FSHD Straight Talk with Tim Hollenback
FSHD Straight TalkNo one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
| Publishes | Twice monthly | Episodes | 195 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Health & FitnessScience | |||
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Latest Episodes
Real life requires real answers, something Ryan Olson seeks to provide through his new website: RealFSHD.com. This week, Ryan Olson returns to the podcast to talk candidly about life with FSHD and why he created a site sharing what he’s found useful ... more
Jim Shaugnessy is looking for a girlfriend. That’s not a joke, even though he spent his life writing for late night TV including Conan O’Brien and The Tonight Show. In this candid conversation, Shaughnessy’s trademark mix of Philly frankness and not ... more
Christine Hoene is a force of nature. From windsurfing to roller pole to ice climbing, there are very few sports she hasn’t tried. Convinced by a dream in her 30s to live life to the fullest, Hoene chose to try a new sport, every year, for an entire ... more
Join us for the 2026 Walk & Roll special episode of FSHD Straight Talk with Tim Hollenback. This year’s episode features: Dana Simone-Kurtz, San Diego; Joanne Dalessandro, Chicagoland; and Jane Roberts, Alberta, Canada. This year’s Walk leaders repre... more
Stephen Pollock is a dedicated father and pastor, living each day as a commitment to his faith. Born in Ireland, Pollock started his career practicing family medicine. In this episode he reflects on how his symptoms were visible as early as his med s... more
Rami Jokinen is a scholar, a musician, an advocate, and a jokester. Part of the Beat FSHD!-Combo, you might recognize him from the band’s recent World FSHD rock anthem and as the wearer of a hat bearing his ask of physicians and researchers “Feel fre... more
Fashion designer Vasiliki “Vas” Charitonos believes adaptive clothing can be both accessible and stylish. Her approach is informed by her own experience with FSHD. As a teenager, Vas began adapting her clothes when getting dressed became more difficu... more
Kathy Chase has a sense of humor - about life and her husband Larry’s FSHD diagnosis. In this episode, Kathy joins Tim for a candid conversation about how FSHD has affected and strengthened her marriage. Kathy’s blogs are eloquent as is she as she pr... more
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Frequently Asked Questions About FSHD Straight Talk
What is FSHD Straight Talk about and what kind of topics does it cover?
FSHD Straight Talk with Tim Hollenback centers on first-hand experiences living with facioscapulohumeral muscular dystrophy (FSHD), featuring patients, caregivers, clinicians, and advocates who share personal journeys, practical strategies, and community-focused initiatives. Episodes frequently explore diagnosis, daily adaptations, mindset, and advocacy campaigns (from fundraising efforts to awareness movements) while highlighting multidisciplinary care, research milestones, and accessible pathways to treatment. Notable is a strong emphasis on community, storytelling, and movement-based solutions, including adaptive sports, fitness routines, and patient-led programs. This mix makes it likely to appeal to listeners seeking actionable inspira... more
Where can I find podcast stats for FSHD Straight Talk?
Rephonic provides a wide range of podcast stats for FSHD Straight Talk. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to FSHD Straight Talk and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does FSHD Straight Talk get?
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What are the audience demographics for FSHD Straight Talk?
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How many subscribers and views does FSHD Straight Talk have?
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Which podcasts are similar to FSHD Straight Talk?
These podcasts share a similar audience with FSHD Straight Talk:
1. MyFSHD
How many episodes of FSHD Straight Talk are there?
FSHD Straight Talk launched 4 years ago and published 195 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact FSHD Straight Talk?
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Where can I see ratings and reviews for FSHD Straight Talk?
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What guests have appeared on FSHD Straight Talk?
Recent guests on FSHD Straight Talk include:
1. Veronika Hahn
2. Gracie Caggiano
3. Ryan Olson
4. Martha Logan
5. Nick Logan
6. Jack Gerblick
7. Justin Vanlanduit
8. Art Abrams
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.