This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working... more
Publishes | Weekly | Episodes | 265 | Founded | 5 years ago |
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Number of Listeners | Categories | ParentingKids & Family |
Making friends as a disability parent sounds like it should be easy. We’ve already got so much in common. But in reality, it’s complicated.
In this episode, Alyssa and Madeline share community stories about what makes these friendships so hard to bu... more
When your child has complex medical needs, the question of more children isn’t always simple.
And for some parents of disabled children, the decision to stop at one might not even feel like a decision at all.
In this episode, Alyssa shares response... more
What happens when your child’s rare disease doesn’t look “serious enough” to the outside world?
For Ali Platt, the invisibility of her daughter’s Eosinophilic Esophagitis (EoE) meant battles with doctors, endless appeals to Medicaid, and colleagues... more
Season 12 is here and, once again, the theme is all about relationships: the relationships we have with our children, our partners, our children’s medical teams, and even each other.
We’ll be sharing episodes featuring incredibly tender stories, exp... more
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As a parent of a child with a disability and medical complexities this podcast meets me right where I am. I enjoy listening and have listened for several years.
As a parent of a child with a disability, this podcast has truly saved my sanity! Simply hearing that I am not alone and that what my husband and I go through is an experience shared by so many is extremely comforting. I wish I could meet all of these amazing parents that are shared on this podcast.
Thank You Madeline, so much for The Rare Life. Your content touches more people than you may think. I am a mother of a medically complex child, though he does not have a rare diagnosis of any kind. I had a complicated pregnancy and traumatic birth with my son Vincent, who arrived unduly early at 25 weeks gestation. Due to his very early arrival, he has a laundry list of diagnoses. He’s now 17 months and I only recently saw “medically complex child” written in his medical record. Interestingly en... more
I love this podcast because of the honest and authentic conversations Madeleine brings to the table. As a licensed psychologist that works with neurodivergent children, it makes my heart so full that there are resources like this podcast for all families to listen to!
I am a nicu nurse. It was so nice to hear how so many of us feel. And what parents can expect. I am retired now but I still miss the babies and the families I got close too. It is a privilege to take care of these little babies who fight to live. And make no mistake we do love the babies I mean real love.
Key themes from listener reviews, highlighting what works and what could be improved about the show.
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Conversations focus on the emotional realities and challenges of parenting children with disabilities, providing both personal stories from parents and professional insights from experts in the field. The topics covered often include grief, emotional self-care, mindfulness, and creating supportive communities, with guests ranging from parents sharing their experiences to mental health professionals offering guidance. This unique perspective creates a rich tapestry of discussions aimed at fostering a sense of belonging among listeners who may feel isolated in their journeys, while also offering practical advice to those navigating the complexities of disability parenting.
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The Rare Life launched 5 years ago and published 265 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on The Rare Life include:
1. Madeline Cheney
2. Ali Platt
3. Jessica Loey
4. Chrissy McGuire
5. Rosey Schaefermeyer
6. Hailey Adkisson
7. Kait Parrish
8. Jessica Fein
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