Rarely Heard: Hunter Syndrome
Takeda PharmaceuticalsRarely Heard is about Hunter syndrome, a rare and life-changing genetic condition and is intended for families, patients, and anyone interested in learning about the disease.This podcast is initiated and funded by Takeda Pharmaceuticals and is intended for an international audience outside the USA and UK. The information shared is for educational purposes and does not constitute clinical recommend... more
| Publishes | Daily | Episodes | 10 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Categories | MedicineHealth & Fitness | ||||
Listen to this Podcast
Latest Episodes
Hunter syndrome is a rare and life-changing disease. In this introductory episode, we provide a basic overview of Hunter syndrome, its cause and genetic inheritance. We also go over its common signs and symptoms, as well as the journey to a diagnosis... more
Hunter syndrome has a wide range of clinical manifestations and requires a complex treatment and management strategy. This episode details the multiorgan nature of the disease, potential management options, and how they can reduce the likelihood of c... more
Parents and caregivers have to deal with many challenges in their daily lives and complicated emotions that affect their well-being. This episode addresses the psychological aspects of caring for a child with a complex and chronic disease. We provide... more
The clinical symptoms of Hunter syndrome appear across a diverse spectrum. In this episode, we are joined by Dr Barbara Burton, a specialist in the disease. Dr Burton discusses how Hunter syndrome has impacted patients in her clinical practice and th... more
Managing Hunter syndrome is a complex and life-long process, with many specialists involved in caring for patients. In the second part of our interview with Dr Barbara Burton, we take a deeper look at the importance of a coordinated care approach in ... more
Living with Hunter syndrome is overwhelming, but there are many sources of support available. This episode features Bob Stevens (UK MPS Society) and Terri Klein (US National MPS Society), who are very familiar with the challenges that families face. ... more
The diagnosis of Hunter syndrome compels families to re-evaluate their priorities and rethink their future plans. Bob Stevens joins us again, but this time from a parent’s perspective, to share his family’s journey as his two adult sons navigate life... more
The neuronopathic form of Hunter syndrome can have a devastating effect on families. In this episode, we are joined by Avram Joseph, whose son Kalel is living with this severe form of the disease. Avram provides us with a heartwarming account of how ... more
Key Facts
Top Medicine Podcasts
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Gender Skew | Location | Interests | |||
|---|---|---|---|---|---|
| Professions | Age Range | Household Income | |||
| Social Media Reach | |||||
Frequently Asked Questions About Rarely Heard: Hunter Syndrome
Where can I find podcast stats for Rarely Heard: Hunter Syndrome?
Rephonic provides a wide range of podcast stats for Rarely Heard: Hunter Syndrome. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Rarely Heard: Hunter Syndrome and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does Rarely Heard: Hunter Syndrome get?
Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for Rarely Heard: Hunter Syndrome, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.
What are the audience demographics for Rarely Heard: Hunter Syndrome?
Rephonic provides comprehensive predictive audience data for Rarely Heard: Hunter Syndrome, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.
How many subscribers and views does Rarely Heard: Hunter Syndrome have?
To see how many followers or subscribers Rarely Heard: Hunter Syndrome has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
How many episodes of Rarely Heard: Hunter Syndrome are there?
Rarely Heard: Hunter Syndrome launched 4 years ago and published 10 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Rarely Heard: Hunter Syndrome?
Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.
Where can I see ratings and reviews for Rarely Heard: Hunter Syndrome?
Rephonic pulls ratings and reviews for Rarely Heard: Hunter Syndrome from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.
View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.
How do I access podcast episode transcripts for Rarely Heard: Hunter Syndrome?
Rephonic provides full transcripts for episodes of Rarely Heard: Hunter Syndrome. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.