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Brain Talk | Being Patient for Alzheimer's Patients and Caregivers

Being Patient
Alzheimer's Disease
Dementia
Brain Health
Cognitive Decline
Clinical Trials
Eli Lilly
Seizures
Parkinson's Disease
Cognitive Function
Memory
Monoclonal Antibody Therapy
Glen Campbell
Amyloid Plaque
Alzheimer's
Solanethamab
Caregiving
Neurology
Deep Brain Stimulation
Frontotemporal Dementia
Leaf (book)

Being Patient is the leading online community for Alzheimer's, dementia patients, caregivers. We talk to experts about Alzheimer's news, advice, stories and support! Visit www.beingpatient.com for the latest Alzheimer's news and researches!

PublishesWeeklyEpisodes103Founded5 years ago
Number of ListenersCategory
Science

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Artwork for Brain Talk

Latest Episodes

In our latest “Ask Teepa Anything” Live Talk, dementia care expert Teepa Snow answers caregivers’ real-world questions — from safe ways to help a person up after a fall to medication trade-offs, late-stage planning, and day-to-day communication.

Sno... more

Dr. Laura Baker, PhD, is a professor of gerontology and geriatric medicine at Wake Forest University School of Medicine and the principal investigator of the U.S. POINTER study, a large, Alzheimer’s Association–backed trial inspired by Finland’s land... more

Originally from Argentina, educator and creative entrepreneur Laura Tobi, 58, moved to the U.S. 26 years ago. An educational designer by training, she has worked with labor unions, corporations, government, and public and private school systems, late... more

Scientists are still searching for effective treatments for neurodegenerative disorders like Alzheimer's, ALS, and chronic traumatic encephalopathy (CTE). In his pioneering research, neurosurgeon Dr. Christopher Duma is testing whether stem cell ther... more

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Recent Guests

Dr. Christopher Duma
Board certified neurosurgeon and medical director at Hoag Memorial Presbyterian Hospital
Regeneration Biomedical
Episode: Stem Cell Therapy for Neurodegenerative Diseases
Susie Singer Carter
Producer of 'No Country for Old People', advocating for improved care for Alzheimer's patients
Co-Producer of No Country for Old People
Episode: No Country for Old People: Exposing the Care Crisis
Rick Mountcastle
Co-Producer of 'No Country for Old People', former federal prosecutor known for prosecuting Purdue Pharma
Episode: No Country for Old People: Exposing the Care Crisis
Alice Bailey
Patient advocate and speaker on early-onset Alzheimer's
Council of Black Dementia Minds
Episode: Early-onset Alzheimer’s: How Alice Bailey Took Control
Dr. Sid O'Bryant
Executive Director of the Institute for Translational Research, principal investigator of the Health and Aging Brain Study
Institute for Translational Research
Episode: An Inside Look at the Health & Aging Brain Study
Dr. Michelle Papka
Investigator on the HOPE Study; conducts research on Alzheimer's treatment
Cognito Therapeutics
Episode: A Sensory Stimulation Headset for Alzheimer’s? A Neuropsychologist on the Clinical Trial
Dr. Howard Fillit
Co-founder and Chief Scientific Officer at the Alzheimer's Drug Discovery Foundation
Alzheimer's Drug Discovery Foundation
Episode: Dr. Howard Fillit: The Future of Precision Medicine in Alzheimer’s Disease Treatment
Sam Simon
A former public affairs professional and performer sharing his experience living with Alzheimer's disease.
Episode: Samuel A. Simon: Tackling His “Existential Journey” Onstage in “Dementia Man”
Simone E. Morris
A coach, trainer, speaker, and author of a children's book about dementia
Episode: Simone E. Morris and Millie Walton: Sharing “Grammy P’s” Story for Other Families Like Theirs

Host

Deborah Kahn
Founder of Being Patient

Reviews

4.6 out of 5 stars from 10 ratings
  • Thanks

    Very helpful and glad to find ur podcast to help managing the ‘journey’ with more clarity.

    Apple Podcasts
    5
    JYC-L
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners express gratitude for the supportive and informative nature of the content.
Many find the discussions helpful in navigating their own experiences with Alzheimer's and dementia.

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Talking Points

Recent interactions between the hosts and their guests.

Behavioral Variant FTD: A Navy Vet Shares His Story
Q: What areas are you paying more attention to than maybe you did in the past?
Chris has noted some forgetfulness of everyday tasks, but maintains a positive outlook.
Behavioral Variant FTD: A Navy Vet Shares His Story
Q: Can you tell me about really what you did, how you felt and really what you're doing today?
Chris expressed that he felt shocked upon diagnosis, but found comfort in his faith and support from Deborah.
Behavioral Variant FTD: A Navy Vet Shares His Story
Q: What types of, how long did it take before Chris was diagnosed with the behavioral variant of FTD?
It initially took about two years, but it can often take three to four years for others to be diagnosed.
Behavioral Variant FTD: A Navy Vet Shares His Story
Q: Deborah, what were you seeing in Chris that was out of the ordinary?
Debra noted significant behavioral changes in Chris, despite his lack of self-awareness due to agnosognosia.
Living Creatively With Alzheimer’s: Laura Tobi’s Story
Q: How did being a caregiver before you were diagnosed help you navigate your own Alzheimer's journey?
Laura emphasized that her experience made her proactive in researching and seeking dedicated professionals for her treatment.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About Brain Talk

What is Brain Talk about and what kind of topics does it cover?

Consistently centered on the experiences of those affected by Alzheimer's and dementia, this podcast features insightful dialogues with a diverse array of guests including healthcare professionals, caregivers, and individuals managing their own cognitive health challenges. Topics frequently addressed range from innovative treatment methods and clinical trials to coping strategies for families, showcasing both expert opinions and personal narratives. The unique blend of scientific information with real-life stories provides listeners with both hope and practical advice for navigating the complexities of Alzheimer's disease.

A noteworthy aspect of this podcast is its commitment to bridging the gap between cutting-edge research and everyday e... more

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Brain Talk launched 5 years ago and published 103 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Brain Talk?

Recent guests on Brain Talk include:

1. Dr. Christopher Duma
2. Susie Singer Carter
3. Rick Mountcastle
4. Alice Bailey
5. Dr. Sid O'Bryant
6. Dr. Michelle Papka
7. Dr. Howard Fillit
8. Sam Simon

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