Just Listen: Voices of PK Deficiency Podcast
BloodStream MediaJust Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Learn more about PK deficiency by vi... more
| Publishes | Infrequently | Episodes | 34 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Health & FitnessMedicine | |||
Listen to this Podcast
Latest Episodes
Join Dr. Rachael Grace as she interviews Dr. Eduard van Beers, a leading expert in rare anemia including Pyruvate Kinase (PK) deficiency. They discuss the clinical challenges, benefits, and complications associated with transfusions for PK deficiency... more
On this episode of Just Listen: Voices of PK Deficiency, host Dr. Rachel Grace interviews Dr. Andreas Glenthøj, a hematologist from Copenhagen University Hospital, about his journey into genetic red blood cell disorders and the latest international g... more
On this episode, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, discusses the Life Stage Model initiative with patient advocacy leaders, Tamara Scriver and Alejandra Watson. They delve into the work of the PKD Advocacy... more
On this episode of Just Listen: Voices of PK Deficiency, guest host Janie Davis (Director, Patient Advocacy at Agios) is joined by special guests Tamara Schryver, Jill Welle, and Alejandra Watson to discuss the impact and organization of the second i... more
Reviews
- Outstanding
So much good information. Loved the MythBusters episodes!!
Apple Podcasts5Mr. Gretzky99
United States3 years ago - Thanks for doing this!
It’s really a nice way to spread the voice of pkd!! Loving it
Apple Podcasts5enzovandijk
Netherlands3 years ago - Amplifying patients
This podcast is an easy listen, and I like hearing the experiences of patients and caregivers impacted by PK Deficiency. It’s also nice to hear from some of the medical people working on advancing treatments — getting to hear directly from them makes them human, to me, and helps me appreciate what they have to say.
Apple Podcasts5Hopscotch03United States4 years ago
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #249 |  Italy/Health & Fitness/Medicine |
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
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this podcast launched 4 years ago and published 34 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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