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Seizing Life

CURE Epilepsy
Epilepsy
Cure Epilepsy
Seizures
SUDEP
Neurologic Conditions
Music Therapy
Parkinson's Disease
Stroke
Music
Medicine
Neurology
Freezing Man Festival
Advocacy
Brain Surgery
Dementia
Fundraising
Mental Health
Musicogenic Epilepsy
Traumatic Brain Injury
Parenting With Epilepsy

Seizing Life® is a CURE Epilepsy podcast and videocast aiming to inspire empathy, offer helpful stories, and give hope as we search for a cure for epilepsy. Listen as guests share stories and insights on living with epilepsy in conversation with our host, Kelly Cervantes.

PublishesMonthlyEpisodes156Founded7 years ago
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MedicineHealth & Fitness

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Artwork for Seizing Life

Latest Episodes

Dr. Kendra Cagniart shares her son’s journey with epilepsy, from a traumatic birth in which he arrived in status epilepticus through his current period of seizure freedom at the age of 9. This is an amazing and ultimately hopeful journey of a young b... more

YouTube

In honor of SUDEP Action Day on Wednesday, October 15th, we speak with Maria Teresa Ioannou of the Joanna Sophia Foundation who tragically lost her nine-year-old daughter Joanna Sophia to SUDEP in 2018.

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Dr. Olivia Hoffman, post-doctoral researcher in Dr. Avtar Roopra’s lab at the University of Wisconsin-Madison, discusses one of the most exciting discoveries in epilepsy research in recent years, a repurposed drug that has shown remarkable promise in... more

YouTube

This week on Seizing Life®, journalist, television executive, and mother Scarlette Whyte joins us to share her family’s experience with Panayiotopoulos Syndrome, a type of early childhood epilepsy with which two of her three children have been diagno... more

YouTube

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Recent Guests

Dr. Kendra Cagniart
Neurologist and mother of a child with epilepsy
Cleveland Clinic Indian River Hospital
Episode: A Mother and Neurologist Shares Her Son’s Amazing Journey From Traumatic Birth to Seizure Freedom
Maria Teresa Ioannou
Founder of the Joanna Sophia Foundation and mother of Joanna Sophia
Joanna Sophia Foundation
Episode: Turning the Tragedy of SUDEP into Hope: The Story of the Joanna Sophia Foundation
Shalee Cunneen
Mother of Ella, a daughter who has epilepsy, and long-time supporter of CURE Epilepsy.
Episode: 10 Years of Ella’s Race: Raising Awareness & Finding Hope in Fundraising for Epilepsy Research
Dr. Dan Lowenstein
Internationally known epileptologist and advocate for epilepsy awareness.
University of California, San Francisco
Episode: Advocating for a National Plan for Epilepsy in Uncertain Times
Dr. Connie Tomaino
Executive Director and Co-Founder of the Institute for Music and Neurologic Function
Institute for Music and Neurologic Function
Episode: Music Therapy for Neurologic Conditions: Understanding How It Works
Dr. Kelly Tyson
A resident physician who has lived with epilepsy since high school.
Episode: Despite Medical Training, A Young Doctor’s Epilepsy Goes Undiagnosed for a Decade
Kay Hanley
Lead singer of the band Letters to Cleo and Emmy Award winner.
Letters to Cleo
Episode: Joey’s Song Musicians: Rocking for Epilepsy Research is Personal
John Cowsill
Former drummer for the Cowsills and current drummer for the Smithereens.
Smithereens
Episode: Joey’s Song Musicians: Rocking for Epilepsy Research is Personal
Patricia Dean
Advanced registered nurse practitioner and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children's Hospital
Nicklaus Children's Hospital
Episode: Fostering a Good Relationship with Your Child’s Epilepsy Care Team

Host

Kelly Cervantes
Host of a series focused on personal stories and insights surrounding epilepsy, including interviews with medical professionals and personal narratives from families affected by the condition.

Reviews

4.9 out of 5 stars from 74 ratings
  • You were a beacon of light and hope during a very dark time.

    You both have changed our lives for the better by sharing your journey with your beautiful daughter. We were devastated when our daughter was diagnosed with epilepsy. You both open up your lives to help others was the beacon of light we were desperately looking for. I could never express our appreciation in words how grateful we are to you and the work you are doing. Thank you! Thank you for being the voice for those who live with epilepsy.💜

    Apple Podcasts
    5
    StertheKerr
    United States5 years ago
  • Great information!

    Thank you for this continued information! We need all the information about epilepsy. Not enough information out there and surprisingly...even in the medical field!

    Apple Podcasts
    5
    Realtor_Mom
    United States7 years ago
  • A Much Needed Podcast

    I love the informative and honest information in Seizing Life. As a parent to a child who has seizures, this is the first resource that makes me feel like we're not alone in this journey.

    Apple Podcasts
    5
    Domanders
    United States7 years ago
  • Epilepsy and genetics

    I have loved all these podcast episodes, and especially enjoyed the latest on epilepsy and genetics. My son has SCN8A epilepsy (IS, tonic seizures, developmental delays) and I was so excited to hear Dr. Millichap mention SCN8A on the episode. There are still only about 300 cases diagnosed worldwide and many neurologists are still not even familiar with it. I’m a parent volunteer for The Cute Syndrome Foundation, which raises funds and awareness for our SCN8A community. I shared your podcast wit... more

    Apple Podcasts
    5
    Reginald Denny
    United States7 years ago
  • I live with epilepsy

    I am a mother of two who has had epilepsy since age six. I am 29 years old and it’s been hard but I am happy to hear about life with it. It’s a struggle with remembering medication to being able to function. Or even not being able to drive with epilepsy, but I’m happy to have a epilepsy podcast to listen to. Thank you so much

    Apple Podcasts
    4
    nicolelist
    United States7 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the supportive narrative around personal experiences with epilepsy.
Many find it an essential resource for navigating the challenges of living with epilepsy and for supporting their loved ones.
The podcast is recognized for its educational value, providing insights from experts in the field.

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Talking Points

Recent interactions between the hosts and their guests.

A Mother and Neurologist Shares Her Son’s Amazing Journey From Traumatic Birth to Seizure Freedom
Q: What has been your biggest takeaway as a mother and a neurologist dealing with epilepsy?
Advocacy for your child and providing education to those around them is crucial; you are not alone in this journey.
A Mother and Neurologist Shares Her Son’s Amazing Journey From Traumatic Birth to Seizure Freedom
Q: What can you tell us about your family and your son, Christophe?
Christophe was born during Dr. Cagniart's second year of residency, and despite initial assessments, he faced serious medical challenges due to a traumatic birth.
Turning the Tragedy of SUDEP into Hope: The Story of the Joanna Sophia Foundation
Q: How are your other children doing today?
Andrea is doing great and has been seizure-free for seven years after switching to medication.
Turning the Tragedy of SUDEP into Hope: The Story of the Joanna Sophia Foundation
Q: Did you know anything about SUDEP? How was it explained to you?
The explanation I received was terrible; it was matter-of-factly stated that one in a thousand can die from SUDEP.
Turning the Tragedy of SUDEP into Hope: The Story of the Joanna Sophia Foundation
Q: What would you like us to know about that day?
The most important is that we just didn't know.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About Seizing Life

What is Seizing Life about and what kind of topics does it cover?

This podcast provides a platform for sharing personal stories and expert insights related to epilepsy, addressing the challenges faced by those living with the condition. It features a mixture of emotional narratives and professional discussions, with episodes that highlight fundraising initiatives, care strategies, community support events, and innovative research in the field of epilepsy.

Where can I find podcast stats for Seizing Life?

Rephonic provides a wide range of podcast stats for Seizing Life. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Seizing Life and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Seizing Life get?

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What are the audience demographics for Seizing Life?

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How many subscribers and views does Seizing Life have?

To see how many followers or subscribers Seizing Life has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Seizing Life?

These podcasts share a similar audience with Seizing Life:

1. Epilepsy Sparks Insights
2. The Now What Podcast: Young Adults and Epilepsy
3. This American Life
4. Neurology® Podcast
5. Up First from NPR

How many episodes of Seizing Life are there?

Seizing Life launched 7 years ago and published 156 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Seizing Life?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for Seizing Life?

Rephonic pulls ratings and reviews for Seizing Life from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

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How do I access podcast episode transcripts for Seizing Life?

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What guests have appeared on Seizing Life?

Recent guests on Seizing Life include:

1. Dr. Kendra Cagniart
2. Maria Teresa Ioannou
3. Shalee Cunneen
4. Dr. Dan Lowenstein
5. Dr. Connie Tomaino
6. Dr. Kelly Tyson
7. Kay Hanley
8. John Cowsill

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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