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Confessions of a Rare Disease Mama

Jillian Arnold

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.

PublishesInfrequentlyEpisodes67Founded4 years ago
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Kids & FamilyParentingMedicineHealth & Fitness

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Artwork for Confessions of a Rare Disease Mama

Latest Episodes

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The holidays can feel magical... or overwhelming. For parents of children with medical complexity, special needs, or chronic illnesses, the season often comes with invisible burdens and unspoken expectations. In this episode, I talk a... more

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After a four-month break, we’re back and catching up on everything! In this episode, I sit down with my partner-in-crime (and life), Donald, to chat about what life has looked like lately for our family. From three back-to-back road t... more

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Ever feel like the world is just... too much? Whether it's the endless news cycle, the weight of caregiving, or just the everyday overwhelm, you’re not alone. In this episode, I’m opening up about what happens to our nervous system wh... more

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In this casual solo episode, I’m just catching you up on what life has looked like lately over here. From solo parenting while Donald’s been away for job training, to the kids catching colds (because of course they did while Donald's ... more

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Reviews

5.0 out of 5 stars from 57 ratings
  • Helps to inspire joy

    My brother has a rare disorder, and I was terrified to have children because of my experience. This podcast (and a carrier screening ) helped me overcome my fear and have a baby. It helped me to understand there is joy in having children regardless of ability

    Apple Podcasts
    5
    aw-s
    United Statesa year ago
  • Thank you, Jillian

    Thank you for sharing your family’s story with us. I’m sure it is not easy to be vulnerable to strangers, but you have a village of listeners who want to listen and are touched and inspired by the love and joy you share with your babies. God bless you and your family always!

    Apple Podcasts
    5
    Becca Tri
    United Statesa year ago
  • Love this

    As a fellow special needs mom I appreciate hearing all of the good info that this podcast provides. While my child has different needs than Jillian’s, it is all good info. Especially love the episode about breaking ties with a therapist that’s not working for your child as I’m currently dealing with that too! Great podcast to add to your list!!

    Apple Podcasts
    5
    SLapin06
    United Statesa year ago
  • So real and enjoyable to listen to

    Stumbled upon Jillian on social media via another medically complex parent and then started listening to her podcast. I started from the beginning and have been binging! I love how real she is about her struggles but also the joys. Love hearing the updates about her kids and the progress they’re making

    Apple Podcasts
    5
    Emily R White
    United States2 years ago
  • Jillian is the Best!

    I absolutely love listening to this podcast! Jillian talks about topics that are so relatable. It’s so nice to know that another mom is feeling the same way as me. It’s hard to explain our situation to others who don’t have special needs kids, Jillian makes me feel so seen! Her episode on wondering if our kids diagnosis was karma coming back from some things we had done earlier in life hit me right in the core, I can’t tell you how many times I have felt that.

    Apple Podcasts
    5
    NPCMomma
    United States2 years ago

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Which podcasts are similar to Confessions of a Rare Disease Mama?

These podcasts share a similar audience with Confessions of a Rare Disease Mama:

1. The Rare Life
2. Rare Mamas Rising: A Rare Disease Mom Podcast
3. Crime Junkie
4. The Daily
5. I Think Not!

How many episodes of Confessions of a Rare Disease Mama are there?

Confessions of a Rare Disease Mama launched 4 years ago and published 67 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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