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Brain Talk | Being Patient for Alzheimer's Patients and Caregivers

Being Patient
Alzheimer's Disease
Dementia
Brain Health
Caregiving
Cognitive Decline
Clinical Trials
Parkinson's Disease
Alzheimer's
Mental Health
Frontotemporal Dementia
Memory
Exercise
Cognitive Function
Seizures
Eli Lilly
Neuroplasticity
Leqembi
Posterior Cortical Atrophy
Neurology
Long COVID

Being Patient is the leading online community for Alzheimer's, dementia patients, caregivers. We talk to experts about Alzheimer's news, advice, stories and support! Visit www.beingpatient.com for the latest Alzheimer's news and researches!

PublishesWeeklyEpisodes148Founded6 years ago
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Artwork for Brain Talk

Latest Episodes

Journey to Diagnosis is a Being Patient series sponsored by Eisai. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication.Eisai: www.eisai.com/index.htmlJourney to ... more

Posterior cortical atrophy is a rare form of Alzheimer's disease that shows up first in vision and spatial processing rather than memory — which is why it is so often missed.

Scott Cunningham was a psychiatrist for 40 years. He couldn't cut a board ... more

For four years, doctors told Sean Terwilliger he was fine. At 60, after failing a memory screening by a single point, he was diagnosed with early-onset Alzheimer's.

Terwilliger moved through three states and four primary care physicians before one f... more

Does heading a soccer ball damage your brain? Dr. Michael Alosco — clinical neuropsychologist, professor of neurology at Boston University's Chobanian & Avedisian School of Medicine, and co-director of clinical research at the BU CTE Center — explain... more

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Recent Guests

Francisco Rios
Diagnosed with Alzheimer's at age 46, early-onset AD patient
Episode: Diagnosed With Alzheimer’s at 46: Inherited Alzheimer’s and the PSEN1 Gene | Francisco Rios and Zahydie Burgos
Zahydie Burgos
Francisco's wife and caregiver
Episode: Diagnosed With Alzheimer’s at 46: Inherited Alzheimer’s and the PSEN1 Gene | Francisco Rios and Zahydie Burgos
Scott Cunningham
Individual diagnosed with posterior cortical atrophy
Episode: What Is Posterior Cortical Atrophy? One Couple's Road to Diagnosis | Scott & Anne Cunningham
Anne Cunningham
Scott's spouse and caregiver, former social worker
Episode: What Is Posterior Cortical Atrophy? One Couple's Road to Diagnosis | Scott & Anne Cunningham
Sean Terwilliger
Former IT director and educator, Alzheimer's advocate and author of ALZ Fired Up
ALZ Fired Up / Advocate
Episode: Four Years to Get a Memory Test: An Early-Onset Alzheimer's Diagnosis at 60 | Sean Terwilliger
Michael Alosco
CTE researcher, professor of neurology; co-director of clinical research at the Boston University CTE Center
Boston University
Episode: Is Heading a Soccer Ball Bad for Your Brain? A CTE Researcher Explains
Dr. Gil Carvalho
Medical doctor, research scientist, science communicator
Nutrition Made Simple (YouTube channel)
Episode: What Is the Best Diet for Brain Health? | Dr. Gil Carvalho
Cory Fosco
Long-term care expert and author
Author of The Question of When; former long-term care professional
Episode: How to Know When It's Time for More Dementia Care, According to a Long-Term Care Expert | Cory Fosco
Tommy Wood
Neuroscientist specializing in neuroplasticity and brain health; author of The Stimulated Mind
University/Research (as discussed in episode)
Episode: The Stimulated Mind: How Everyday Habits Shape Brain Health | Dr. Tommy Wood

Hosts

Deborah Kan
Host of Being Patient podcast / perspectives on dementia care and patient community insights
Mark Niu
Co-host on Being Patient Live Talks; guest appearances and interview coverage

Reviews

4.7 out of 5 stars from 12 ratings
  • Thanks

    Very helpful and glad to find ur podcast to help managing the ‘journey’ with more clarity.

    Apple Podcasts
    5
    JYC-L
    United States3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Guests bring credible science and compassionate storytelling.
Shows empathy and practicality for families navigating dementia.
A good resource for caregivers seeking actionable guidance and support.

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Talking Points

Recent interactions between the hosts and their guests.

Four Years to Get a Memory Test: An Early-Onset Alzheimer's Diagnosis at 60 | Sean Terwilliger
Q: Tell us about when you first began noticing changes in your memory and what were the early symptoms that made you realize something more serious might be going on?
Sean describes a triggering event (a prior TIA) that left him with slower speech, word-finding difficulties, and balance issues. He initially dismissed it as a new normal and sought a baseline cognitive test, which revealed concerns after multiple doctors and years of searching.
How to Know When It's Time for More Dementia Care, According to a Long-Term Care Expert | Cory Fosco
Q: What different types of care are available, and how should families start evaluating them?
Fosco outlines home care, adult day services, memory care, assisted living, and skilled nursing, stressing tours, asking about staffing ratios, turnover, and evidence of a strong culture; starting small with a folder of information and consulting a geriatric care manager can build a solid foundation.
How to Know When It's Time for More Dementia Care, According to a Long-Term Care Expert | Cory Fosco
Q: Why do families often wait too long to have these conversations about care transitions?
He notes a fear that placement equals abandonment and discusses denial and guilt; framing conversations as ongoing care planning rather than a single decision helps families approach timing more calmly and compassionately.
How to Know When It's Time for More Dementia Care, According to a Long-Term Care Expert | Cory Fosco
Q: What are some of the clear signs that a person with dementia may need more care than they're currently receiving at home?
Cory Fosco explains the four signals—safety, medical, social/emotional, and caregiver health—such as wandering, weight loss, hygiene changes, social withdrawal, and caregiver burnout, and emphasizes logging changes over time to detect a pattern suggesting higher care is needed.
What to Remember When You Are Forgetting: Living Well With Dementia | Dr. Zaldy Tan
Q: From your perspective, when is the right time to see a doctor?
Context matters; general memory concerns aren't black-and-white. Look for meaningful changes from baseline, and if there are significant functional or memory problems, it's worth getting evaluated and possibly referred to a memory specialist.

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Frequently Asked Questions About Brain Talk

What is Brain Talk about and what kind of topics does it cover?

Brain Talk covers Alzheimer's and dementia from multiple angles, featuring personal narratives from patients and caregivers, clinical and scientific experts, and researchers exploring biomarkers, treatments, diet, and care strategies. Episodes highlight real-world experiences with early-onset dementia, brain health research, and practical guidance for families navigating diagnosis, care planning, and trials. A notable strength is its blend of patient voices with expert insight and creative perspectives from the arts and caregiving communities, offering actionable tips and resources for listeners at different stages of dementia. This mix makes it useful for both families seeking guidance and professionals scouting credible guests and topics ... more

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Which podcasts are similar to Brain Talk?

These podcasts share a similar audience with Brain Talk:

1. The Mel Robbins Podcast
2. The Oprah Podcast
3. unPAUSED with Dr. Mary Claire Haver
4. Chasing Life with Dr. Sanjay Gupta
5. The Alzheimer's Caregiver Podcast

How many episodes of Brain Talk are there?

Brain Talk launched 6 years ago and published 148 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Brain Talk?

Recent guests on Brain Talk include:

1. Francisco Rios
2. Zahydie Burgos
3. Scott Cunningham
4. Anne Cunningham
5. Sean Terwilliger
6. Michael Alosco
7. Dr. Gil Carvalho
8. Cory Fosco

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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