MyFSHD
Peter L Jones, PhDMyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will disc... more
| Publishes | Twice monthly | Episodes | 107 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | BusinessNon-Profit | |||
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Latest Episodes
"That's super frustrating. It just makes me wanna pick up whoever is standing closest to me and throw them through this window and out into the infinite abyss of nothingness!" Brad, our angry Dad, is back with some questions about clinical trials and... more
"There's another old saying, Senator: Don't piss down my back and tell me it's raining." We know a lot of you don't have the time or interest in all the details so we packaged up the highlights of the gene therapy series, with some new information an... more
"But did you bleed him? - Aesculapius says that bleeding is not a cure. It is only a way of proving that you are a physician at the expense of your patient." Finally, we discuss the EPI-321 epigenetic editing phase I/II clinical trial design and its ... more
"Good morning, and in case I don't see ya, good afternoon, good evening, and good night!" We take our time to evaluate publicly available preclinical data for EPI-321 used to support the Epicrispr Biotechnology first-in-human gene therapy clinical tr... more
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Apple Podcasts | #177 |  United Kingdom/Business/Non-Profit |
Apple Podcasts | #167 |  Australia/Business/Non-Profit |
Apple Podcasts | #33 |  Denmark/Business/Non-Profit |
Apple Podcasts | #68 |  Sweden/Business/Non-Profit |
Apple Podcasts | #192 |  New Zealand/Business/Non-Profit |
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Frequently Asked Questions About MyFSHD
What is MyFSHD about and what kind of topics does it cover?
Focusing primarily on facioscapulohumeral muscular dystrophy (FSHD), the content features in-depth discussions and analyses regarding the disease's pathology, various therapeutic approaches, and ongoing clinical trials. The host, an experienced researcher, emphasizes the importance of education and personal empowerment within the FSHD community, advocating for engaged participation in research and treatment discussions. Episodes often include insights into scientific developments, ethical considerations in trials, and personal stories of those affected by FSHD, making it unique in fostering a collaborative environment where listeners can seek not only knowledge but also support and motivation to cope with the challenges posed by the conditi... more
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How many listeners does MyFSHD get?
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What are the audience demographics for MyFSHD?
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How many subscribers and views does MyFSHD have?
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Which podcasts are similar to MyFSHD?
These podcasts share a similar audience with MyFSHD:
1. FSHD Straight Talk with Tim Hollenback
2. The Peter Attia Drive
3. The Ultimate Human with Gary Brecka
4. Crime Junkie
5. The Deck
How many episodes of MyFSHD are there?
MyFSHD launched 4 years ago and published 107 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact MyFSHD?
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Where can I see ratings and reviews for MyFSHD?
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What guests have appeared on MyFSHD?
Recent guests on MyFSHD include:
1. Tamara Gottlieb
2. Carme Farré
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.