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Artwork for Substantial Matters: Life & Science of Parkinson’s

Substantial Matters: Life & Science of Parkinson’s

Parkinson’s Foundation
Parkinson's Disease
Clinical Trials
Gene Therapy
Enfermedad De Parkinson
Alpha-Synuclein
Diagnosis
Independence
Caregiving
Health Disparities
Black Community
Carbidopa-Levodopa
Dopamine
Movement Disorders
Parkinson's
Genetic Testing
Living Alone
Cultural Competency In Healthcare
Neurotrophic Factors
Biomarkers
Neurodegenerative Diseases

How can people with Parkinson's live a better life today? Join the Parkinson's Foundation as we highlight the treatments and techniques that can help all people affected by Parkinson’s live a better life today, as well as the research that can bring a better tomorrow. View more information on our episodes by visiting parkinson.org/Podcast. Share your comments and thoughts at parkinson.org/Feedback... more

PublishesMonthlyEpisodes100Founded8 years ago
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Health & FitnessEducation

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Artwork for Substantial Matters: Life & Science of Parkinson’s

Latest Episodes

Our Parkinson’s Foundation Ambassadors are the backbone of our outreach, bringing awareness about Parkinson’s disease (PD) directly into local communities. From leading community walks, to staffing tables at resource fairs, to starting meaningful con... more

Allied health professionals are a group of healthcare providers whose role and expertise complement the work of physicians. They include specialists such as physical and occupational therapists, speech-language pathologists, nutritionists, and many m... more

People with Parkinson’s disease (PD) may hear, whether through word of mouth or the internet, about herbs or supplements that claim to ease PD symptoms. It’s important to recognize that nutritional supplements are not federally regulated, and there i... more

Medical appointments can feel overwhelming – there may be many questions on your mind and not enough time to address everything with your doctor. Preparing a list of questions and concerns ahead of time can help you focus on what matters most to you ... more

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Recent Guests

Dr. Angela Hill
Pharmacist at the University of South Florida
Tenagia College of Pharmacy
Episode: What to Know Before Taking Nutritional Supplements for Parkinson’s
Dr. Taylor Rush
Health psychologist at the Cleveland Clinic specializing in Parkinson's care
Cleveland Clinic
Episode: Make Every Minute Count: Optimizing Your Parkinson’s Doctor Visits
Dr. Daniel Martínez Ramírez
Neurology specialist in movement disorders
Not explicitly mentioned
Episode: ¡EN ESPAÑOL! Paso a paso: encontrar el equilibrio con Parkinson
Lauren Zelouf
Social Worker at Penn Medicine's Parkinson's Disease & Movement Disorders Center
Penn Medicine
Episode: Understanding Depression, Anxiety, and Apathy
Susan Englander
PD Solo Group
Episode: Maintaining Independence When Living Alone with Parkinson’s
Fran Chernowsky
PD Solo Group
Episode: Maintaining Independence When Living Alone with Parkinson’s
Elena Godfrey
Miembro del equipo de la línea de ayuda de la Parkinson's Foundation
Parkinson's Foundation
Episode: ¡EN ESPAÑOL! Consejos prácticos y recursos para vivir bien con Parkinson
Adolfo Diaz
Miembro del equipo de la línea de ayuda de la Parkinson's Foundation
Parkinson's Foundation
Episode: ¡EN ESPAÑOL! Consejos prácticos y recursos para vivir bien con Parkinson
Melissa Grassia Chisholm
Licensed speech pathologist and voice swallow airway expert
The Voice Rehab
Episode: Allied Health Spotlight: The Challenges of Speech and Swallowing Issues

Hosts

Dan Keller
Host of Substantial Matters: Life and Science of Parkinson's
René Sanchez Mesa
Host for the Spanish episodes

Reviews

4.3 out of 5 stars from 172 ratings
  • 85 year old mother with PD

    I really appreciate the content here, it’s well presented and seems well researched, yet not lobbied.

    My 85 year old mother has been living with the diagnosis for nearly 12 years now, and I love the fact that I can not only understand in part it’s progression but it’s treatment as well, in no small part due to this podcast.

    It has also helped me communicate better with my siblings what is/is not happening with her symptoms and ensuing anxieties.

    Apple Podcasts
    5
    Jack the cleaner
    United States2 years ago
  • Getting away from Parkinson’s

    I enjoyed the positivity that the panelists exuded in their recollection of daily life with PD without feeling its burden ! As a happy Mom of 2 loving adult children, wife, researcher, nutritionist, avid tennis player, my life was interrupted by YOPD 12 years ago but instead of wallowing in my sorrow, I chose to accept the affliction as I would accept letting an annoying neighbor live with me for the rest of my life! I rather adjust to my new condition than fight it as one of your panelists all... more

    Apple Podcasts
    5
    Caring Faye
    United States3 years ago
  • Grouchy PD husband

    Thank you for your very informative podcast. My husband was diagnosed 5 years ago. His mother also had Parkinsons but it was a very mild case. My question is this: Are mood changes common with this disease? My sweet, loving husband has turned into a grouchy complainer. I can’t seem to do anything right in his opinion. I look forward to your answer.

    Apple Podcasts
    5
    Becky from Plano
    United States5 years ago
  • Perspective

    A wonderful way to get a diverse perspective and info on the many different facets of living with PD. or loving someone with PD.

    Apple Podcasts
    5
    Aspiehler
    United States6 years ago
  • Helpful!

    Great job keeping us informed!

    Apple Podcasts
    5
    BambiLashae
    United States6 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The podcast fosters a sense of community and support, helping to break down the isolation often experienced by caregivers and those diagnosed with Parkinson's.
It is appreciated for its focus on practical advice and strategies for navigating the challenges associated with Parkinson's disease, delivering hope and empowerment to its audience.
Listeners find the content well-presented and informative, providing valuable insights into living with Parkinson's disease.
Some viewers emphasize the emotional resonance of the content, relating personal experiences that are mirrored in the discussions of guests and hosts.

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Talking Points

Recent interactions between the hosts and their guests.

Understanding Depression, Anxiety, and Apathy
Q: Can you share some resources to help care partners and family members, essentially navigate their loved one's mental health challenges, and also look out for themselves?
Social workers can facilitate support groups and provide valuable mental health resources. They can guide care partners on accessing help and managing their own needs.
Understanding Depression, Anxiety, and Apathy
Q: What kind of practical steps can care partners or family members take when they notice these sorts of symptoms?
It's important to ask questions to understand what's going on and educate loved ones about common symptoms that can be treated, potentially discussing with a doctor for medications or counseling.
Understanding Depression, Anxiety, and Apathy
Q: Can you describe how depression, anxiety and apathy might look in a person with Parkinson's and give me some examples?
Depression may look like persistent sadness or a low mood, and can include changes in sleep and appetite. Anxiety might look like feeling nervous and can manifest physically, worsening symptoms like tremors. Apathy is characterized by a lack of motivation, not sadness or depression.
¡EN ESPAÑOL! Consejos prácticos y recursos para vivir bien con Parkinson
Q: ¿Se recomienda tomar segundas opiniones?
Sí, es muy común buscar segundas opiniones debido a la variabilidad de los síntomas en la enfermedad de Parkinson y la individualización de cada tratamiento.
¡EN ESPAÑOL! Consejos prácticos y recursos para vivir bien con Parkinson
Q: ¿Cuáles son los recursos que más comparten cuando la gente llama a esta línea de ayuda?
La línea de ayuda ofrece información sobre síntomas, tratamientos y busca conectar a los pacientes con especialistas en sus áreas.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

Focuses on the experiences and challenges of individuals dealing with Parkinson's disease, providing valuable support and insights for both patients and caregivers. Topics commonly discussed include mental health issues such as depression and anxiety, the role of nutritional supplements, strategies for effective doctor visits, and techniques for maintaining independence while managing the disease. The podcast also explores community engagement through volunteering and shares practical resources designed to enhance quality of life for those affected by Parkinson's. Unique to this series is the inclusion of bilingual content, expanding accessibility to a wider audience.

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this podcast launched 8 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Dr. Angela Hill
2. Dr. Taylor Rush
3. Dr. Daniel Martínez Ramírez
4. Lauren Zelouf
5. Susan Englander
6. Fran Chernowsky
7. Elena Godfrey
8. Adolfo Diaz

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