care, movement, symptom management, and navigating healthcare systems, all while highlighting patient experiences and lived realities. A notable strength is the blend of clinical expertise with patient perspective, offering actionable tips for care teams, as well as robust resources for listeners. The format often includes Q&A, expert interviews, and discussions of latest research, making it a valuable resource for patients, caregivers, and professionals seeking evidence-based, empathetic guidan... more

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How many episodes of Bendy Bodies are there?

Bendy Bodies launched 7 years ago and published 226 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Bendy Bodies?

Recent guests on Bendy Bodies include:

1. Dacre Knight
2. Ina Stephens
3. Tracy Shevell
4. Dr. Kathleen King
5. Dr. Ina Stephens
6. Dr. Sarah Cohen Solomon
7. Dr. William Ericson
8. Michael Turken

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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