MyFSHD
Peter L Jones, PhDMyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will disc... more
| Publishes | Twice monthly | Episodes | 117 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Non-ProfitBusiness | |||
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Latest Episodes
"Failure is not an option". Seth, Sarah and Eva provide their experiences and perspectives on growing up with early-onset FSHD and why (and how) they should be included in the therapeutic development and testing process.
"Houston, we have a problem". While it is exciting for the FSHD community that clinical trials are here and more are coming soon, the system is not working for everyone. Our young and non-ambulatory FSHDers of all ages are currently being left behind... more
"You're gonna need a bigger boat!" Today we discuss the third compound going to clinic emerging from Neil Camarta's "Shark Tank" meetings. This one from Satellos was designed to address the regeneration deficit in DMD caused by reduced asymmetric mus... more
"If you want something bad, you have to fight for it. Step up you game, Scott. Break out the L-word". Today we discuss a little more on the Epicrispr clinical trial and preview the upcoming Scholar Rock, Soufflé and Dyne phase I/II clinical trials. A... more
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Apple Podcasts | #160 |  Australia/Business/Non-Profit |
Apple Podcasts | #85 |  Austria/Business/Non-Profit |
Apple Podcasts | #158 |  Japan/Business/Non-Profit |
Apple Podcasts | #159 |  Denmark/Business/Non-Profit |
Apple Podcasts | #169 |  Sweden/Business/Non-Profit |
Apple Podcasts | #213 |  Switzerland/Business/Non-Profit |
Apple Podcasts | #243 |  India/Business/Non-Profit |
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Frequently Asked Questions About MyFSHD
What is MyFSHD about and what kind of topics does it cover?
Educational and discussion-driven, this show centers on the science, therapy development, and patient advocacy surrounding FSHD. Recent episodes frequently cover DUX4 biology, epigenetic diagnostics, and the evolving landscape of clinical trials and biotech approaches (including myostatin pathways and CRISPR-based efforts). The hosts often critique trial design, emphasize safety and data transparency, and spotlight global patient communities, foundations, and collaborations that aim to improve access to diagnostics and therapies. A notable strength is the blend of rigorous scientific commentary with personal, patient- and family-centered perspectives, plus frequent references to real-world trial access and the role of foundations in acceler... more
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How many listeners does MyFSHD get?
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What are the audience demographics for MyFSHD?
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How many subscribers and views does MyFSHD have?
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Which podcasts are similar to MyFSHD?
These podcasts share a similar audience with MyFSHD:
1. FSHD Straight Talk with Tim Hollenback
2. Danny Jones Podcast
3. The Ben Shapiro Show
4. The Daily
5. All-In with Chamath, Jason, Sacks & Friedberg
How many episodes of MyFSHD are there?
MyFSHD launched 5 years ago and published 117 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact MyFSHD?
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What guests have appeared on MyFSHD?
Recent guests on MyFSHD include:
1. Seth Godman
2. Russ Butterfield
3. Cam Thi Nguyen
4. Neil Camarda
5. Natalie Cooney
6. Emma Weatherly
7. Anthony Sala
8. Carice Jiméda
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.