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Epilepsy Sparks Insights

Torie Robinson
Epilepsy
Seizures
Cenobamate
Micrornas
Autoimmune-Associated Epilepsy
Cognition
Neurobiology
Cognitive Changes
Immunology
Mental Health
Neurology
Pediatric Neurology
Immunotherapy
Quality Of Life
Autoimmune Encephalitis
Neuronal Proteins
Memory Impairment
Ketogenic Diet
Glute 1 Deficiency Disorder
Acute Symptomatic Seizures

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

PublishesWeeklyEpisodes100Founded5 years ago
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Life SciencesScienceMedicineHealth & Fitness

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Recent Guests

Dr. Ching Soong Khoo
Consultant neurologist specializing in epilepsy
Episode: Ching Soong Khoo 1
Rébecca Hubert
Vice secretary of Allianz syndrome de Dravet and mother of four
Allianz syndrome de Dravet
Episode: What Life Is Really Like for Families Affected by Dravet Syndrome - Rébecca Hubert
Professor Rima Nabbout
A professor of pediatric neurology, working primarily in childhood epilepsy and directing the Reference Center for Rare Epilepsy.
Naka Enformalad, Université Paris Cité and Institut d'Imagine, Paris, France
Episode: Why Clinicians Must Listen to Families Living With Dravet Syndrome - Prof. Rima Nabbout
Professor Nicola Specchio
The newly appointed chair of ILAE Europe, and specialist in rare and complex epilepsies.
ILAE Europe
Episode: Can We Transform Global Epilepsy Care? - Prof. Nicola Specchio
Dr. Claire Behan
Researcher at Trinity College Dublin focusing on blood-brain barrier and epilepsy.
Trinity College Dublin
Episode: The Blood-Brain Barrier and Epilepsy! - Dr. Claire Behan & Dr. Chris Greene
Dr. Chris Greene
Researcher at RCSI focused on blood-brain barrier and epilepsy interventions.
RCSI
Episode: The Blood-Brain Barrier and Epilepsy! - Dr. Claire Behan & Dr. Chris Greene
Professor Gagandeep Singh
Chair of the Education Council for the International League Against Epilepsy and Professor of Neurology
International League Against Epilepsy
Episode: ILAE Academy: Global Training for Epilepsy Clinicians - Prof. Gagandeep Singh
Dr. Florien Boele
Associate Professor of Medical Psychology at the University of Leeds; researcher focusing on the impact of caregiving on quality of life.
University of Leeds
Episode: Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele
Philip Pearl
Chief of Epilepsy and Clinical Neurophysiology at Boston Children's Hospital
Boston Children's Hospital
Episode: Metabolic Epilepsies & Gene Therapy – Phillip Pearl

Host

Torie Robinson
Host of the podcast, focusing on reducing the communication gap between patients and professionals in the epilepsy community.

Reviews

4.9 out of 5 stars from 42 ratings
  • Strong science-based content

    As a a cognitive neuroscientist and parent of a child recently diagnosed with epilepsy, I truly appreciate you sharing these well-grounded scientific insights! These short podcasts are accessible and are guiding me to other helpful resources - thank you!

    Apple Podcasts
    5
    Meaghan P PhD
    United States4 months ago
  • Informative, enjoyable, and refreshingly frank

    My girlfriend has epilepsy and this has provided me with real insight into how the condition affects her day to day, week to week, and month to month (because things can vary so much!). It’s presented in an easy-to-understand format and is surprisingly witty.

    Apple Podcasts
    5
    Reaper_FBB
    United Kingdom4 years ago
  • Excellent podcast

    Great interviews with some really interesting people. All presented in a that make difficult and complicated subject reasonably easy to understand

    Apple Podcasts
    5
    TPKJ
    United Kingdom4 years ago
  • Great show and overdue

    It’s great to hear content like this. Anybody who has an interest in epilepsy for any reason will find this to be a must listen

    Apple Podcasts
    5
    Poddy838
    United Kingdom5 years ago
  • Abbeymary

    Great to listen too. Informative, funny, practical, educational and a must listen for all involved in the Epilepsy world. Thanks a million for sharing knowledge and insights into this important topic. Much appreciated. A mum x

    Apple Podcasts
    5
    MaryAbbey
    United Kingdom5 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Positive feedback highlights the podcast's role in bridging gaps between medical knowledge and patient experiences, enhancing relevance for a broad audience.
Listeners appreciate the scientific grounding and accessible information provided, which aids in understanding complex epilepsy-related issues.
Many commend the engaging format and insightful discussions that resonate with both personal and professional experiences.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

What Life Is Really Like for Families Affected by Dravet Syndrome - Rébecca Hubert
Q: What was your motivation to become involved in a study into the lives of people affected by Dravet syndrome?
The motivation was to provide insight into what life is like for a large family with a child with Dravet syndrome and to help clinicians understand their reality.
What Life Is Really Like for Families Affected by Dravet Syndrome - Rébecca Hubert
Q: Could you give us an overview of what Dravet is and how it can affect the patient, but how it can affect family life as well?
Dravet syndrome is a rare and severe form of epilepsy that disrupts family dynamic, causing isolation and requiring constant vigilance due to its health complications.
Understanding the New Focal Consciousness Classifier - Prof. Sándor Beniczky
Q: What are the important or most significant changes?
We reduced the number of seizure types significantly, from 63 to 21, which improves feasibility and clarity.
Understanding the New Focal Consciousness Classifier - Prof. Sándor Beniczky
Q: Tell us what problem that this paper and these decisions are solving.
The previous classification system did not effectively accommodate specialty needs and lacked the necessary granularity for various clinical practices.
Can We Transform Global Epilepsy Care? - Prof. Nicola Specchio
Q: What are your priorities in your new role?
Integration in care, cross-border collaboration, and improving access to specialized care for difficult-to-treat epilepsies are my main priorities.

Audience Metrics

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Frequently Asked Questions About Epilepsy Sparks Insights

What is Epilepsy Sparks Insights about and what kind of topics does it cover?

A variety of topics related to epilepsy are explored, ranging from clinical practices and new research to personal experiences. Focused on enhancing understanding and communication among patients, caregivers, and healthcare professionals, discussions feature insights into seizure classification, barriers in epilepsy care, patient-centric approaches, and the psychological aspects of living with the condition. Unique perspectives are provided by expert guests who share their extensive knowledge in areas like surgical interventions, genetic conditions, and care practices, making this content valuable for individuals affected by epilepsy, healthcare providers, and researchers alike.

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How many listeners does Epilepsy Sparks Insights get?

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What are the audience demographics for Epilepsy Sparks Insights?

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How many subscribers and views does Epilepsy Sparks Insights have?

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Which podcasts are similar to Epilepsy Sparks Insights?

These podcasts share a similar audience with Epilepsy Sparks Insights:

1. Sharp Waves: ILAE's epilepsy podcast
2. Seizing Life
3. The Now What Podcast: Young Adults and Epilepsy
4. The Diary Of A CEO with Steven Bartlett
5. Huberman Lab

How many episodes of Epilepsy Sparks Insights are there?

Epilepsy Sparks Insights launched 5 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Epilepsy Sparks Insights?

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What guests have appeared on Epilepsy Sparks Insights?

Recent guests on Epilepsy Sparks Insights include:

1. Dr. Ching Soong Khoo
2. Rébecca Hubert
3. Professor Rima Nabbout
4. Professor Nicola Specchio
5. Dr. Claire Behan
6. Dr. Chris Greene
7. Professor Gagandeep Singh
8. Dr. Florien Boele

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