My Myasthenia
Jesse MorganA podcast to share our stories, journeys, and discoveries regarding the crazy disease Myasthenia Gravis. Each week we will talk with a different guest about their experience with the disease, and share insights on how to best cope with the condition. We will laugh together, sometimes cry together, but most importantly learn together.
| Publishes | Twice monthly | Episodes | 12 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Category | Health & Fitness | ||||
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Latest Episodes
In this episode, we delve into the effects of extreme heat on our bodies and explore effective measures to minimize its impact. Discover the science behind staying cool and learn what strategies actually work in combating scorching temperatures.
On todays episode, we discuss Sheila’s process of discovering she had MG, how she passed her antibodies to her newborn daughter, and more!
Check out Sheila's band here! sheiladeemusic.com/ Spotify: Sheila Dee
Sign up for the Make Your Ye... more
Today's episode of My Myasthenia is all about IVIG – what it is, what to expect from your first injection, and more. We'll be discussing the basics of IVIG and how it can help those with myasthenia gravis.
And don't forget to follow us on Instagram... more
On today's episode, we learn about healthy and unhealthy ways to cope with stressful situations, and how to identify ways to improve those skills. Thank you to everyone who has stuck around and waited for this episode. I took a much-needed break and ... more
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Reviews
- Authentic - straight from a zebra’s mouth! Excellent!
Really good to hear a podcast about MG, but not only that… A podcast from a patient. Patient experience is under-rated in increasing understanding of all conditions. Looking at a criteria isn’t sufficient. This condition needs to be on physician’s radar a lot more.
Please please please keep doing what you’re doing… or restart if you’ve stopped.
And request for more patient experiences because as you said it can present in many ways!
Like to hear from different age groups, genders and peopl... more
Apple Podcasts5SunshineLau
United Kingdom3 years ago Just started listening to your podcast. My symptoms started 8/5/17 and it took more than 3 years to get diagnosed. I hear a lot of stories about people who had symptoms start light, but mine was like a light switch. One day I went to bed feeling normal and the next morning I struggled to breathe, was severely dizzy, couldn’t keep my eyes open, couldn’t stay awake, could hardly do anything. I would have better days but it was pretty much like that until I got on mestinon. So many doctors, family,... more
Audible5Nathalie Payton
United States3 years ago- Glad to hear someone talking about it
Just started listening to your podcast. My symptoms started 8/5/17 and it took more than 3 years to get diagnosed. I hear a lot of stories about people who had symptoms start light, but mine was like a light switch. One day I went to bed feeling normal and the next morning I struggled to breathe, was severely dizzy, couldn’t keep my eyes open, couldn’t stay awake, could hardly do anything. I would have better days but it was pretty much like that until I got on mestinon. So many doctors, family,... more
Audible5Nathalie PaytonUnited States3 years ago - Thank You
i just discovered you this morning on Instagram following Lady Myasthenia. you are the first person i’ve “met” to experience what i went through in 2011. my tymoma was 10cm. the procedure to remove it was a sternotomy. my MG has always been mild, thank the Lord, but this past December i had surgery because the thymoma metastasize to my lower left lung. due to surgery my MG symptoms exacerbated… long story short i just returned to work mid Aug but part time. anyway, it is great to find you, and ... more
Apple Podcasts5LPCMUS04United States4 years ago - Great podcast
Hi! I don’t have MG but your podcast was recommended by a friend. I’m disabled and was listening to your episode on therapy and a lot of the advice and guidance applied to me too. Thank you for sharing.
Apple Podcasts5Good4u302United States4 years ago
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My Myasthenia launched 4 years ago and published 12 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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