Rephonic
Artwork for Beyond Brain Tumours
Brain Tumour Foundation Of Canada
Brain Tumour
Robbie Watson
Hope
Caregiving
New York, United States
Ottawa, Canada
Covid-19 Pandemic
Steve Carty
Life After Cancer
Edmonton, Canada
Edmonton
Brain Tumours
MRI
Emma Garcia
Healthcare
Kay's Journey
Going For Hope
Toronto, Canada
Ann Hovey

Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Learn more about Brain Tumour Foundation of Canada’s resources, programs, and services for people affected by a brain tumour. Visit www.BrainTumo... more

PublishesTwice monthlyEpisodes26Founded3 years ago
Categories
Health & FitnessMedicine

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Artwork for Beyond Brain Tumours

Latest Episodes

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In episode 18, we’re joined by Emma Garcia, a young athlete whose life changed at fifteen when a concussion eventually led to a brain tumour diagnosis and four life‑saving surgeries. During this conversation, Emma shares her journ... more

Send us a message!

In episode 18, we’re joined by Emma Garcia, a young athlete whose life changed at fifteen when a concussion eventually led to a brain tumour diagnosis and four life‑saving surgeries. During this conversation, Emma shares her journ... more

Send us a message!

After a life-changing brain tumour diagnosis, Jedro Magtoto made a brave decision to stop living the life expected of him and start creating one that felt true. In this episode, he shares his journey through treatment, survivorshi... more

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In this episode of Beyond Brain Tumours, our host Ben Seewald, talks with renowned photographer Steve Carty about his extraordinary journey through a metastatic brain tumour, his experience with awake brain surgery, and his mindse... more

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In this episode of Beyond Brain Tumours, our host Ben Seewald, talks with renowned photographer Steve Carty about his extraordinary journey through a metastatic brain tumour, his experience with awake brain surgery, and his mindse... more

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In Episode 15, we’re joined by Meegan, a single mother, teacher, and survivor of a non-malignant pituitary macroadenoma and stroke. This is an emotional and heartfelt conversation as she shares her journey through diagnosis, treat... more

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In Episode 15, we’re joined by Meegan, a single mother, teacher, and survivor of a non-malignant pituitary macroadenoma and stroke. This is an emotional and heartfelt conversation as she shares her journey through diagnosis, treat... more

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In this heartfelt conversation, Matthew shares his journey as a brain tumour survivor and the profound ways in which it challenged his identify, routines, and mental health as a young adult. He talks about paving a way forward, sh... more

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Recent Guests

Emma Garcia
17-year-old high school student from Edmonton, Alberta
Pediatric Brain Tumour Survivor, Brainwave participant, Edmonton Walk Community Champion
Episode: “I was not expecting this today”: Navigating the unthinkable at 15 years old | Part 1
Jedro Magtoto
Filipino-Canadian, 10-year brain tumour survivor, motivational speaker, martial artist, comedian, and author
Episode: Cancer as a catalyst: Redefining life after a brain tumour diagnosis
Steve Carty
Professional photographer, brain tumour survivor
Self/ photographer
Episode: The limitless mindset: A story of resilience and radical positivity | Part 1
Meegan Campbell
Brain tumour survivor from St. Thomas, Ontario
Episode: Finding joy and purpose: Embracing life after change | Part 1
Matthew McKinnon
Two-time cancer survivor, professional speaker
Professional speaker
Episode: Redefining life after: A way forward through change, adversity and suffering | Part 1
Esther Jasmine
Caregiver, Ottawa-based volunteer coordinator for the 2025 Ottawa Brain Tumour Walk
Brain Tumour Foundation of Canada / Ottawa Brain Tumour Walk
Episode: A young-adult perspective from a caregiver, on community, and living after a brain tumour diagnosis | Part 1
Elman Mirzai
Brain tumour survivor, marketing consultant
Independent / Ottawa-based
Episode: A young-adult perspective from a caregiver, on community, and living after a brain tumour diagnosis | Part 1
Robbie Watson
Brain tumour survivor and student-athlete
None specified
Episode: Hope, family, and community: A SUPERKID’s journey of unshakeable strength and optimism | Part 2
Ann Hovey
Author, speaker, facilitator, coach; brain tumour survivor
Episode: Practicing hope: A conversation on courage, connection, and resilience | Part 2

Host

Ben Seewald
Host of Beyond Brain Tumours

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Talking Points

Recent interactions between the hosts and their guests.

“I was not expecting this today”: Navigating the unthinkable at 15 years old | Part 2
Q: So tell me a little bit about your post-operative life.
Emma describes how the post-op period was challenging but gradually improved, highlighting memory quirks, academic adjustments, and the importance of school supports and personal resilience.
Practicing hope: A conversation on courage, connection, and resilience | Part 2
Q: How did you overcome moments when you felt you were not being listened to by the healthcare team?
By recognizing the gatekeeper role of clinicians, choosing respectful, well-prepared ways to speak up, and pushing for open dialogue so concerns are heard without defensiveness, which often leads to more productive conversations.
Practicing hope: A conversation on courage, connection, and resilience | Part 2
Q: You mentioned the grand rounds where eight doctors attended. What was the core takeaway for those clinicians about parent partnership?
The core takeaway was that parents are the most critical partners if you're aiming for optimal results, and clinicians should see parents as essential team members, actively invited to participate in decision-making and problem-solving.
Practicing hope: A conversation on courage, connection, and resilience | Part 1
Q: So Ann, I read your incredible book and it really is terrific. What are the core strategies you used to protect and sustain hope during the toughest moments?
Ann outlines practical strategies from her book, including keeping connected with a supportive circle, prioritizing personal well-being, and applying specific mindset tools like the five-by-five rule and breathing exercises to shift from fear toward proactive action.
Redefining life after: A way forward through change, adversity and suffering | Part 1
Q: So even though we know how your story has ended, can you tell me a little bit about being 16 years old, the symptoms you experienced, and how you ended up getting diagnosed?
I was 16, in grade 11, the youngest of six, and I started experiencing double vision and nausea after a football practice. An initial sinusitis misdiagnosis led to seizures, an ambulance to BC Children's Hospital, and an emergency brain surgery that saved my life, followed by a second surgery to remove about 50% of the tumor, and then six rounds of chemo and 30 radiation sessions.

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Frequently Asked Questions About Beyond Brain Tumours

What is Beyond Brain Tumours about and what kind of topics does it cover?

This show centers on stories from brain tumour survivors, patients, and caregivers, with a strong emphasis on survivorship, treatment journeys, and practical support. Across episodes, guests share what it's like to navigate diagnosis, medical decisions, long-term health, and the emotional and logistical realities of life after brain tumours. The conversations frequently highlight the role of care teams, patient advocates, and community resources (notably a dedicated foundation and pediatric support programs) in shaping resilience, purpose, and recovery. A standout trait is the blend of personal storytelling with actionable insights for families, healthcare partners, and advocates, making it useful for listeners seeking perspective, coping s... more

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Which podcasts are similar to Beyond Brain Tumours?

These podcasts share a similar audience with Beyond Brain Tumours:

1. The Expert Witness from Uncover

How many episodes of Beyond Brain Tumours are there?

Beyond Brain Tumours launched 3 years ago and published 26 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Beyond Brain Tumours?

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What guests have appeared on Beyond Brain Tumours?

Recent guests on Beyond Brain Tumours include:

1. Emma Garcia
2. Jedro Magtoto
3. Steve Carty
4. Meegan Campbell
5. Matthew McKinnon
6. Esther Jasmine
7. Elman Mirzai
8. Robbie Watson

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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