It Happened To Me: A Rare Disease and Medical Challenges Podcast
Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn an... more
| Publishes | Twice monthly | Episodes | 89 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Category | Science | |||
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Latest Episodes
Infertility can affect nearly every part of a person’s life, from their emotional well-being and relationships to their finances, identity, and sense of control over the future.
After spending six years trying to conceive, navigating complex fertili... more
In this episode of It Happened To Me, hosts Cathy Gildenhorn and Beth Glassman are joined by Kelly Berger and Avery Roberts, two women living with congenital muscular dystrophy and the co-hosts of the podcast Wheel Talk.
Congenital muscular dystroph... more
For most of her life, Sadie Dingfelder thought she was simply quirky: bad with directions, unusually clumsy, unable to recognize faces, and disconnected from many of her own memories. Then, a startling encounter in a grocery store led her to question... more
In this episode of It Happened To Me, we continue our conversation with Dr. David Traster, a clinical neurologist and educator who works with patients experiencing complex neurological conditions.
In Part 1, Dr. Traster introduced clinical neurology... more
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- I really really love the concept of this podcastd, but the host's style of hosting it, ugh.
I love learning about interesting rare diseases and what life is like for people who have to live with them. The podcast about rare disease awareness that I was addicted to had discontinued, so I was so excited when I found this one and saw that it was still running. Then life got distracting and this podcast ended up sitting in my library for who knows how long. a time finally came to listen to episode 82, the episode about Guillain-Barre syndrome. I pressed Play and... Yikes. When the host was... more
Apple Podcasts1Tia Lorraine
United States3 months ago - Everyone should listen!
Cathy and Beth are thoughtful, empathetic hosts who help shine a much-needed light on rare diseases. Most importantly, they emphasize how to live your best life despite these health challenges.
Apple Podcasts5FavoritestepchildUnited States8 months ago - Curiosity and Compassionate
Cathy and Beth are wonderful hosts. They bring their interest, compassion and curiosity to every interview. I love hearing peoples stories and learn.
Apple Podcasts5KrissyD63United States2 years ago - Well done podcast
Thank you Cathy and Beth for sharing such personal health issues. It was educational and informative, specifically how to deal with challenging medical issues, how and where to get help, and most important, to maintain a positive mindset to go forward. You both are an inspiration and I applaud your generosity for sharing your stories and for the work you continue to do for others. Best wishes to you both!
Apple Podcasts5candy208433410United States4 years ago - Educates and Builds Community
I thoroughly enjoyed listening to the trailer and the first three episodes of It Happened to Me. Cathy and Beth are providing a service by sharing their rare diseases and health challenges and providing a forum for others to do the same. This serves as community building for not only those facing health issues but also their family and friends and the medical professionals trying to diagnose, treat, and research rare diseases. I look forward to listening to all of the future episodes of this pod... more
Apple Podcasts5JoeBaker5682United States4 years ago
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Apple Podcasts | #244 |  Philippines/Science |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
The show centers on real people facing rare diseases and complex medical challenges, blending expert insight with personal storytelling. Episodes often pair clinicians, researchers, and advocates with patients or family members to explore diagnosis, treatment options, lived experience, and practical coping strategies. A standout element is its emphasis on community, advocacy, and actionable guidance for navigating healthcare, testing, and support networks, often weaving in genetics, mental health, and quality-of-life considerations. The format appears to value empathy and practical education, making it helpful for listeners seeking understanding, resources, and connection in the rare-disease space.
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Which podcasts are similar to this podcast?
These podcasts share a similar audience with this podcast:
1. Serialously with Annie Elise
2. Up First from NPR
3. The Daily
4. This Is Actually Happening
5. Dateline NBC
How many episodes of this podcast are there?
this podcast launched 4 years ago and published 89 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Avery Roberts
2. Kelly Berger
3. Sadie Dingfelder
4. David Traster
5. Drew Motiv
6. Ra-Jon James
7. Theresa Lyons
8. Kirsten Karshmer
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