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Wat betekent de diagnose Congenitale Hernia Diafragmatica voor jouw kind, je eigen leven en dat van broertjes en zusjes. Kun je het ver schoppen in de sport, met een breuk in je middenrif? Kun je als opa of oma het verschil maken voor je kleinkind dat na de geboorte aan de beademing moet? En hoeveel ruimte is er straks om als jongere met een beperkte longcapaciteit onbezonnen de kroeg in te duiken... more

PublishesTwice monthlyEpisodes21Founded4 years ago
Language
Dutch
Number of ListenersCategories
ParentingKids & Family

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Latest Episodes

Hoe verder: in gesprek met de behandelaren in Nederland

In deze aflevering hoor je tweeNederlandse behandelaren die de FETO-behandeling uitvoeren: Esther Sikkel (Radboudumc) en Philip de Koninck (Erasmus MC). Zij delen hun visie op deontstane situat... more

Juridisch advies: in gesprek met Simone Koelewijn

PlatformCHD vreest dat in de toekomstvaker levensreddende behandelingen zullen worden afgewezen. Jurist Simone Koelewijn van Nysingh Advocaten gaat in op deze specifieke casus en verkentsamen met Pla... more

De deskundige: in gesprek met Prof.dr. Jan Deprest

In deze aflevering deelt Prof. dr. JanDeprest, internationaal expert op het gebied van FETO, zijn zorgen over de recente ontwikkelingen. Vanuit Leuven behandelt hij al jarenlang Nederlandsepatiënten... more

De context: in gesprek met Frank Meijer

Frank Meijer, voorzitter en oprichter van patiëntenvereniging Platform CHD, reageert op de casus van Pieter enRianne. Hij legt uit waarom deze ontwikkeling volgens hem zeer zorgelijk is en beschrijft wat er is... more

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1. De Stemming van Vullings en De Rooy
2. De Dag
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Geboren met CHD launched 4 years ago and published 21 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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