
Welcome to —Let’s Talk about Epilepsy - your podcast to hear real stories, expert insights, and honest conversations about life with epilepsy. Whether you’re living with epilepsy, supporting a young person who is, or just want to understand more, we’re here to help you feel informed, empowered, and connected. We bring together the voices that matter—young people, families, and experts—to share exp... more
| Publishes | Monthly | Episodes | 19 | Founded | a year ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Kids & FamilyHealth & FitnessMedicine | |||

In this episode of the Young Epilepsy Podcast, we explore Vagus Nerve Stimulation (VNS) therapy and how it can help children and young people with harder to manage epilepsy.
Host Kirsten McHale, Head of Healthcare at Young Epilepsy, is joined by Dr ... more
PLEASE NOTE:
Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace p... more
In this episode, host Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery. They explain when surgery might be considered, what the process involves, and how it can change a you... more
In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the family, the emotional impact on siblings, and why suppo... more
In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’t respond to medication.
Around 1 in 3 young peo... more
In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the realities of learning to drive with epilepsy - from exc... more
We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about the moment of diagnosis, the fears and misconception... more
We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk about the diagnosis process, the challenges families ... more
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This show centers on real-life experiences with epilepsy, pairing firsthand patient and family storytelling with expert insights from clinicians and researchers. Across episodes, listeners hear about daily life managing seizures, school and work challenges, transition from pediatric to adult care, driving and independence, mental health, and the evolving landscape of treatments and diagnostics. The conversations frequently highlight peer support, advocacy, and navigating healthcare systems in the UK, with a strong emphasis on youth voices and family perspectives. A notable throughline is practical guidance—from navigating school provisions and EHCPs to understanding medication options and transition planning—delivered through compassionate,... more
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Let’s talk about epilepsy launched a year ago and published 19 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on Let’s talk about epilepsy include:
1. Helen Cross
2. Lindsay Gibbons
3. Chris McCarthy
4. Colin Dunkley
5. Mark Richardson
6. Sarah Barnes
7. Dr Tejal Mitchell
8. Mariana Nicolaou
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