Not So Rare Podcast
Taylor and LizIt is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Toge... more
| Publishes | Monthly | Episodes | 49 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Category | Health & Fitness | ||||
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Latest Episodes
This week Taylor and Liz revisit their Rare Disease and Family Planning mini-series. In this episode, Taylor shares some exciting updates on her journey. We also revisit Liz's story.
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Taylor and Liz use this week's episode to provide an update on what is new with their lives over the last several months.
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In this week's episode, Taylor and Liz discuss their own path in identifying ways to be advocates for their Rare Disease. When choosing ways to help your rare disease community, consider identifying advocacy areas that interest you and can have a bro... more
You have heard Taylor and Liz's story, this week we are excited to have THE Not So Rare Mom join the podcast. Taylor's mom joins to share her perspective as a Rare Disease Mom while supporting her daughter through her education and life milestones wh... more
Reviews
- So Excited I found this podcast!!
I’ve just recently found this podcast and have listened to a few episodes and I just can’t believe how many times I’ve nodded and said, “exactly” and “yes 100%” !!!
Bless you both SO much for talking about these struggles. (I’m living with a lymphatic malformation that I’ve had since birth) and I’ve been/felt so alone. Don’t get me wrong my family has been very loving and try to be as supportive as possible my husband cares and loves me deeply, but no one can join you in this truly unless the... more
Apple Podcasts4CGourneau2341
United States2 years ago - The best duo out there!
This podcast is really informative and helps other people who have these illnesses and similar to be able to relate, get help and advice. Love it
Apple Podcasts5DjRozzie
United Kingdom3 years ago - A mom…
My daughter has a rare disease. Sometimes it’s hard to distinguish what’s the disease or what’s outside of that. My daughter feels alone, she’s having more pain now that puberty has hit. I appreciate your willingness to be open about your life with GLA. My daughter has capillary venolymphatic malformations in her upper extremity. She wears a compression garment and takes sirolimus (since she was 3), but we aren’t seeing much help with sirolimus anymore. While I hate this disease, I do wish she h... more
Apple Podcasts5JMcLendon76United States3 years ago - Yes! So relatable!
I have two rare diseases and I know how hard it is to talk openly about it. I appreciate the vulnerability. I can relate to the hosts and look forward to new episodes to drop. Thanks for what you are doing for the Rare Disease community as a whole!!
Apple Podcasts5Healthier Version of ChrisUnited States4 years ago
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Which podcasts are similar to Not So Rare Podcast?
These podcasts share a similar audience with Not So Rare Podcast:
1. Dateline NBC
2. 48 Hours
How many episodes of Not So Rare Podcast are there?
Not So Rare Podcast launched 4 years ago and published 49 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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