
*Disclaimer: Opinions shared in this podcast may not reflect the opinions of Catalyst Pharmaceuticals, Inc. Let’s talk about rare diseases. The LEMS Aware Podcast lets you hear directly from people in the Lambert-Eaton myasthenic syndrome (LEMS) and other rare disease communities on topics that matter. We talk with patients and caregivers who want to share more than their story – they want to igni... more
| Publishes | Infrequently | Episodes | 13 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | MedicineHealth & FitnessSociety & CulturePersonal Journals | |||

Living with LEMS isn’t always obvious to the outside world—but that doesn’t make it any less real. Invisible symptoms like muscle weakness, fatigue, or dizziness can quietly disrupt your workday, your weekend plans, or even your sense of identity.
I... more
The LEMS Aware Podcast is a new series created to celebrate and support people affected by LEMS, whether they’re patients, caregivers, or medical professionals. Hosted by Amy Grover, Executive Director of Patient Advocacy at Catalyst Pharmaceuticals,... more
On this episode of the LEMS Aware podcast, we are joined by Patrick, who shares his challenging journey to receiving a LEMS diagnosis. As someone dedicated to serving others through work and church, Patrick struggled with suddenly needing to rely on ... more
On this episode of the LEMS Aware podcast, we are joined by Karyn. Karyn first started feeling her symptoms of LEMS 24 years ago, but wasn’t diagnosed until 2013. Living with her disease for almost 12 years before receiving her diagnosis helped her a... more
In this episode of the LEMSaware podcast, we talk with Greg from his Northern Idaho home and the picturesque view filled with opportunities to enjoy some of his favorite hobbies.
Greg takes us through life before and after his LEMS diagnosis, inclu... more
On this episode of the LEMSaware Podcast, we are joined by Jena, a caregiver to her mother, who was diagnosed with LEMS. Jena's mother now lives with her, and Jena discusses the challenges of being a caregiver to her mother and young daughter. The mo... more
In 2023, NORD (National Organization for Rare Disorders) will be celebrating its 40th Anniversary and the 40th Anniversary of the Orphan Drug Act. On February 28th, NORD will lead the charge on Rare Disease Day. A day in which anyone can get involved... more
“I was built for comfort, not for speed.” Invisible diseases can be just as hard to acknowledge and understand for the person experiencing as they are for those around them.
In this episode we talk with Romy about her big ideas for how to share the... more










Listeners, social reach, demographics and more for this podcast.
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LEMS Aware launched 4 years ago and published 13 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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