Confessions of a Rare Disease Mama
Jillian ArnoldJoin me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
| Publishes | Weekly | Episodes | 46 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | MedicineParentingHealth & FitnessKids & Family | |||
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Latest Episodes
I hope yall have a pen and paper to write down ALL the amazing travel tips this weeks guest shares with us! Kristy Cook is a mother of four (one who is diagnosed with a rare form of Epilepsy) & the founder of Accessible Adventures. She believes that ... more
There are SO many complex emotions that come along with the question of potentially having more kids- ESPECIALLY if you have one (or in my case, two) that have severe medical needs. There are many pros and cons to weigh and its something that has bee... more
This week I sit down with founder and host of The Rare Life, Madeline Cheney. She started her podcast in 2020, but the seed was planted 3 years prior—when doctors found troubling results at her 20-week ultrasound that pointed to a rare syndrome durin... more
This week I sit down with the beautiful, wise and talented, Alena Kupchella Gourley. Alena is a Licensed Social Worker, Clinical Hypnotherapist, psychic, medium and spiritual guide, who specializes in hypnotic healing and past life regression. more
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Reviews
- Incredible Rare Disease Podcast
Jillian is an amazing rare disease advocate for her beautiful children and puts a lot of thought into each of her podcasts. I wish podcasts like hers were available when my son was diagnosed. It’s so reassuring to hear experiences of other rare parents because it’s a tremendously different, challenging, emotional, and life-changing journey parenting a child with a life limiting illness.
Apple Podcasts5Faery77dust
United States7 months ago - Best rare disease parent podcast out!
Kudos to Jillian for taking the time to put this podcast out into the world. As a mama of a medically complex kiddo with a rare, terminal genetic disease, it means so much to have someone out there who gets it. Her words and those of her guests make me feel so much less alone. more
Apple Podcasts5Salsara320United States9 months ago - Thank you
Fellow rare disease mama ❤️ sharing your story has been such a blessing to hear! Thank you for taking the time to do this!
Apple Podcasts5KJE85United States10 months ago - Well done and so needed
This podcast is such a help to rare disease families like mine. Probably true for anyone facing complex medical care. more
Apple Podcasts5DD-manUnited States2 years ago - Heartfelt and real
I too am a mama to a medically complex child- although he doesn’t have a rare disease. I laugh and cry with you while listening to your episodes. You put words to so many thoughts and feelings that are hard to express to just anyone. Thank you for your honesty and thoughtfulness!
Apple Podcasts5Kova's MommyUnited States2 years ago
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Chart Rankings
Apple Podcasts | #109 |  Ireland/Kids & Family/Parenting |
Apple Podcasts | #205 | Ireland/Kids & Family |
Audience
Listeners, engagement and demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Engagement Score | |||
|---|---|---|---|---|---|
| Primary Location | Social Media Reach | ||||
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