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Die Neuromyelitis optica Spektrum Erkrankungen, kurz NMOSD, sind eine Gruppe sehr seltener Erkrankungen mit circa 1200 Betroffenen in Deutschland. Die Symptome der NMOSD sind ähnlich wie die der Multiplen Sklerose (MS), nämlich wiederkehrende, schubförmige Entzündungen des zentralen Nervensystems, die vor allem den Sehnerv und das Rückenmark betreffen. Wie bei allen Erkrankungen kann die Zeit zwis... more

PublishesInfrequentlyEpisodes9Founded2 months ago
Language
German
Categories
Health & FitnessMedicineScience

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Latest Episodes

Staffel 3, Episode 2

In dieser Episode unseres Alexion Patientenpodcasts sprechen wir über eine einschneidende Situation: eine schwerwiegende Diagnose mitten in den 20ern – einer Lebensphase, in der vieles erst beginnt. Unser Moderator Markus Oppel u... more

Staffel 3 Episode 1

Unser Moderator Markus Oppel spricht mit Matthias Fuchs, einem sehr engagierten NMOSD Patienten in der deutschen NMOSD Community. Er hat zusammen mit seiner Frau Chrissi unter anderem Projekte wie den Social Media Kanal wir.und.nm... more

Staffel 2 Episode 2

In der neuen Staffel Let’s talk NMOSD liegt unser Schwerpunkt nicht mehr länger auf der NMOSD Gefühlskurve , sondern wir legen den Fokus auf konkrete Alltagsthemen. In der zweiten Episode geht es um Angehörige. Wie verändert sich ... more

Staffel 2 Episode 1

In der neuen Staffel Let’s talk NMOSD liegt unser Schwerpunkt nicht mehr auf der NMOSD Gefühlskurve , sondern wir legen den Fokus auf konkrete Themen. In der ersten Episode geht es um Fragen wie: Kann ich NMOSD vererben? Hat eine ... more

Wie kann man seinen Alltag als Betroffener mit NMOSD organisieren und Kontakt zu anderen Betroffenen aufnehmen und sich austauschen? Wie ist die Sicht von Angehörigen? Und welche Ziele kann man erreichen?

alexion.de/nmosd-gefuehlskurve

Wie wird die Erkrankung behandelt und was bedeutet es, einen lebenslangen Begleiter zu haben?

Nach der Diagnose geht es eigentlich erst richtig los. Die akute Schubtherapie wird von einer Therapie zur Vermeidung von Schüben, einer sogenannten Schubpr... more

Wie erleben Patient:innen die Diagnose und was ändert sich im Leben der Patient:innen und ihrer Familien?

Wie erleben Patient:innen die Diagnose und was ändert sich im Leben der Patient:innen und ihrer Familien? Welche Möglichkeiten gibt es, Hilfe zu... more

Nach dem ersten Schub geht es für viele Betroffene auf eine - häufig längere - Reise, bis die Diagnose NMOSD gestellt wird.

Nach dem ersten Schub geht es für viele Betroffene auf eine - häufig längere - Reise, bis die Diagnose NMOSD gestellt wird. Vi... more

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Let's talk NMOSD launched 2 months ago and published 9 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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