The KCNA2 & Rare Epilepsy’s Podcast
kcna2epilepsyWelcome to KCNA2 & Rare Epilepsy Podcast, a podcast created for the people living this journey and the people working to understand it.
Each episode, hosted by Dr. Nancy Musarra, invites listeners into honest, generous, and sometimes vulnerable conversations with parents, researchers, clinicians, and board members to discuss the daily experiences of living with KCNA2, seizures, and other rare for... more
| Publishes | Weekly | Episodes | 6 | Founded | 3 months ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Kids & FamilyHealth & FitnessParentingMedicine | |||
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Latest Episodes
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy speaks with Michaela Lieber, a KCNA2 mom, board member, and Air Force spouse. Michaela shares her family’s journey raising her son Aaron, now 11, while navigating frequent military... more
In this episode, Nancy speaks with leaders from the Rare Epilepsy Network (REN) about what it truly takes to move rare epilepsy research forward.
She is joined by Eileen Miller, Director of REN and longtime parent advocate, and Karen Utley, Chair of... more
In this episode, Barbara Wolf shares her family’s journey with KCNA2-related epilepsy as the mother of Ella, now an adult living with the condition.
Barbara reflects on the earliest signs that something was not typical, including subtle blinking epi... more
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy speaks with Oriana Hornick, a longtime KCNA2 community member, KCNA2 Epilepsy Foundation board member, and research coordinator. Oriana is also the mother of Avery, now 9, who was ... more
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy Musarra is joined by two emergency room physicians, Dr. Katie Robottom and Dr. Rosetta Robottom, a mother-daughter team with decades of combined experience caring for patients with... more
The KCNA2 and Rare Epilepsy Podcast
If your child has seizures and a KCNA2 diagnosis, life can feel confusing, isolated and scary. The KCNA2 and Rare Epilepsy Podcast, hosted by Dr. Nancy Musarra, is a supportive, parent-informed show for parents, ca... more
Key Facts
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #149 |  Hong Kong/Health & Fitness/Medicine |
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Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
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| Interests | Professions | Age Range | |||
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The KCNA2 & Rare Epilepsy’s Podcast launched 3 months ago and published 6 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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