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Artwork for The Secret Life of Parkinson's

The Secret Life of Parkinson's

Jessica Krauser
Parkinson's Disease
Deep Brain Stimulation
Exercise
Mental Health
Parkinson's
Advocacy
Support Groups
Clinical Trials
Gut Health
Community Support
Dyskinesia
YOPD Con
Medication Management
Dystonia
Nutrition
Carbidopa-Levodopa
Physical Therapy
Michael J. Fox Foundation
Neurology
Young Onset Parkinson's

The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ... more

PublishesTwice weeklyEpisodes181Founded4 years ago
Number of ListenersCategory
Health & Fitness

Listen to this Podcast

Artwork for The Secret Life of Parkinson's

Latest Episodes

David Loud spent more than two decades conducting some of Broadway's biggest productions when Parkinson's began affecting the very abilities his career depended on.

In this episode, David shares the early signs he couldn't ignore, the emotional toll... more

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Why do two people with Parkinson's experience the disease so differently?

In this episode, we sit down with researchers Patrik Verstreken and Natalie Kaempf to explore groundbreaking work that may help answer that question. Using advanced biology, b... more

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In this episode, we explore the inspiring work of Pass to Pass, an organization that empowers people with Parkinson's through outdoor hiking adventures. Learn about trip planning, safety, gear, and how outdoor activities can boost confidence and well... more

YouTube

This BONUS episode highlights my time at WPC 2026 at the Comfort Linen booth!

Last year, episode #108, we had Nancy McGovern on the podcast, and this year, I was able to meet her in person at the World Parkinson's Congress 2026!

She is the creator... more

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Recent Guests

Peter Figer
Parkinson's patient sharing his journey and insights
Individual
Episode: Parkinson’s Isn’t What I Thought It Would Be
Dr. Millhon
Interventional cardiologist from Ohio Health
Ohio Health
Episode: Could Improved Circulation Support Daily Life?
Kristin Norderval
Musician and researcher developing an expanded vocal improvising instrument
Independent artist/Research collaborator
Episode: What Singing Is Teaching Us About Parkinson’s | Kristin Norderval
George Ackerman
Advocate for Parkinson's; has a parent with Parkinson's
Parkinson's advocacy community
Episode: Why Parkinson’s Patients Must Speak Up (And How to Start)
Margaret Preston
Advocate; background in policy and public affairs; parent with Parkinson's
Parkinson's advocacy and policy initiatives
Episode: Why Parkinson’s Patients Must Speak Up (And How to Start)
Gary Gosselin
Parkinson's patient and advocate
Independent advocate
Episode: Perseverance with Parkinson’s: Gary Gosselin’s Story
Dean Dahl
Guest with recent Parkinson's diagnosis
Episode: Early Parkinson’s Diagnosis: A Journey from Shock to Living Proactively
Taryn Rapp
Daughter of Jeff Smith, member at PD Next Steps
PD Next Steps / PPMI participant
Episode: Her Dad Has Parkinson’s — Here’s Why She Got Genetic Testing
Dr. Roy
Neurologist specializing in sleep medicine
Ohio Sleep Medicine Institute
Episode: #170: Sleep Apnea & Parkinson’s: What You Need to Know

Hosts

Jessica Krauser
Host focusing on lived experience with Parkinson's, advocacy, and community building.
Brian Baker
Co-host sharing practical insights, personal experiences, and guest perspectives.

Reviews

4.5 out of 5 stars from 119 ratings
  • The Community before the Community

    I was diagnosed with young onset PD in May 2025 just before I turned 43. My wife and I have 5 kids (ages 9-19) and I work as a pastor. When I got the diagnosis, rather than the common response of tears, I felt numb about it for months. I had been experiencing symptoms for a couple years and didn’t feel any different symptoms-wise, I was still doing all the same things, and was just…numb.

    I received an incredible gift from my church where from mid-November 2025 through mid-January 2026, I was gr... more

    Apple Podcasts
    5
    andrewtgates
    United States4 months ago
  • Thankful Heart

    As I sit here on Thanksgiving night, taking stock of what I have in my life to be thankful for, especially since learning about my possible YOPD diagnosis, I am so thankful and truly grateful I found this podcast.

    Through this show I was able to make a connection with someone 40 miles away from me that has YOPD. And through THAT connection, met someone else (also a listener of the show) with YOPD and actually lives in my town and goes to my same church I do. As you know, finding someone li... more

    Apple Podcasts
    5
    brianprkr850
    United States7 months ago
  • Amazing show for YOPD

    Thank you team especially Jessica and Brian for giving up your time to educate people on Parkinson and share your own experiences. Your guests are equally valuable. I was diagnosed in August 2025 and have listened to all your podcasts and feel much more informed of my diagnosis. Thank you!

    Apple Podcasts
    5
    Goldilocks1974
    Australia8 months ago
  • Wonderful podcast

    I am a man of 51 years of age and I have PD. This podcast is a refreshing way of looking and living life with PD. I am very thankful for the two of them for everything they share.

    Apple Podcasts
    5
    Todd747
    United Statesa year ago
  • Insightful and enjoyable Parkinson’s conversations with fellow PD travelers.

    I am both a physician and a person with Parkinson’s. I listen to about a half dozen different Parkinson’s podcasts on a regular basis. I always look forward to tapping into Jessica and Brian, like they’re at my dining room table and we’re all allowed to ask the questions we really want to ask. Their delivery is unstrained, and feels like it is spoken with a smile.

    Thank you to the team at The Secret Life of Parkinson’s

    Apple Podcasts
    5
    Dr Maurer
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The show is appreciated for its supportive community and actionable advice, though a few episodes have been critiqued for pacing or delivery.
Many listeners praise the hosts' empathy and practical guidance.
Listeners value the authentic, personal stories from patients and caregivers.

Talking Points

Recent interactions between the hosts and their guests.

The Parkinson's Medication Side Effect That Changed Everything
Q: When did your wife get involved and what was that turning point?
Her involvement increased after a dangerous financial episode; she observed changes and helped push for medical guidance to address the compulsions.
The Parkinson's Medication Side Effect That Changed Everything
Q: What medications did you start on, and how did they affect you before you noticed the side effects?
I started with Ropinirole, then Primapexil, and later a strong shift to Cinemate; the side effects began subtly but escalated into compulsive behaviors.
The Parkinson's Medication Side Effect That Changed Everything
Q: How old were you when you were diagnosed, and what led you to seek help?
I realized a change in my running and general motor signs; after a conversation with my wife about trials for younger-onset patients, I pursued an evaluation and received the diagnosis.
Don’t Rush This After a Parkinson’s Diagnosis (But Don’t Ignore It Either)
Q: What should someone do first after a Parkinson's diagnosis regarding legal affairs?
Take time to identify what decisions are most important, consult a lawyer only as needed, and involve a financial advisor to understand tax and asset implications before rushing to set up documents.
Perseverance with Parkinson’s: Gary Gosselin’s Story
Q: What role has self-advocacy played in your journey?
He emphasizes being actively involved with movement disorder specialists, listening to one's own needs, and using advocacy to connect with clinicians, researchers, and other patients to improve quality of life.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
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Frequently Asked Questions About The Secret Life of Parkinson's

What is The Secret Life of Parkinson's about and what kind of topics does it cover?

The show features candid conversations and interviews with people living with Parkinson's, caregivers, clinicians, and advocates, focusing on everyday experiences, practical strategies, and personal journeys. Episodes highlight symptom management, exercise and activity, legal and financial planning, relationships, advocacy, and emerging therapies or devices. A notable strength is turning personal stories into actionable insights for listeners—whether it's managing meds, pursuing DBS or DBS-related considerations, or exploring wellness centers and community resources. The tone tends to be empathetic, encouraging, and informative, with a strong emphasis on community and practical support for people navigating Parkinson's in daily life.

Where can I find podcast stats for The Secret Life of Parkinson's?

Rephonic provides a wide range of podcast stats for The Secret Life of Parkinson's. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to The Secret Life of Parkinson's and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does The Secret Life of Parkinson's get?

Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for The Secret Life of Parkinson's, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.

What are the audience demographics for The Secret Life of Parkinson's?

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How many subscribers and views does The Secret Life of Parkinson's have?

To see how many followers or subscribers The Secret Life of Parkinson's has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to The Secret Life of Parkinson's?

These podcasts share a similar audience with The Secret Life of Parkinson's:

1. The Parkinson's Podcast
2. The Michael J. Fox Foundation Parkinson's Podcast
3. Movers and Shakers: a podcast about life with Parkinson's
4. The Parkinson's Experience podcast
5. Substantial Matters: Life & Science of Parkinson's

How many episodes of The Secret Life of Parkinson's are there?

The Secret Life of Parkinson's launched 4 years ago and published 181 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact The Secret Life of Parkinson's?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for The Secret Life of Parkinson's?

Rephonic pulls ratings and reviews for The Secret Life of Parkinson's from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

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How do I access podcast episode transcripts for The Secret Life of Parkinson's?

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What guests have appeared on The Secret Life of Parkinson's?

Recent guests on The Secret Life of Parkinson's include:

1. Peter Figer
2. Dr. Millhon
3. Kristin Norderval
4. George Ackerman
5. Margaret Preston
6. Gary Gosselin
7. Dean Dahl
8. Taryn Rapp

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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