FSHD Straight Talk with Tim Hollenback
FSHD Straight TalkNo one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
| Publishes | Twice monthly | Episodes | 182 | Founded | 3 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Health & FitnessScience | |||
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Latest Episodes
This week, Ryan Olson, a mechanic turned web designer and programmer, joins Tim for a nuanced discussion about life after diagnosis, finding community support, and maintaining your masculinity as your muscles deteriorate. Both men discuss their caree... more
Introducing the High 5 Challenge, an awareness and fundraising campaign created and led by folks living with facioscapulohumeral muscular dystrophy (FSHD). The campaign seeks to increase awareness of FSHD’s existence and it effect on muscles, specifi... more
Justin aka TurfTank returns to the podcast for an engaging conversation about adaptive sports and maintaining your athletic passions as FSHD progresses. A life-long golfer and former Course Superintendent, Justin shares the story of his return to gol... more
Almost 1 year to date, Art Abrams went from podcast listener to podcast guest, BetterLife FSHD Ambassador, and Leader of the new Iowa Chapter. In this episode, Tim and Art discuss life after diagnosis, workshopping how to tell folks, and the importan... more
This week we’re sharing a remastered version of an episode from 2022 featuring Claire Szabo-Casella, author of The Red Scooter Diaries and start of the short documentary film of the same name. During this phenomenal conversation, Claire and Lou discu... more
Tim kicks off 2026 by interviewing Jessica Ryley Hammond, a counselor running for Harford County Council. A lifelong athlete and horse-rider, Jessica was inspired to run for County Council because her rural community expanded so quickly, the infrastr... more
In our first ever Ask Me Anything (AMA) episode, Tim hosts a panel of FSHD experts to answer questions submitted by you! Amanda Hill, Dr. Lucienne Ronco, and Dr. Michelle Mellion answer questions about how to effectively describe pain to your care pr... more
Join Tim for a fascinating episode with Carme Farré, CEO/Founder of FaceToned. From a young age, Carme found herself fascinated with yoga, pilates, and holitics health and wellness practice. She comes from a family where multiple members live with FS... more
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Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
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1. Dateline NBC
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FSHD Straight Talk launched 3 years ago and published 182 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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