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Let’s talk about epilepsy

Young Epilepsy
Epilepsy
Young Epilepsy
Mental Health
Education
NHS
NHS England
Transitions Into Adult Care
Mental Health Intervention For Children With Epilepsy (MICE)
United Kingdom
Sodium Valproate
University Of Nottingham
Alcohol
Women
Artificial Intelligence
Siblings
ADHD
Purple Day
King's College London
Cenobamate
Workplace

Welcome to —Let’s Talk about Epilepsy - your podcast to hear real stories, expert insights, and honest conversations about life with epilepsy. Whether you’re living with epilepsy, supporting a young person who is, or just want to understand more, we’re here to help you feel informed, empowered, and connected. We bring together the voices that matter—young people, families, and experts—to share exp... more

PublishesMonthlyEpisodes19Foundeda year ago
Number of ListenersCategories
Kids & FamilyHealth & FitnessMedicine

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Artwork for Let’s talk about epilepsy

Latest Episodes

In this episode of the Young Epilepsy Podcast, we explore Vagus Nerve Stimulation (VNS) therapy and how it can help children and young people with harder to manage epilepsy.

Host Kirsten McHale, Head of Healthcare at Young Epilepsy, is joined by Dr ... more

PLEASE NOTE:

Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace p... more

In this episode, host Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery. They explain when surgery might be considered, what the process involves, and how it can change a you... more

In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the family, the emotional impact on siblings, and why suppo... more

In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’t respond to medication.

Around 1 in 3 young peo... more

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In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the realities of learning to drive with epilepsy - from exc... more

YouTube

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about the moment of diagnosis, the fears and misconception... more

YouTube

We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk about the diagnosis process, the challenges families ... more

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Recent Guests

Helen Cross
Pediatric neurologist, expert in childhood epilepsy
Great Ormond Street Hospital; UCL Institute of Child Health
Episode: Introduction to: Harder to Manage Epilepsy
Lindsay Gibbons
Parent of a child with epilepsy and EQ Network participant
Parent advocate, EQ Network
Episode: Introduction to: Harder to Manage Epilepsy
Chris McCarthy
Commentator for Formula 1 and host of Purple Sectors Charity event
Young Epilepsy (via involvement)
Episode: Can I drive with epilepsy?
Colin Dunkley
Consultant Pediatrician and Clinical Lead for Epilepsy 12
Episode: Diagnosis and Emerging Technologies (Audio only)
Mark Richardson
Professor of Epilepsy, Head of the School of Neurosciences at King's College London; Consultant Neurologist
King's College London / Epilepsy Center, King's College Hospital
Episode: Diagnosis and Emerging Technologies (Audio only)
Sarah Barnes
Parent of Lexi diagnosed with epilepsy
Episode: A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)
Dr Tejal Mitchell
Consultant neurologist specializing in epilepsy, speaker at Hear Her Voice event
NHS / King's Cross location
Episode: Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)
Mariana Nicolaou
Manager of the Youth Support Service for Young Epilepsy
Young Epilepsy
Episode: You’re Not Alone: Finding Support with Epilepsy (Audio only)
Alex Cox
Youth Support Coordinator for Young Epilepsy
Young Epilepsy
Episode: You’re Not Alone: Finding Support with Epilepsy (Audio only)

Hosts

Ree
Host of the episode, introduced as a host from the Youth Voice Network at Young Epilepsy
Kirsten McHale
Host of the Young Epilepsy podcast

Talking Points

Recent interactions between the hosts and their guests.

Introduction to: Harder to Manage Epilepsy
Q: Are there any treatment options for juvenile myoclonic epilepsy?
Juvenile myoclonic epilepsy often responds to several anti-seizure medications, but choices must consider long-term safety, especially for women of childbearing potential. If standard medications fail, clinicians may consider alternatives such as zonisamide or other agents, with careful attention to contraception and future family planning, balancing seizure control with potential side effects.
Introduction to: Harder to Manage Epilepsy
Q: Why can you have both drug-resistant and drug-responsive epilepsy?
Epilepsy can vary over time and across individuals; some patients experience periods where seizures are controlled, while others have ongoing seizures due to differences in underlying brain causes, brain development, and how the seizures respond to medications. In some cases, seizures cluster or emerge during certain life phases, and treatment responsiveness can change with dose adjustments, brain maturation, or progression of the syndrome.
MICE (Mental Health Intervention in Childhood Epilepsy) (Audio only)
Q: Talk to me about your project. Talk to me about MICE.
MICE stands for the Mental Health Intervention for Children with Epilepsy; it trained epilepsy nurses and assistant psychologists to deliver a standardized mental health treatment in epilepsy clinics, and a trial compared those receiving MICE against usual care, finding better emotional and behavioral outcomes for the intervention group.
Transitions into Adult Healthcare (Audio only)
Q: What changes have you seen since Sasha's diagnosis, and how has transition evolved over time?
Experts describe a shift toward earlier planning, more patient-led clinics, and joint coordination between pediatric and adult teams, with a focus on gradual transition rather than abrupt transfer.
What I wish I knew when I was diagnosed (Audio only)
Q: How can newly diagnosed individuals seek support?
Visit Young Epilepsy's website for information for both young people and parents, seek emotional therapy, and connect with peers to share experiences and coping strategies.

Audience Metrics

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Frequently Asked Questions About Let’s talk about epilepsy

What is Let’s talk about epilepsy about and what kind of topics does it cover?

This show centers on real-life experiences with epilepsy, pairing firsthand patient and family storytelling with expert insights from clinicians and researchers. Across episodes, listeners hear about daily life managing seizures, school and work challenges, transition from pediatric to adult care, driving and independence, mental health, and the evolving landscape of treatments and diagnostics. The conversations frequently highlight peer support, advocacy, and navigating healthcare systems in the UK, with a strong emphasis on youth voices and family perspectives. A notable throughline is practical guidance—from navigating school provisions and EHCPs to understanding medication options and transition planning—delivered through compassionate,... more

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These podcasts share a similar audience with Let’s talk about epilepsy:

1. Epilepsy Sparks Insights

How many episodes of Let’s talk about epilepsy are there?

Let’s talk about epilepsy launched a year ago and published 19 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Let’s talk about epilepsy?

Recent guests on Let’s talk about epilepsy include:

1. Helen Cross
2. Lindsay Gibbons
3. Chris McCarthy
4. Colin Dunkley
5. Mark Richardson
6. Sarah Barnes
7. Dr Tejal Mitchell
8. Mariana Nicolaou

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