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My Journey with Epilepsy Tasmania

Sam Ikin

My Journey is a collection of honest, confronting and inspiring reflections on a condition that is often hidden. Listen to twelve Tasmanians share their journey with epilepsy, in their own words, to raise awareness and understanding of a condition that affects 1 in 25 Australians.

PublishesDailyEpisodes13Founded6 years ago
Categories
Society & CultureHealth & Fitness

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Artwork for My Journey with Epilepsy Tasmania

Latest Episodes

Social Distancing measures in the face of the COVID-19 threat forced us to cancel our public Purple Day events. Instead, we did a live version of My Journey, which we streamed on social media. Our guests included Epilepsy Tasmania CEO Wendy Groot, Ne... more

Hannah is a second-year medical student who faces her own medical mystery. A few years ago, she started having uncontrollable and unexpected convulsions which, to most people with any experience of it, appeared to be epileptic seizures. But doctors s... more

After noticing a student having a seizure during a lunch break, Jenni, a teachers assistant, has played a leading role in making sure all teachers were trained in epilepsy first aid. Her story and her experience with seizures are not just from her wo... more

Glenda is the devoted grandmother of seven year old Laila. She was there for her birth and has played a crucial part in her life, despite the fact that they live on opposite sides of the country.

Laia was diagnosed with epilepsy when she was 9-month... more

Jules has been affected by epilepsy since she was a kid and it's just been part of her life for as long as she can remember and she thought he daughter Annabelle would have the same experience. But Jules and her family were devastated when she lost h... more

Derek had his first seizure at the age of 60 and was diagnosed with epilepsy shortly after. He's a man who loves the outdoors and competed in shooting and fly fishing. But since he started having seizures he has had to find enjoyment in the simple th... more

Riley left school wanting to achieve one thing, to join the military. Since he was a child, he wanted to serve his country and did everything possible to make sure that when old enough, he could achieve his dream. But things didn't go to plan.

The f... more

Daniel is a father whose seizures were becoming so frequent they were affecting his ability to care for his young daughter. He made the tough decision to have brain surgery, knowing that there was a chance it wouldn't work.

Daniel started having sei... more

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