
Hi everyone! My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.
Part of our effort is to raise awareness whi... more
| Publishes | Twice monthly | Episodes | 47 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Health & FitnessMedicine | |||

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Amyloidosis is a great masquerader, presenting with a wide array of seemingly unconnected symptoms. This reality is likely one of the biggest reasons for Amyloidosis being mis- and under-diagnosed. Patients often go years, seeing s... more
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Thankfully for patients, treatments for amyloidosis continue to advance. One of the newest is CAR-T cell therapy for AL Light Chain amyloidosis. According to the Cleveland Clinic, this therapy targets the B-cell maturation antigen (... more
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In this episode of All Things Amyloid, we hear from Dr. Angela Dispenzieri, hematologist from the Mayo Clinic. Adapted from her video “Why is amyloidosis so often misdiagnosed?”, Dr. Dispenzieri discusses the top three reasons why a... more
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Having AL amyloidosis, a disease that at present is incurable, can be an emotional rollercoaster. Over the course of one’s journey, patients may go on treatment post-diagnosis, go off treatment if they have achieved complete or very... more
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It’s key for front-line healthcare providers to know about amyloidosis and the most common symptoms. They can play a valuable role in early suspicion, leading to early diagnosis, and life-changing benefits for patients. Today our gu... more
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All of us have seen the amazing forward progress over the last 10 years in the battle against amyloidosis – so much has changed -- from knowledge about the disease, to diagnosis, treatment, and patient outlook. It truly is astoundin... more
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In this episode of All Things Amyloid, we hear from Dr. Jeffrey Zonder from the Karmanos Cancer Institute. Adapted from his video “Why is amyloidosis bad for your kidneys?” He provides a brief summary of amyloidosis. He’ll go on to ... more
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Advanced kidney failure can be an unfortunate reality to patients with AL amyloidosis. Physicians often discuss two paths forward - a kidney transplant and dialysis, which is often thought of as a bridge while waiting for a transpla... more
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The show centers on amyloidosis, blending patient storytelling with expert medical insight to illuminate diagnosis, treatment, and life with a rare disease. Across episodes, listeners hear from clinicians, researchers, and patient communities about early detection, organ involvement, evolving therapies, and the realities of living with AL and ATTR amyloidosis. A recurring strength is the strong emphasis on advocacy, patient education, and building support networks—covering topics from dialysis and transplantation to policy, accessibility, and clinical trials. A notable feature is the consistent inclusion of patient and caregiver perspectives alongside expert commentary, which helps demystify complex medical concepts and offers practical gui... more
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All Things Amyloid launched 2 years ago and published 47 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on All Things Amyloid include:
1. Angela Dispenzieri
2. Dr. Kevin Alexander
3. Jeffrey Zonder
4. Dr. Nitasha Sarswat
5. Dr. Michael Dobbs
6. Muriel Finkel
7. Kathi Luis
8. Jenelle Murphy
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