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RARECast

RARECast
Gene Therapy
Duchenne Muscular Dystrophy
Genetic Testing
Genetic Counseling
Muscle Regeneration
Genethon
Satellos
AI In Healthcare
Dravet Syndrome
Muscle Progenitor Cells
Small Molecule Therapy
Igentify
Zolgensma
Rare Disease
Rare Diseases
Children's Mercy Research Institute
CTNNB1 Syndrome
Biotechnology
Genetic Condition
Reproductive Health

RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.

PublishesWeeklyEpisodes570Founded11 years ago
Number of ListenersCategory
Business

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Artwork for RARECast

Latest Episodes

When Nikki McIntosh’s son Miles was less than a year old, he was diagnosed with a form of the rare neuromuscular condition spinal muscular atrophy. Since then, she has needed to learn how to manage the complexities of her own life while managing Mile... more

Spinocerebellar ataxia is a group of inherited, heterogeneous neurodegenerative diseases affecting coordination, speech, and vision. There are currently no FDA approved therapies for the more than 50 known types of SCA​, but there is a growing pipeli... more

A recent report from the health research network and real-world data platform TriNetX argues that by aggregating electronic health records, billing claims, and registry data across hundreds of healthcare sites makes it possible to study rare diseases... more

Huntington’s disease is a rare, inherited neurodegenerative disorder caused by a type of genetic mutation known as a trinucleotide repeat expansion, which leads to the production of a toxic protein that causes progressive brain cell loss. Vico Therap... more

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Recent Guests

Nikki McIntosh
Founder of Rare Mamas and author of Rare Mamas, Empowering Strategies for Navigating Your Child's Rare Disease
Rare Mamas
Episode: Navigating Your Child’s Rare Disease
Andrew Rosen
CEO of the National Ataxia Foundation
National Ataxia Foundation
Episode: Changing a Treatment Landscape by De-Risking Drug Development
Jeff Brown
Chief Scientific Officer of TriNetX
TriNetX
Episode: Transforming Real-World Patient Data into Breakthroughs
Prarthana Khanna
Vice President of Corporate Business Development and Strategy for Vico Therapeutics
Vico Therapeutics
Episode: Taking Aim at Huntington’s Disease and Other Repeat Expansion Disorders
Laura Russo
US Patient Engagement Lead for Pfizer
Pfizer
Episode: Improving Rare Disease Care through Partnerships
Kristin McKay
CEO of Project Alive
Project Alive
Episode: A Call on the FDA for Timely Reviews of Life-Saving Therapies for Rare Diseases
Amelie Lothe
Global Medical Community Head for Rare Epilepsies at UCB
UCB
Episode: The Need to Look Beyond Seizures When Treating DEEs
Todd Harris
CEO of Tyra Biosciences
Tyra Biosciences
Episode: Taking On Big Competitors with an Oral Therapy to Treat Achondroplasia
Paul Peter Tak
President and CEO of Candel Therapeutics
Candel Therapeutics
Episode: Going Viral to Fight Brain Cancer

Host

Daniel Levine
Award-winning journalist and host, focusing on rare diseases, healthcare innovation, and advocacy.

Reviews

4.8 out of 5 stars from 20 ratings
  • RareCast was one of the first and few podcasts that were around when I became a parent to a child with a rare disease. Daniel asks amazing questions and draws out all of the great points from his guests. This is one of my educational podcasts about all things rare disease and I have learned so much. Some of them are super over my head so I will listen to them again. Thanks for the great podcast, Daniel and Global Genes.

    Podchaser
    5
    Effie Parks
    4 years ago

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Talking Points

Recent interactions between the hosts and their guests.

Changing a Treatment Landscape by De-Risking Drug Development
Q: What is the research strategy? Where do you see the foundation being best able to leverage its investment?
The strategy is to make the ataxia space as attractive as possible to drug developers by investing in the basic understanding of disease mechanisms and providing necessary resources for research.
Changing a Treatment Landscape by De-Risking Drug Development
Q: How do they generally manifest themselves and progress?
Symptoms can start as early as teens or twenties, but most commonly in mid-adulthood, often beginning with balance issues that progress to speech impairment and swallowing difficulties.
Taking Aim at Huntington’s Disease and Other Repeat Expansion Disorders
Q: How do you ensure effective delivery of the therapy to patients?
The therapy is designed for intrathecal administration, allowing for direct delivery into the cerebrospinal fluid around the spinal cord.
Taking Aim at Huntington’s Disease and Other Repeat Expansion Disorders
Q: How does VO659 aim to address multiple repeat expansion disorders?
VO659 targets the expanded repeat rather than a single gene, potentially addressing multiple polyglutamine diseases including Huntington's and certain ataxias.
Taking Aim at Huntington’s Disease and Other Repeat Expansion Disorders
Q: What treatment options exist and what's the prognosis today for someone diagnosed with the condition?
Currently, there are no disease-modifying therapies, only treatments to manage symptoms.

Audience Metrics

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Frequently Asked Questions About RARECast

What is RARECast about and what kind of topics does it cover?

Focusing on the intersection of rare diseases with business, science, and policy, this podcast explores innovative approaches to treatment and advocacy within the healthcare system. It features discussions on the latest advancements in therapies, the challenges faced by patients and their families, and the implications of current research in addressing rare diseases. Episodes often include expert insights from industry leaders, researchers, and advocates, raising awareness about critical issues and advances in the treatment landscape for various rare conditions.

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Rephonic provides a wide range of podcast stats for RARECast. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to RARECast and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does RARECast get?

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What are the audience demographics for RARECast?

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How many subscribers and views does RARECast have?

To see how many followers or subscribers RARECast has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to RARECast?

These podcasts share a similar audience with RARECast:

1. The Readout Loud
2. The David Frum Show
3. The Ezra Klein Show
4. The Daily
5. Pod Save America

How many episodes of RARECast are there?

RARECast launched 11 years ago and published 570 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact RARECast?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for RARECast?

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What guests have appeared on RARECast?

Recent guests on RARECast include:

1. Nikki McIntosh
2. Andrew Rosen
3. Jeff Brown
4. Prarthana Khanna
5. Laura Russo
6. Kristin McKay
7. Amelie Lothe
8. Todd Harris

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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