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Artwork for Epilepsy Sparks Insights

Epilepsy Sparks Insights

Torie Robinson
Epilepsy
Seizures
Cenobamate
Micrornas
Autoimmune-Associated Epilepsy
Cognition
Neurobiology
Immunology
Cognitive Changes
Mental Health
Neurology
Pediatric Neurology
Neuronal Proteins
Immunotherapy
Autoimmune Encephalitis
Quality Of Life
Memory Impairment
Glute 1 Deficiency Disorder
Ketogenic Diet
Acute Symptomatic Seizures

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

PublishesWeeklyEpisodes100Founded5 years ago
Number of ListenersCategories
Life SciencesHealth & FitnessMedicineScience

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Artwork for Epilepsy Sparks Insights

Latest Episodes

The ILAE Academy is changing how clinicians and researchers learn about the epilepsies! Prof. Gagandeep Singh, Chair of the ILAE Education Council, joins Torie to explain how this innovative, self-paced, and structured platform is helping to shape th... more

How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜

Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for a... more

Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encepha... more

In this first half of our chat with Dr. Ewan Nurse, we explore why seizure reporting matters so much in epilepsy care. From forgotten focal seizures to the challenges of eyewitness accounts, Ewan explains why accurate seizure diaries are vital yet so... more

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Recent Guests

Dr. Florien Boele
Associate Professor of Medical Psychology at the University of Leeds; researcher focusing on the impact of caregiving on quality of life.
University of Leeds
Episode: Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele
Philip Pearl
Chief of Epilepsy and Clinical Neurophysiology at Boston Children's Hospital
Boston Children's Hospital
Episode: Metabolic Epilepsies & Gene Therapy – Phillip Pearl
Simona Balestrini
Adult and child neurologist with a special interest in epilepsy and genetic forms of epilepsy
UCL Department of Epilepsy
Episode: Magnetic Brain Stimulation in Epilepsy: Genetics, Research & Future Care - Simona Balestrini
Yanin Rivera
Pediatric neurologist working in Mexico
Hospital Regional Planepantla
Episode: Epilepsy Care, Cultural Beliefs & Telemedicine in Mexico Dr. Yanin Rivera
Dr. Parthvi Ravat
Epilepsy Specialist Neurologist with a passion for research and patient care
Episode: They Aren’t FAKE! Dissociative Seizures/Non-Epileptic Events - Dr. Parthvi Ravat
Lucas Orellana
Adult neurologist and epileptologist
Jonas Salk Institute and Riz Pastel Institute
Episode: Migraine & Epilepsy: Best Friends - Lucas Orellana
Jenny Edwards
Epilepsy Specialist Nurse in Swansea Bay Health Board
Swansea Bay Health Board
Episode: Let’s Talk About Sex - Jenny Edwards
Ludivine Rohrer
An advanced practice nurse specializing in epilepsy, working in a university hospital in Nancy, France.
University Hospital, Nancy
Episode: Why We Need Epilepsy Nurses! - Ludivine Rohrer & Patty Shafer
Patty Shafer
An epilepsy nurse with over 35 years of experience at an epilepsy center in Boston, Massachusetts, and patient advocate.
Epilepsy Foundation, United States
Episode: Why We Need Epilepsy Nurses! - Ludivine Rohrer & Patty Shafer

Host

Torie Robinson
Host of Epilepsy Sparks Insights

Reviews

4.9 out of 5 stars from 42 ratings
  • Strong science-based content

    As a a cognitive neuroscientist and parent of a child recently diagnosed with epilepsy, I truly appreciate you sharing these well-grounded scientific insights! These short podcasts are accessible and are guiding me to other helpful resources - thank you!

    Apple Podcasts
    5
    Meaghan P PhD
    United Statesa month ago
  • Informative, enjoyable, and refreshingly frank

    My girlfriend has epilepsy and this has provided me with real insight into how the condition affects her day to day, week to week, and month to month (because things can vary so much!). It’s presented in an easy-to-understand format and is surprisingly witty.

    Apple Podcasts
    5
    Reaper_FBB
    United Kingdom4 years ago
  • Excellent podcast

    Great interviews with some really interesting people. All presented in a that make difficult and complicated subject reasonably easy to understand

    Apple Podcasts
    5
    TPKJ
    United Kingdom4 years ago
  • Great show and overdue

    It’s great to hear content like this. Anybody who has an interest in epilepsy for any reason will find this to be a must listen

    Apple Podcasts
    5
    Poddy838
    United Kingdom4 years ago
  • Abbeymary

    Great to listen too. Informative, funny, practical, educational and a must listen for all involved in the Epilepsy world. Thanks a million for sharing knowledge and insights into this important topic. Much appreciated. A mum x

    Apple Podcasts
    5
    MaryAbbey
    United Kingdom4 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the scientific grounding and practical insights, noting the accessibility of complex topics.
Audience members value the candid discussions about sensitive subjects, particularly around mental health and sexual health.
Many find the blend of expert interviews and patient experiences refreshing and meaningful.
The content is recognized for breaking down stigma associated with epilepsy and related health issues.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele
Q: Why are you studying this?
To investigate the neglected area of quality of life outcomes for carers of individuals with epilepsy.
The Silent Witness: Why Most Seizures Go Unrecorded (Part 1) - Dr. Ewan Nurse
Q: What are the biggest challenges that you've discovered through your work that people face when they are tracking their seizures or attempting to track their seizures?
The biggest problem is that many seizures are quite subtle and might not be recognized or remembered well enough to be recorded in diaries.
The Silent Witness: Why Most Seizures Go Unrecorded (Part 1) - Dr. Ewan Nurse
Q: So why focus on seizure reporting specifically in your work?
Reporting seizures is a fundamental part of diagnosis and treatment of epilepsy, helping care teams formulate appropriate treatment plans.
Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse
Q: What are you going to do with this data to improve future seizure tracking in epilepsy care?
Education is key, and understanding the gaps in the data can help in designing better diaries and electronic tracking systems.
Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse
Q: What about complex epilepsy like Lennox-Gastaut and Dravet syndrome? When people are having multiple seizure types, often daily, how well does seizure diaries reflect reality?
Seizure diaries often miss a significant number of seizures, with sensitivity rates showing only over 50% for Lennox-Gastaut syndrome and around 75% for Dravet syndrome.

Audience Metrics

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Frequently Asked Questions About Epilepsy Sparks Insights

What is Epilepsy Sparks Insights about and what kind of topics does it cover?

Content primarily centers around various aspects of epilepsy, including the role of genetics, treatment innovations, and the intersection of epilepsy with other health conditions such as migraines and mental health issues. Listeners can expect discussions on both scientific advancements and personal narratives, aimed at demystifying epilepsy and making medical information more accessible and relatable. The combination of expert knowledge from healthcare professionals and personal stories from those affected by the condition provides a well-rounded exploration of epilepsy that is both informative and touching.

Where can I find podcast stats for Epilepsy Sparks Insights?

Rephonic provides a wide range of podcast stats for Epilepsy Sparks Insights. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Epilepsy Sparks Insights and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Epilepsy Sparks Insights get?

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What are the audience demographics for Epilepsy Sparks Insights?

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How many subscribers and views does Epilepsy Sparks Insights have?

To see how many followers or subscribers Epilepsy Sparks Insights has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Epilepsy Sparks Insights?

These podcasts share a similar audience with Epilepsy Sparks Insights:

1. Sharp Waves: ILAE's epilepsy podcast
2. Seizing Life
3. Feel Better, Live More with Dr Rangan Chatterjee
4. The Diary Of A CEO with Steven Bartlett
5. Good Hang with Amy Poehler

How many episodes of Epilepsy Sparks Insights are there?

Epilepsy Sparks Insights launched 5 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Epilepsy Sparks Insights?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

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What guests have appeared on Epilepsy Sparks Insights?

Recent guests on Epilepsy Sparks Insights include:

1. Dr. Florien Boele
2. Philip Pearl
3. Simona Balestrini
4. Yanin Rivera
5. Dr. Parthvi Ravat
6. Lucas Orellana
7. Jenny Edwards
8. Ludivine Rohrer

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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