The Rare Life
Madeline CheneyThis is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working... more
| Publishes | Weekly | Episodes | 192 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | ParentingKids & Family | |||
Listen to the Podcast
Latest Episodes
Friendship, especially with those who don’t have disabled children, gets more complicated once you’ve had your own child with disabilities. It’s not necessarily fair, but it doesn’t change the fact that we often end up interacting differently with fr... more
Making the decision to leave your partner is no small thing, but sometimes, the rifts that come from the stresses of life as medically complex parents can erode our relationships. more
When her son Jeremiah was first born, Aneesa had no medical training or experience. But as it became clear that something was out of the ordinary with Jeremiah’s health, she did what so many of us do when our kids need support: she started advocating... more
As heart-breaking as it is, if you’ve been in the rare disease community for long enough, you probably know someone, maybe even someone close to you, who has lost a child. And because that potential reality looms large for so many of us, this loss ca... more
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Reviews
- A belonging I longed for
Thank You Madeline, so much for The Rare Life. Your content touches more people than you may think. I am a mother of a medically complex child, though he does not have a rare diagnosis of any kind. I had a complicated pregnancy and traumatic birth with my son Vincent, who arrived unduly early at 25 weeks gestation. Due to his very early arrival, he has a laundry list of diagnoses. He’s now 17 months and I only recently saw “medically complex child” written in his medical record. Interestingly en... more
Apple Podcasts5littlebit322
United States6 months ago - 5-Star Review - Dr. Tay
I love this podcast because of the honest and authentic conversations Madeleine brings to the table. As a licensed psychologist that works with neurodivergent children, it makes my heart so full that there are resources like this podcast for all families to listen to!
Apple Podcasts5doctorTNDUnited States8 months ago - Nicu nurses
I am a nicu nurse. It was so nice to hear how so many of us feel. And what parents can expect. I am retired now but I still miss the babies and the families I got close too. It is a privilege to take care of these little babies who fight to live. And make no mistake we do love the babies I mean real love.
Apple Podcasts5555387654United Statesa year ago - Alexis’ Story
Thank you for sharing this episode and Alexis, for sharing your story. I needed to hear this. Thank you.
Apple Podcasts5melcombsUnited Statesa year ago - Great Viewpoints
I have enjoyed listening to my first few episodes. As a mom of a daughter with multiple diagnoses I have found much to connect with. Thanks for sharing your heart.
Apple Podcasts5SleepyteacherUnited Statesa year ago
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Chart Rankings
Apple Podcasts | #88 |  Ireland/Kids & Family/Parenting |
Apple Podcasts | #115 |  Indonesia/Kids & Family/Parenting |
Apple Podcasts | #128 |  Chile/Kids & Family/Parenting |
Apple Podcasts | #147 |  Argentina/Kids & Family/Parenting |
Apple Podcasts | #195 |  Colombia/Kids & Family/Parenting |
Apple Podcasts | #212 | Ireland/Kids & Family |
Audience
Listeners, engagement and demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Engagement Score | |||
|---|---|---|---|---|---|
| Primary Location | Social Media Reach | ||||
Frequently Asked Questions About The Rare Life
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The Rare Life launched 4 years ago and published 192 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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