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Artwork for Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

St. Jude (SJCRH)
Clinical Trials
St. Jude Children's Research Hospital
Fertility Preservation
Brain Tumor
Hodgkin's Lymphoma
Sickle Cell Disease
Resilience
Sleep
Social Life
Survivorship
End-Of-Life Care
Greensboro, North Carolina
Social Media
Patient Family-Centered Care
Hospice Care
Quality Of Life
Pediatric Oncology
Egg Freezing
Pediatric Brain Tumor
Caregivers

A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourag... more

PublishesMonthlyEpisodes31Founded3 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for Caregivers SHARE, a St. Jude Podcast

Latest Episodes

Fertility preservation is not always the first thing a family thinks about during a serious illness. But fertility preservation can shape a patient’s future in important ways.

In this episode, Tekeima Townsend-Billups, MDiv, and Kari Bjornard, MD, t... more

When treatment ends, families might expect life to return to normal. But, while treatment may have an end date, the late effects of serious illness are less defined. This means life does not always go back to what it was before treatment started.

In... more

When a child is facing a serious illness, being asked to consider a clinical trial can feel overwhelming. This episode of Caregivers SHARE continues our 2-part series on clinical trials by focusing on the real questions, emotions, and decisions careg... more

Clinical trials are research studies that look at ways to improve care for serious illnesses. For many families, the terms “clinical trial” or “clinical research” may be unfamiliar or overwhelming. In this episode of Caregivers SHARE, listeners will ... more

When a child’s condition changes or they are nearing the end of life, caregivers face hard choices. It can help to focus on comfort, quality of life, and what matters most to the child.

In this episode, Tekeima Townsend‑Billups talks with parents Ta... more

Communicating with the care team can feel overwhelming, especially when your child is going through a serious illness and you are facing big decisions. In this episode, Tekeima Townsend-Billups talks with caregivers Tasha and Dean Ives, as well as pa... more

A healthy social life and relationships are important when going through cancer or another serious illness. In this episode, Clay Culp and Elyse Heidelberg talk with caregiver Polly Fulford and her college-aged son Taze about friendships and dating w... more

When a child is diagnosed with cancer or another serious illness, caregivers focus so much on their child’s needs that they may forget to care for themselves. Practicing self-compassion and seeking support are essential parts of the journey.

In this... more

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Recent Guests

Dr. Kari Bjornard
Fertility expert and solid tumor oncologist, Director of Preservation of Reproductive Health Program
St. Jude Children's Research Hospital
Episode: Fertility Preservation Decisions, Part 2
Keragan Casey
Nurse in emergency department and fertility journey participant
St. Jude Children's Research Hospital
Episode: Fertility Preservation Decisions, Part 2
Carla Wyatt
Parent of a child who survived leukemia and shared her family's journey
Caregiver, Brett's mother
Episode: Late Effects of Treatment
Jeanette Lavecchia
Social work manager and clinician in the Survivorship Clinic
St. Jude Children's Research Hospital
Episode: Late Effects of Treatment
Seth Karol
Leukemia lymphoma oncologist involved in pediatric trials
St. Jude Children's Research Hospital
Episode: What is a Clinical Trial?
Carina Richardson
Parent of a child on a clinical trial, caregiver perspective
Private individual (caregiver)
Episode: What is a Clinical Trial?
Mike McNeil
Pediatric oncologist and palliative care physician at St. Jude, lead global palliative care program
St. Jude Children's Research Hospital
Episode: Communicating with the Care Team During End-of-Life Care
Tasha Ives
Caregiver and mother describing Sydney's journey
Family of Sydney (patient)
Episode: Communicating with the Care Team During Treatment
Dean Ives
Caregiver and father describing Sydney's journey
Family of Sydney (patient)
Episode: Communicating with the Care Team During Treatment

Host

Clay Culp
Host of the podcast and a key organizer of caregiver-focused content

Talking Points

Recent interactions between the hosts and their guests.

The Importance of Sleep
Q: Why is sleep so important for a child who is ill?
Sleep supports physical and mental health, mood, learning, pain management, immune function, and overall recovery, and it also affects caregivers' well-being.
What Resilience Means
Q: How did the family's outlook on hope change during a critical moment, and what role did support play?
Hope became a disciplined, evolving practice that could bend with circumstances; support from loved ones and institutions helped sustain hope even when the situation looked dire.
Late Effects of Treatment
Q: What have been some of Brett's late effects and how have they shaped his day-to-day life?
Brett has vision loss, memory challenges from a brain injury, mobility issues, and low bone density; these have required long-term adaptations, ongoing monitoring, and a shift in goals and activities to maintain quality of life.
Late Effects of Treatment
Q: Can you explain the difference between side effects and late effects of treatment?
Side effects are usually immediate and temporary reactions to treatment, while late effects develop over time due to the illness and treatments, and they can be permanent or chronic.
Fertility Preservation Decisions
Q: What is fertility preservation 101 for you?
Fertility preservation involves evaluating the patient's clinical status and treatment plan, then presenting options such as sperm banking for post-pubertal males or ovarian stimulation and egg retrieval for post-pubertal females, with awareness of potential delays to treatment and the possibility of newer or experimental options.

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Frequently Asked Questions About Caregivers SHARE, a St. Jude Podcast

What is Caregivers SHARE, a St. Jude Podcast about and what kind of topics does it cover?

This program centers on families navigating pediatric illness, treatment decisions, and the surrounding healthcare system, with a strong emphasis on caregiver perspectives, family communication, and navigating clinical trials. Episodes frequently feature both caregivers and clinicians who discuss the practical and emotional challenges of enrollment in trials, coordinating care across institutions, and making tough care decisions in the face of uncertainty. A notable strength is the blend of personal storytelling from families with expert guidance from pediatric oncology clinicians and psychosocial professionals, offering concrete tips for asking questions, coordinating care, and balancing hope with realistic planning. The show stands out fo... more

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1. Good Hang with Amy Poehler

How many episodes of Caregivers SHARE, a St. Jude Podcast are there?

Caregivers SHARE, a St. Jude Podcast launched 3 years ago and published 31 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Caregivers SHARE, a St. Jude Podcast?

Recent guests on Caregivers SHARE, a St. Jude Podcast include:

1. Dr. Kari Bjornard
2. Keragan Casey
3. Carla Wyatt
4. Jeanette Lavecchia
5. Seth Karol
6. Carina Richardson
7. Mike McNeil
8. Tasha Ives

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