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Artwork for It Happened To Me: A Rare Disease and Medical Challenges Podcast

It Happened To Me: A Rare Disease and Medical Challenges Podcast

Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)

The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn an... more

PublishesTwice monthlyEpisodes84Founded3 years ago
Number of ListenersCategory
Science

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Artwork for It Happened To Me: A Rare Disease and Medical Challenges Podcast

Latest Episodes

A sensitive content warning: this episode includes discussion of substance addiction, mental health struggles, suicide attempts, and recovery.

If you or someone you know is in immediate danger or at risk of harm, call 911 or go to the nearest emerge... more

Guest Ra-Jon James opens up about his medical emergency that turned his world upside down in an instant. Ra-Jon was diagnosed with Guillain-Barré Syndrome (GBS), a rare neurological condition where the body’s immune system attacks the nerves, leading... more

YouTube

We welcome back Meredith Mangold to shift the conversation from the medical "odyssey" to the human connection. While the first part of Meredith’s story (Episode 76) focused on her grueling search for a diagnosis and treatment for ulcerative colitis, ... more

YouTube

In this episode we explore the complex world of autism spectrum disorder (ASD) in children, featuring practical guidance from Dr. Teresa Lyons, an autism expert, scientist, and parent of a child with autism.

Dr. Theresa Lyons is an international aut... more

YouTube

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Reviews

4.8 out of 5 stars from 47 ratings
  • I really really love the concept of this podcastd, but the host's style of hosting it, ugh.

    I love learning about interesting rare diseases and what life is like for people who have to live with them. The podcast about rare disease awareness that I was addicted to had discontinued, so I was so excited when I found this one and saw that it was still running. Then life got distracting and this podcast ended up sitting in my library for who knows how long. a time finally came to listen to episode 82, the episode about Guillain-Barre syndrome. I pressed Play and... Yikes. When the host was... more

    Apple Podcasts
    1
    Tia Lorraine
    United States20 days ago
  • Everyone should listen!

    Cathy and Beth are thoughtful, empathetic hosts who help shine a much-needed light on rare diseases. Most importantly, they emphasize how to live your best life despite these health challenges.

    Apple Podcasts
    5
    Favoritestepchild
    United States6 months ago
  • Curiosity and Compassionate

    Cathy and Beth are wonderful hosts. They bring their interest, compassion and curiosity to every interview. I love hearing peoples stories and learn.

    Apple Podcasts
    5
    KrissyD63
    United States2 years ago
  • Well done podcast

    Thank you Cathy and Beth for sharing such personal health issues. It was educational and informative, specifically how to deal with challenging medical issues, how and where to get help, and most important, to maintain a positive mindset to go forward. You both are an inspiration and I applaud your generosity for sharing your stories and for the work you continue to do for others. Best wishes to you both!

    Apple Podcasts
    5
    candy208433410
    United States3 years ago
  • Educates and Builds Community

    I thoroughly enjoyed listening to the trailer and the first three episodes of It Happened to Me. Cathy and Beth are providing a service by sharing their rare diseases and health challenges and providing a forum for others to do the same. This serves as community building for not only those facing health issues but also their family and friends and the medical professionals trying to diagnose, treat, and research rare diseases. I look forward to listening to all of the future episodes of this pod... more

    Apple Podcasts
    5
    JoeBaker5682
    United States3 years ago

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this podcast launched 3 years ago and published 84 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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