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Artwork for Epilepsy Sparks Insights

Epilepsy Sparks Insights

Torie Robinson
Epilepsy
Seizures
Cenobamate
Gene Therapy
Micrornas
Autoimmune-Associated Epilepsy
Cognition
Cognitive Changes
Immunology
Neurobiology
Mental Health
Neurology
Pediatric Neurology
Immunotherapy
Neuronal Proteins
Autoimmune Encephalitis
Quality Of Life
Memory Impairment
Ketogenic Diet
Glute 1 Deficiency Disorder

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

PublishesWeeklyEpisodes100Founded5 years ago
Number of ListenersCategories
ScienceMedicineHealth & FitnessLife Sciences

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Artwork for Epilepsy Sparks Insights

Latest Episodes

Delays in epilepsy surgery referral are not just about access and are not limited to one region. Epileptologist Asst. Prof. Juan Perez discusses paediatric epilepsy surgery across Latin America, where services exist but remain underutilised, and how ... more

What happens when epilepsy medication doesn’t work? Prof. John Duncan explains how treatment decisions evolve beyond medication, from resective surgery to neuromodulation, and how patients and clinicians weigh these options together. The conversation... more

Why does epilepsy still receive so little funding, attention and public understanding compared to other diseases? Intellectual disability nurse Jay Price discusses why epilepsy remains underfunded and badly marketed, alongside misdiagnosis, quality o... more

Many epilepsy lesions that cause seizures are missed on routine MRI scans, delay diagnosis and surgery. Dr. Konrad Wagstyl discusses his research using AI and large MRI datasets to detect subtle abnormalities such as focal cortical dysplasia and hipp... more

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Recent Guests

Juan Carlos Perez
Epileptologist
Colombia (as described in episode)
Episode: Why Children Are Not Referred For Epilepsy Surgery - Asst. Prof. Juan Pérez
John Duncan
Professor, clinical economic neurologist
University College London; National Hospital for Neurology and Neurosurgery
Episode: When Epilepsy Medication Fails - Where Neuromodulation Fits - Prof. John Duncan
Jay Price
Intellectual disabilities nurse and epilepsy champion
Episode: Why Epilepsy Is Still Being Ignored - Jay Price, Intellectual Disability Nurse
Konrad Wagstyl
Researcher, King's College London
King's College London
Episode: MRIs Miss Brain Lesions Causing Epilepsy - AI Can Find Them - Dr. Konrad Wagstyl
Dr. Frederic Schaper
A physician-scientist at the Center for Brain Circuit Therapeutics and Harvard Medical School
Center for Brain Circuit Therapeutics, Harvard Medical School
Episode: Rethinking Generalised Epilepsy Networks and Deep Brain Stimulation - Dr. Frederic Schaper
Andres M. Kanner
Epileptologist and psychiatrist; Professor of Clinical Neurology, head of the epilepsy section, director of the Comprehensive Epilepsy Center
University of Miami
Episode: Epilepsy: The Mental Health Symptoms We Overlook - Dr. Andres M. Kanner
Dr. Christian Bosselmann
Medical specialist in epilepsy and genetics
Episode: Genetic Testing in Epilepsy Isn’t Definitive - Here's Why - Dr. Christian Bosselmann
Charlotte Blease
Health informatist, writer and philosopher
Episode: AI in Health Care - What the Evidence Shows So Far - Charlotte Blease, PhD
Dr. Ching Soong Khoo
Consultant neurologist specializing in epilepsy
Episode: Obesity in Epilepsy - An Overlooked Problem - Dr. Ching Soong Khoo

Host

Torie Robinson
Host of Epilepsy Sparks Insights

Reviews

4.9 out of 5 stars from 44 ratings
  • Strong science-based content

    As a a cognitive neuroscientist and parent of a child recently diagnosed with epilepsy, I truly appreciate you sharing these well-grounded scientific insights! These short podcasts are accessible and are guiding me to other helpful resources - thank you!

    Apple Podcasts
    5
    Meaghan P PhD
    United States7 months ago
  • Informative, enjoyable, and refreshingly frank

    My girlfriend has epilepsy and this has provided me with real insight into how the condition affects her day to day, week to week, and month to month (because things can vary so much!). It’s presented in an easy-to-understand format and is surprisingly witty.

    Apple Podcasts
    5
    Reaper_FBB
    United Kingdom4 years ago
  • Excellent podcast

    Great interviews with some really interesting people. All presented in a that make difficult and complicated subject reasonably easy to understand

    Apple Podcasts
    5
    TPKJ
    United Kingdom5 years ago
  • Great show and overdue

    It’s great to hear content like this. Anybody who has an interest in epilepsy for any reason will find this to be a must listen

    Apple Podcasts
    5
    Poddy838
    United Kingdom5 years ago
  • Abbeymary

    Great to listen too. Informative, funny, practical, educational and a must listen for all involved in the Epilepsy world. Thanks a million for sharing knowledge and insights into this important topic. Much appreciated. A mum x

    Apple Podcasts
    5
    MaryAbbey
    United Kingdom5 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Guests consistently praise clear, accessible science explained with empathy.
Listeners value practical insights that translate to real-world care.
Audience finds content informative and trust-building for families and professionals.
The show is commended for high-quality experts and thoughtful discussions.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Why Epilepsy Is Still Being Ignored - Jay Price, Intellectual Disability Nurse
Q: What needs to change in how we train health and social care professionals to better support people with epilepsy and their carers?
Training must move beyond seizures to address the whole person, including anxiety, daily activity, and quality of life; co-produced, ongoing education involving people with epilepsy and carers is essential to create effective, empathetic care and better outcomes.
Why Epilepsy Is Still Being Ignored - Jay Price, Intellectual Disability Nurse
Q: So your paper is titled, Epilepsy is just not sexy, is it? What does this mean when you look at funding and attention?
The discussion emphasizes that funding and policy attention still disproportionately favor other conditions; epilepsy often falls to the bottom of health priorities, with significant regional disparities and a need for a more nuanced, inclusive approach that covers all epilepsy types and the lived experiences of people with epilepsy.
When Epilepsy Medication Fails - Where Neuromodulation Fits - Prof. John Duncan
Q: Is seizure freedom achievable with neuromodulation?
Seizure freedom with neuromodulation is unlikely for most patients; the more realistic goal is meaningful seizure reduction and improved quality of life, potentially allowing reduced dependence on multiple medications.
Why Children Are Not Referred For Epilepsy Surgery - Asst. Prof. Juan Pérez
Q: Why is education crucial for changing outcomes in epilepsy care across Latin America and globally?
Education helps dispel myths about surgery, builds capacity in training programs, and encourages both healthcare providers and policymakers to support early referral and access, ultimately improving quality of life for children and families.
Why Children Are Not Referred For Epilepsy Surgery - Asst. Prof. Juan Pérez
Q: What are you doing to overcome fear among clinicians about epilepsy surgery and to improve referral rates?
The approach centers on education at multiple levels—societal, clinical, and governmental—so clinicians understand the benefits of early evaluation and families are informed about options, reducing delays.

Audience Metrics

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Frequently Asked Questions About Epilepsy Sparks Insights

What is Epilepsy Sparks Insights about and what kind of topics does it cover?

The show spotlights epilepsy from multiple angles, featuring clinicians, researchers, and patient advocates who discuss treatment hesitations, cutting-edge genetics, surgical advances, and the lived experiences of families affected by epilepsy. Episodes emphasize multidisciplinary care, nuanced decision-making beyond seizure control, and the human impact of epilepsy on mental health, quality of life, and care pathways. A standout is the consistent collaboration between doctors, researchers, and families to translate science into practical care and empathy, making it a strong fit for listeners who want trusted, expert perspectives on managing and understanding the condition.

Listeners are likely drawn to rigorous science, clinical insights,... more

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How many listeners does Epilepsy Sparks Insights get?

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Which podcasts are similar to Epilepsy Sparks Insights?

These podcasts share a similar audience with Epilepsy Sparks Insights:

1. Sharp Waves: ILAE's epilepsy podcast
2. Seizing Life
3. The Diary Of A CEO with Steven Bartlett
4. The Tucker Carlson Show
5. Huberman Lab

How many episodes of Epilepsy Sparks Insights are there?

Epilepsy Sparks Insights launched 5 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Epilepsy Sparks Insights?

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What guests have appeared on Epilepsy Sparks Insights?

Recent guests on Epilepsy Sparks Insights include:

1. Juan Carlos Perez
2. John Duncan
3. Jay Price
4. Konrad Wagstyl
5. Dr. Frederic Schaper
6. Andres M. Kanner
7. Dr. Christian Bosselmann
8. Charlotte Blease

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