
This podcast is a service of the Immune Deficiency Foundation — a nonprofit organization dedicated to improving the diagnosis, treatment, and quality of life of people diagnosed with primary immunodeficiency, or PI. "Bold Conversations" is a program that explores the harsh realities of health access in the United States. Hosted by Dr. Nicole Rochester. "Undiagnosed" is a narrative docuseries on th... more
| Publishes | Twice monthly | Episodes | 101 | Founded | 7 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Category | Health & Fitness | |||

TRANSCRIPT: primaryimmune.org/sites/default/files/TRANSCRIPT%20-%20Dermatological%20issues%20podcast.pdf Dr. Alexandra Freeman and Dr. Heidi H. Kong discuss dermatological manifestations of primary immunodeficiency. The information, terminolo... more
Transcript: primaryimmune.org/sites/default/files/TRANSCRIPT%20PI%20and%20oral%20health.pdf Click here to view a a PDF of this presentation: primaryimmune.org/sites/default/files/FOR%20WEB%20-%20Oral_Health_Arce.pdf Dr. Roger Arce pro... more
TRANSCRIPT: primaryimmune.org/sites/default/files/TRANSCRIPT.Undiagnosed.Reuben.pdf Reuben Johnson was diagnosed with chronic granulomatous disease, or CGD, at the age of ten. So much of his story takes place after his family had found some o... more
Transcript: primaryimmune.org/sites/default/files/Transcription%20-%20PI%20and%20cancer.pdf Dr. Charlotte Cunningham-Rundles provides a presentation on the link between primary immunodeficiency (PI) and cancer. The information, terminology, a... more
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Thank you thank you thank you! Telling the patient's story makes it all so human. We need IDF!
Super informative and well done!
I love getting any and all knowledge I can and especially up to date information. I don't enjoy reading articles. Hearing a conversation while I am working on things is such a great way to learn more about my CVID and educate myself on new research that is going on, how it effects us and gain more knowledge. Thanks for offering this!!
The IDF is a godsend to those of us with PI and I love that this podcast is geared towards young adults too! As someone with CVID, I am so grateful for them!Love the first episode and can’t wait for more to come!
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Focusing on the lived experiences of individuals affected by primary immunodeficiency (PI), the content highlights personal stories, expert insights, and crucial topics related to health access and equity. Listeners can expect to hear discussions on a variety of subjects including the intersection of chronic illness with social justice, workplace challenges for those with immune deficiencies, and the ongoing efforts to enhance health literacy in marginalized communities. Notably, the podcast also addresses pressing issues such as employment rights, food justice, and the emotional wellbeing of caregivers, while celebrating community initiatives that support individuals living with PI. This unique blend of personal narrative and expert analys... more
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Immune Deficiency Foundation launched 7 years ago and published 101 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on Immune Deficiency Foundation include:
1. Myles Temple
2. Dr. Jennifer Oliver
3. Holly Jones
4. Dr. Cynthia Baur
5. Jolan Walter
6. Rebecca Schultz
7. Alice Villarreal-Drennan
8. Jalisa Clark
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