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Down Syndrome Center Podcast

Kishore Vellody, MD
Down Syndrome
Sleep Apnea
Advocacy
World Down Syndrome Day
National Down Syndrome Congress
Children's Hospital Of Pittsburgh
Anesthesia
Disability Advocacy
Eye Care
Medicaid
John's Crazy Socks
Red Down Mexico
Keratoconus
Cataracts
Education
Healthcare Services
Mental Health
Social Enterprise
Children's Hospital Colorado
Pediatric Ophthalmology

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

PublishesTwice monthlyEpisodes100Founded14 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for Down Syndrome Center Podcast

Latest Episodes

We were joined on the podcast by Dr. Jennifer Spiric who is a doctor of physical therapy working with the Mann Method Therapy Network. Today's topic was on balance issues in Down syndrome - how common are they and how can we help manage the issues. more

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As parents and caregivers for people with Down syndrome, it can be difficult to know how to interpret research studies. How can we determine if an individual study is something that our loved one should participate in? We are joined on the podcast wi... more

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Health is more than just medical diagnoses and lab tests. Dr. Stephanie Santoro joined the podcast today to discuss a new health survey that her team created to assess the health of people with Down syndrome. To participate in this online survey, go ... more

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Physical therapists Ginny Paleg, Roslyn Livingstone, and Helen Milligan joined the podcast to talk about their approach to physical therapy in younger children with Down syndrome. They drew upon the published review article that can be found here htt... more

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Recent Guests

Jennifer Spiric
Doctor of physical therapy and co-creator of GigiFit
Mann Method Therapy Network
Episode: #235 - Balance issues in Ds
Laura Cifra-Bean
General pediatrician, Medical Outreach Director of Down Syndrome Association of Northeast Ohio
Down Syndrome Association of Northeast Ohio
Episode: #234 - Understanding Research Studies
Nicole White
Assistant Professor at Cincinnati Children's
Cincinnati Children's
Episode: #234 - Understanding Research Studies
Stephanie Santoro
Clinical geneticist focusing on Down Syndrome
Clinical Geneticist, Down Syndrome Clinic
Episode: #233 - Survey Assessing Health
Ginny Paleg
Pediatric physical therapist and researcher
Physical therapy researcher focusing on hypotonia; associated with CAN Child/Canadian-based work
Episode: #232 - Approach to Physical Therapy in Younger Children with Ds
Ros Livingstone
Occupational therapist with a focus on assistive technology and mobility
Collaborator with Ginny Paleg on hypotonia and care pathways
Episode: #232 - Approach to Physical Therapy in Younger Children with Ds
Helen Milligan
Assistant professor of physical therapy; clinician and educator
Thomas Jefferson University; CHOP TrustMe21 team
Episode: #232 - Approach to Physical Therapy in Younger Children with Ds
Sarah Bookout
Speech-language pathologist with a focus on Down syndrome
SLP, teletherapy and clinical practice for teens and adults with Down syndrome
Episode: #231 - Role of Communication in Social Engagement
Jackie Ford
Cognitive neuroscientist focusing on memory and Down syndrome
Boston College (Learning and Memory Consortium)
Episode: #230 - Memory Retrieval in Down syndrome

Host

Kishore Vellody
Host of the show; Medical Director at the Down Syndrome Center of Western Pennsylvania.

Reviews

4.9 out of 5 stars from 92 ratings
  • So informative!

    I enjoy many DS podcasts but this is my favorite when it comes to getting useful information and learning new things. I really appreciate the upbeat tone of the host and guests paired with tangible, and research backed information.

    Apple Podcasts
    5
    rchellestein
    United States3 years ago
  • Thank you!

    It was great to hear the topic I requested addressed and get some more information about Hirschsprung’s disease out into the world. I really appreciate these professionals taking time to detail the nuances of so many associated conditions with such compassion and hope.

    Apple Podcasts
    5
    Tommy9753124680
    United States4 years ago
  • Wonderful resource

    I have a 20 year old daughter that has ds. She recently regressed and I listened to unexplained regression several times. Thanks for all the information, I look forward to listening and learning from you and your guests.

    Apple Podcasts
    5
    VECrown
    United States4 years ago
  • Thank you

    Thank you for todays program. I would like to nominate Vertical Harvest as an upcoming guest. The first one is in Jackson Hole WY and there is another one being built in Philly. This would be a discussion around employment for adults with different abilities.

    Apple Podcasts
    5
    marriedwithchildren86
    United States5 years ago
  • Thank you

    Thank you for todays program. Would you be able to bring a director of one of these college programs on to discuss what that looks like?

    Apple Podcasts
    5
    marriedwithchildren86
    United States5 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Audiences value breadth of topics, from research ethics to clinical care and caregiver support.
Listeners praise the show for its informative, research-backed guidance and upbeat host tone.
Guests are described as compassionate, knowledgeable, and practical in translating complex topics for families.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

#235 - Balance issues in Ds
Q: What can we do about balance?
Spiric recommends motivating practice around a desired activity and working on side-to-side, front-and-back and rotational control, along with anticipatory and reactive balance.
#235 - Balance issues in Ds
Q: What is balance? What does it mean?
Spiric describes balance as the body's ongoing calibration of where it is in space, drawing on vision, the vestibular system and proprioception.
#233 - Survey Assessing Health
Q: What is this new health measure about and what did your study find?
The measure is a holistic health index derived from seven subscales identified as most important for health in people with Down syndrome. The study shows how these areas relate to overall health and how a caregiver-reported or self-reported score can guide interventions.
#233 - Survey Assessing Health
Q: Tell us a little bit about who you are and why you were drawn to work with this population.
I am a clinical geneticist who focuses on Down syndrome across the lifespan, from prenatal through aging, and I was drawn to this population because of the meaningful impact of coordinated care and the opportunity to study how we can measure and improve health beyond traditional medical metrics.
#231 - Role of Communication in Social Engagement
Q: How do you approach dating and relationships with your clients, and what does a typical session look like?
She explains tailoring the dating conversation to the individual, using video modeling, role-play, and explicit rules to teach appropriate communication and safety.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
Gender Skew
Location
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Age Range
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Frequently Asked Questions About Down Syndrome Center Podcast

What is Down Syndrome Center Podcast about and what kind of topics does it cover?

The show concentrates on Down syndrome care, research, and advocacy, featuring clinicians, researchers, and policy experts who break down medical, educational, and everyday living topics. Recent episodes emphasize understanding research processes, holistic health measures, early intervention foundations, a life-span view of care (including adulthood), and practical strategies for families, clinicians, and educators. The format typically blends expert interviews with family-centered perspectives, often highlighting actionable guidance, patient advocacy, and pathways to participate in studies or access specialized resources. A notable strength is the breadth of multidisciplinary guests—from geneticists and therapists to policy advocates—provi... more

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Which podcasts are similar to Down Syndrome Center Podcast?

These podcasts share a similar audience with Down Syndrome Center Podcast:

1. The Lucky Few
2. The Lazy Genius Podcast
3. The Pour Over: Politically Neutral, Christ-First News
4. Java with Juli - Making Sense of God and Sex
5. The Mel Robbins Podcast

How many episodes of Down Syndrome Center Podcast are there?

Down Syndrome Center Podcast launched 14 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Down Syndrome Center Podcast?

Recent guests on Down Syndrome Center Podcast include:

1. Jennifer Spiric
2. Laura Cifra-Bean
3. Nicole White
4. Stephanie Santoro
5. Ginny Paleg
6. Ros Livingstone
7. Helen Milligan
8. Sarah Bookout

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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