Artwork for Confessions of a Rare Disease Mama

Confessions of a Rare Disease Mama

Jillian Arnold
Kids & FamilyParenting

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.


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Latest Episodes

Join me as I recap Romans big FOURTH birthday celebration! I also look back on how amazing and difficult the past four years of being a mother have been. We have come a long way from where we started and I can say without a doubt that the person who ... more

2 days ago

This week I have my husband, Donald, join me to talk all about our first ever road trip with our two (medically complex) kids. It was quite an adventure and also 100% worth all the stress beforehand! I hope listening to our experience gives all you o... more

9 days ago

This episode I'm catching you up on what's been happening in our week and discussing the importance of learning to let grief and joy co-exist. As summer comes to a close, it's time for kid's to go back to school and cue: all the back to school photos... more

16 days ago


5 out of 5 stars from 28 ratings
  • Open and Honest

    I love how open and honest Jillian is about her life and what is going on. It helps to feel connected.

    Apple Podcasts
    Alexandra Wyman
    United States2 months ago
  • Can’t recommend enough!!!

    Found this podcast through a Support group on Facebook for parents of children with epilepsy. From the first episode I was hooked. Podcasts like Jillian’s is literally my therapy. Since the first episode I cannot get enough!! Being a special needs parent can be extremely isolating. When you listen to this podcast you know your not alone. She is completely honest and real. No sugar coating here lol which I absolutely love, and appreciate so much. Positive, hopeful yet you still hear about the h... more

    Apple Podcasts
    United States2 months ago
  • For all the rare caregivers

    Jillian is the queen of managing it all because you do what you gotta do! Love listening to her talk through all the ins and outs and ups and downs of life with her precious family.

    Apple Podcasts
    United States2 months ago
  • So insightful

    This is a must listen for all parents!

    Apple Podcasts
    United States2 months ago
  • Raw, real and so valuable

    I have been telling Jillian that she needed to start a podcast for a couple years now and I’m blown away with how this show has come together! She is so easy to listen to and her episodes are much needed raw and vulnerable real life chats that all rare disease parents need to listen in on. Thank you for putting this show into the world!!!!

    Apple Podcasts
    Ali from @aligned.designs
    United States2 months ago

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Frequently Asked Questions About Confessions of a Rare Disease Mama

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How many episodes of Confessions of a Rare Disease Mama are there?

Confessions of a Rare Disease Mama launched 5 months ago and published 15 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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