Herding Hope: Zebra and TGCT Talk
TGCT SupportHerding Hope is a podcast all about finding connection, courage, and community in the world of TGCT and rare diseases. Hosted by Sydney and Virginia, each episode explores the shared experiences that unite rare disease patients alongside the unique journeys that make every story powerful. Through honest conversations with patients, clinicians, and advocates, Herding Hope shines a light on what it’... more
| Publishes | Twice monthly | Episodes | 9 | Founded | 3 months ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | MedicineHealth & Fitness | |||
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Latest Episodes
Meet Arthur, a patient living with diffuse TGCT of the knee and a passionate advocate as the Lead Representative of TGCT Support France. In this episode, he shares his journey and dives into the power of self-advocacy, showing how patients can take a... more
Meet Patrick, a patient living with diffuse TGCT of the elbow, who brings a thoughtful and honest perspective to this episode. He shares how he was diagnosed and how growing awareness around TGCT played a key role in his journey, even helping him cho... more
RaSheeda lives with diffuse TGCT of the knee and was diagnosed in the late 2000s, a time when treatment options were limited and the condition was often poorly understood. In 2021, she re-experienced symptoms and it was time to revisit this pesky dis... more
Dina, a young mother in the United Kingdom living with TGCT of the knee, shares her journey navigating a complex referral system and prolonged wait times that delayed access to specialist care. Ultimately seeking treatment abroad, Dina reflects on th... more
Demi is used to living life in the fast lane as a professional racecar driver but a diagnosis of localized TGCT in her knee forced her to face an unexpected detour. Navigating pain, uncertainty, and recovery, she pushed through a rapid return to the ... more
Alex is living with diffuse TGCT of the knee. She was diagnosed four years ago and has faced a two-stage surgery and systemic therapy. Refusing to let TGCT define her, Alex has made it her mission to make it “suck less” by pushing forward in her educ... more
Woody is a U.S. military veteran living with diffuse TGCT of the knee, diagnosed 6 years ago. After multiple surgeries and systemic therapies, his military career and family life has been reshaped by TGCT. His story is a powerful reflection on adapti... more
Sydney has diffuse TGCT of the hip, with six prior surgeries and one medication. Sydney describes being diagnosed at 17 years old and how it's shaped the last decade of her life. She describes how finding an expert changed her experience and key insi... more
Key Facts
Reviews
- TGCT Support Is the best!
The TGCT Support podcast is an absolute lifeline for this community. It delivers clear, compassionate, and trustworthy information about a disease that so many people have never even heard of—yet it impacts our lives every single day.
What makes this podcast so special is how it blends expert knowledge with real understanding of what patients are going through. Each episode helps break down complex medical information in a way that feels empowering instead of overwhelming, while also reminding ... more
Apple Podcasts5Tonanzith
United States3 months ago
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #176 |  Netherlands/Health & Fitness/Medicine |
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Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
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| Interests | Professions | Age Range | |||
| Household Income | Social Media Reach | ||||
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Herding Hope: Zebra and TGCT Talk launched 3 months ago and published 9 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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