MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will disc... more
Publishes | Weekly | Episodes | 106 | Founded | 4 years ago |
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Number of Listeners | Categories | Non-ProfitBusiness |
"There's another old saying, Senator: Don't piss down my back and tell me it's raining." We know a lot of you don't have the time or interest in all the details so we packaged up the highlights of the gene therapy series, with some new information an... more
"But did you bleed him? - Aesculapius says that bleeding is not a cure. It is only a way of proving that you are a physician at the expense of your patient." Finally, we discuss the EPI-321 epigenetic editing phase I/II clinical trial design and its ... more
"Good morning, and in case I don't see ya, good afternoon, good evening, and good night!" We take our time to evaluate publicly available preclinical data for EPI-321 used to support the Epicrispr Biotechnology first-in-human gene therapy clinical tr... more
"In the history of science, innovative concepts occasionally arise from sudden left-field inspiration." Here we make sure everyone is up to speed on the types of CRISPR inhibition for FSHD and FSHD epigenetics s that we are all ready to evaluate the ... more
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Focused on the facioscapulohumeral muscular dystrophy (FSHD) community, this podcast prioritizes education and personal empowerment through engaging discussions led by an experienced FSHD researcher. Key topics include insights into the science behind FSHD, emerging therapeutic approaches, and personal anecdotes that resonate with listeners facing similar challenges. The episodes provide valuable information about ongoing clinical trials, lifestyle and wellness strategies, and the importance of community involvement, making it a rich resource for those impacted by FSHD, advocates, and healthcare professionals alike.
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MyFSHD launched 4 years ago and published 106 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on MyFSHD include:
1. Tamara Gottlieb
2. Carme Farré
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