Rephonic
Artwork for Confessions of a Rare Disease Mama

Confessions of a Rare Disease Mama

Jillian Arnold
Grief
Dollywood
Knoxville, Tennessee United States
Medical Care
Family Grief
Special Needs Parents
Holiday Season
Asheville, North Carolina United States
Rhinovirus Hospitalization
Medicaid
Soaring Together

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.

PublishesMonthlyEpisodes70Founded4 years ago
Number of ListenersCategories
ParentingHealth & FitnessKids & FamilyMedicine

Listen to this Podcast

Artwork for Confessions of a Rare Disease Mama

Latest Episodes

Send us Fan Mail

There’s the physical work of caregiving… and then there’s everything happening inside your head.

In this episode, I’m talking about the invisible mental load that comes with being the primary caregiver to two medically complex chil... more

Send us Fan Mail

Just when you think you’ve made peace with your life, grief comes barreling back into the station. All aboard! 

This weekend was a really good one. We had family in town, celebrated birthdays and baptisms, spent time with people we... more

Send us Fan Mail

When your child receives a life-altering diagnosis, you leave the hospital with a care plan.

...But no one gives you a coping plan.

In this episode, I’m talking about the part no one prepares you for: the emotional aftermath of be... more

Send us Fan Mail

The holidays can feel magical... or overwhelming. For parents of children with medical complexity, special needs, or chronic illnesses, the season often comes with invisible burdens and unspoken expectations. In this episode, I talk... more

Key Facts

Accepts Sponsors
Contact Information
Podcast Host
Number of Listeners
Find out how many people listen to this podcast per episode and each month.

Similar Podcasts

People also subscribe to these shows.

The Rare Life
The Rare LifeMadeline Cheney
Once Upon A Gene
Once Upon A GeneEffie Parks
Moms Talk Autism Podcast
Moms Talk Autism PodcastShannon Korza, Brittney Crabtree, Tash Dillmon, and Jean Mayer
I've Had It
I've Had ItJennifer Welch and Angie Sullivan

Reviews

5.0 out of 5 stars from 58 ratings
  • Helps to inspire joy

    My brother has a rare disorder, and I was terrified to have children because of my experience. This podcast (and a carrier screening ) helped me overcome my fear and have a baby. It helped me to understand there is joy in having children regardless of ability

    Apple Podcasts
    5
    aw-s
    United States2 years ago
  • Thank you, Jillian

    Thank you for sharing your family’s story with us. I’m sure it is not easy to be vulnerable to strangers, but you have a village of listeners who want to listen and are touched and inspired by the love and joy you share with your babies. God bless you and your family always!

    Apple Podcasts
    5
    Becca Tri
    United States2 years ago
  • Love this

    As a fellow special needs mom I appreciate hearing all of the good info that this podcast provides. While my child has different needs than Jillian’s, it is all good info. Especially love the episode about breaking ties with a therapist that’s not working for your child as I’m currently dealing with that too! Great podcast to add to your list!!

    Apple Podcasts
    5
    SLapin06
    United States2 years ago
  • So real and enjoyable to listen to

    Stumbled upon Jillian on social media via another medically complex parent and then started listening to her podcast. I started from the beginning and have been binging! I love how real she is about her struggles but also the joys. Love hearing the updates about her kids and the progress they’re making

    Apple Podcasts
    5
    Emily R White
    United States2 years ago
  • Jillian is the Best!

    I absolutely love listening to this podcast! Jillian talks about topics that are so relatable. It’s so nice to know that another mom is feeling the same way as me. It’s hard to explain our situation to others who don’t have special needs kids, Jillian makes me feel so seen! Her episode on wondering if our kids diagnosis was karma coming back from some things we had done earlier in life hit me right in the core, I can’t tell you how many times I have felt that.

    Apple Podcasts
    5
    NPCMomma
    United States2 years ago

Top Parenting Podcasts

Parenting With Psychology
Parenting With PsychologyDr. Lindsay Emmerson
The Dr. Laura Podcast
The Dr. Laura PodcastDr. Laura Schlessinger & SiriusXM
Birth of a Parent
Birth of a ParentEarly Childhood Matters with Michael Feigelson
Always Here
Always HereAbby Howard and Abby Howard | Daylight Media

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per EpisodeGender SkewLocation
InterestsProfessionsAge Range
Household IncomeSocial Media Reach

Frequently Asked Questions About Confessions of a Rare Disease Mama

Where can I find podcast stats for Confessions of a Rare Disease Mama?

Rephonic provides a wide range of podcast stats for Confessions of a Rare Disease Mama. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Confessions of a Rare Disease Mama and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Confessions of a Rare Disease Mama get?

Rephonic provides a full set of podcast information for four million podcasts, including the number of listeners. View further listenership figures for Confessions of a Rare Disease Mama, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.

What are the audience demographics for Confessions of a Rare Disease Mama?

Rephonic provides comprehensive predictive audience data for Confessions of a Rare Disease Mama, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.

How many subscribers and views does Confessions of a Rare Disease Mama have?

To see how many followers or subscribers Confessions of a Rare Disease Mama has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Confessions of a Rare Disease Mama?

These podcasts share a similar audience with Confessions of a Rare Disease Mama:

1. The Rare Life
2. Once Upon A Gene
3. Moms Talk Autism Podcast
4. The Telepathy Tapes
5. I've Had It

How many episodes of Confessions of a Rare Disease Mama are there?

Confessions of a Rare Disease Mama launched 4 years ago and published 70 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Confessions of a Rare Disease Mama?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for Confessions of a Rare Disease Mama?

Rephonic pulls ratings and reviews for Confessions of a Rare Disease Mama from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.

How do I access podcast episode transcripts for Confessions of a Rare Disease Mama?

Rephonic provides full transcripts for episodes of Confessions of a Rare Disease Mama. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.

Find and pitch the right podcasts

We help savvy brands, marketers and PR professionals to find the right podcasts for any topic or niche. Get the data and contacts you need to pitch podcasts at scale and turn listeners into customers.
Try it free for 7 days