Dystonia Matters Podcast
DystoniaUKDystonia UK, the only national charity supporting people with dystonia is delighted to bring you the Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.
| Publishes | Infrequently | Episodes | 25 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Category | Health & Fitness | |||
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Latest Episodes
In this episode, Dayna speaks with Tom, who shares his honest and deeply personal experience of living with a rare form of dystonia called ProGene dyskinesia. Diagnosed at 18 after years of misdiagnoses and uncertainty, Tom reflects on the journey to... more
In this episode of the Dystonia Matters podcast, Dayna is joined by Josh-Jayy who shares the emotional and impactful story of his mum’s journey living with neck (cervical) dystonia.
Through Josh-Jayy's eyes, we hear how the condition has affected n... more
In our first episode of season five, Karen sits down with Dayna to share her story with warmth and humour. She talks about her journey living with dystonia, from being born with the condition due to a possible birth injury and facing a long road to d... more
After hearing about Lola's brilliant football stadium fundraiser, Dayna couldn't wait to chat to her for the last episode of season four. Lola talks about her grandad's experiences of living with dystonia and how this has affected her, as well as the... more
Key Facts
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Reviews
- Very good listening would recommend friend
Podcast is very good at listening to nice voices when you’ve got the right voice is very interesting to listen and learn you’ve got to have the right voice good information and brilliant to have people have actually got the condition to speak about their experiences rather than just from a textbook however it’s good to hear from the textbook sometimes through it also fantastic to be able to understand the condition when you’re not able to see pictures or read text and of course real voices don’t... more
Apple Podcasts5rat tap
United Kingdom5 years ago
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Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
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Dystonia Matters Podcast launched 5 years ago and published 25 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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