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Down Syndrome Center Podcast

Kishore Vellody, MD
Down Syndrome
Sleep Apnea
Advocacy
World Down Syndrome Day
National Down Syndrome Congress
Children's Hospital Of Pittsburgh
Anesthesia
Disability Advocacy
Eye Care
Medicaid
John's Crazy Socks
Red Down Mexico
Keratoconus
Cataracts
Education
Healthcare Services
Mental Health
Social Enterprise
Children's Hospital Colorado
Pediatric Ophthalmology

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

PublishesTwice monthlyEpisodes100Founded13 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for Down Syndrome Center Podcast

Latest Episodes

There have been many recent changes to the U.S. dietary guidelines. Shannon Frizzell, the dietician for the Down Syndrome Center of Western Pennyslvania, joined the podcast to discuss the impact for people with Down syndrome.

If you would like to s... more

It is so difficult these days to tell the difference between evidence based science v. conjecture. Frequently, there are many claims that people can make that are not necessarily backed in scientific fact. The use of leucovorin to address symptoms in... more

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There have been many recent changes to the recommended vaccination schedule in the U.S. Friend of the podcast, Dr. Andrew Nowalk, returns to the podcast to talk about emerging infectious diseases as well as how these recent guideline changes may impa... more

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Dr. Thessa Hilgenkamp Associate Professor in Physical Therapy at the University of Nevada, Las Vegas, joined the podcast today to talk about the unique nature of exercise in people with Down syndrome.

RESOURCES ACSM Guidelines for Exercise Testing ... more

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Recent Guests

Lauren Gist
Developmental Behavioral Pediatrician
University of California San Diego; Down Syndrome Center
Episode: #224 - Leucovorin - What is it and is there a role in Down syndrome?
Robyn Filipink
Neurodevelopmental Disabilities Neurologist
Down Syndrome Center Pittsburgh
Episode: #224 - Leucovorin - What is it and is there a role in Down syndrome?
Dr. Andy Nowalk
Infectious disease specialist
Children's Hospital of Pittsburgh of UPMC
Episode: #223 - Updated Vaccination Guidelines - What Do They Mean for People with Ds?
Dr. Thessa Hilgenkamp
Researcher in exercise physiology and activity engagement for individuals with Down Syndrome
Exercise physiology and physical activity research (18+ years focusing on Down Syndrome)
Episode: #222 - Exercise in Down syndrome (With Dr. Thessa Hilgenkamp)
Maurice Belote
Specialist with extensive background in deafblindness; educator and university faculty
Former teacher/state project coordinator/university faculty
Episode: #221 - Central Auditory Processing Disorder (CAPD) and Cortical Visual Impairment (CVI) in Ds
Ilsa Willems
Senior Director of the CVI Center at Perkins; teacher of students with visual impairments
Perkins School for the Blind
Episode: #221 - Central Auditory Processing Disorder (CAPD) and Cortical Visual Impairment (CVI) in Ds
Jennifer Saenz
Family physician and parent of a child with Down syndrome and CVI
Physician and parent
Episode: #221 - Central Auditory Processing Disorder (CAPD) and Cortical Visual Impairment (CVI) in Ds
Kandi Pickard
CEO of the National Down Syndrome Society
National Down Syndrome Society
Episode: #220 - CARE Down Syndrome (CARE DS)
Kaye Baumgardner
A speech language pathologist and certified lactation counselor with 32 years of experience working with children in oral motor development and communication skills.
Episode: #219 - Drooling, Tongue Protrusion, and other Oral Motor Topics

Host

Dr. Kishore Vellody
Host and medical director focused on Down syndrome care, affiliated with the Down Syndrome Center of Western Pennsylvania (UPMC Children's Hospital of Pittsburgh).

Reviews

4.9 out of 5 stars from 91 ratings
  • So informative!

    I enjoy many DS podcasts but this is my favorite when it comes to getting useful information and learning new things. I really appreciate the upbeat tone of the host and guests paired with tangible, and research backed information.

    Apple Podcasts
    5
    rchellestein
    United States2 years ago
  • Thank you!

    It was great to hear the topic I requested addressed and get some more information about Hirschsprung’s disease out into the world. I really appreciate these professionals taking time to detail the nuances of so many associated conditions with such compassion and hope.

    Apple Podcasts
    5
    Tommy9753124680
    United States3 years ago
  • Wonderful resource

    I have a 20 year old daughter that has ds. She recently regressed and I listened to unexplained regression several times. Thanks for all the information, I look forward to listening and learning from you and your guests.

    Apple Podcasts
    5
    VECrown
    United States3 years ago
  • Thank you

    Thank you for todays program. I would like to nominate Vertical Harvest as an upcoming guest. The first one is in Jackson Hole WY and there is another one being built in Philly. This would be a discussion around employment for adults with different abilities.

    Apple Podcasts
    5
    marriedwithchildren86
    United States4 years ago
  • Thank you

    Thank you for todays program. Would you be able to bring a director of one of these college programs on to discuss what that looks like?

    Apple Podcasts
    5
    marriedwithchildren86
    United States4 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Patients and families praise the host and guests for honest, uplifting, research-backed guidance.
The show is seen as a reliable, hopeful resource for families navigating complex conditions and care systems.
Listeners value concise, practical medical information tailored to Down syndrome.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

#224 - Leucovorin - What is it and is there a role in Down syndrome?
Q: What should clinicians tell families considering leucovorin for autism with Down syndrome?
Clinicians should emphasize that there is no validated evidence supporting leucovorin for autism or Down syndrome alone, recommend evidence-based therapies (ABA, speech therapy), advise genetic evaluation to assess CFD, discuss potential risks and shortages, and advocate for enrollment in well-designed studies if considering experimental approaches.
#224 - Leucovorin - What is it and is there a role in Down syndrome?
Q: Is there data to show leucovorin is effective or safe in the long term for children with Down syndrome or autism?
There is not solid evidence to support effectiveness or long-term safety of leucovorin for Down syndrome or autism at this time; studies are small, methodologically diverse, and often lack sufficient power, and some key trials have issues such as being retracted. Flagged concerns include potential adverse effects and the need for careful, evidence-based use with proper monitoring.
#223 - Updated Vaccination Guidelines - What Do They Mean for People with Ds?
Q: Why emphasize vaccines like rotavirus and pneumococcal vaccines for kids with Down syndrome?
Children with Down syndrome have higher risks of severe outcomes from viral and bacterial infections; vaccines dramatically reduce hospitalizations and protect both the child and wider community, including adults around them.
#223 - Updated Vaccination Guidelines - What Do They Mean for People with Ds?
Q: Why continue to vaccinate against Hepatitis B at birth given low immediate risk?
Vaccination at birth prevents vertical transmission and protects infants who may be exposed; the risk exists even if not immediately apparent, and vaccines are highly effective at preventing chronic infection later in life.
#223 - Updated Vaccination Guidelines - What Do They Mean for People with Ds?
Q: What is Shared Decision Making and how does that apply to vaccines?
It's an ongoing, patient-centered approach where providers explain the importance of vaccines, discuss evolving recommendations, and help families make informed choices that best protect their child, rather than simply following a fixed timetable.

Audience Metrics

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Frequently Asked Questions About Down Syndrome Center Podcast

What is Down Syndrome Center Podcast about and what kind of topics does it cover?

A health- and medicine-focused show that provides practical, evidence-based information for caregivers and providers dealing with Down syndrome. Episodes span medical guidance (vaccinations, cardiology, ophthalmology, neuropsychology), developmental topics (CAPD/CVI, oral motor skills, exercise, speech), and system-level issues (adult care, healthcare navigation, advocacy). A notable strength is its emphasis on clinically grounded guidance, multidisciplinary care, and family perspectives, with guests drawn from pediatric and adult Down syndrome centers, universities, and advocacy organizations. The show often translates complex research into actionable tips for families and clinicians, making it useful for anyone seeking reliable, topic-spe... more

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How many episodes of Down Syndrome Center Podcast are there?

Down Syndrome Center Podcast launched 13 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Down Syndrome Center Podcast?

Recent guests on Down Syndrome Center Podcast include:

1. Lauren Gist
2. Robyn Filipink
3. Dr. Andy Nowalk
4. Dr. Thessa Hilgenkamp
5. Maurice Belote
6. Ilsa Willems
7. Jennifer Saenz
8. Kandi Pickard

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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