This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working... more
Publishes | Weekly | Episodes | 268 | Founded | 5 years ago |
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Number of Listeners | Categories | ParentingKids & Family |
When your life has revolved around caring for your medically complex child, their absence changes everything: your routines, your identity, your relationships, and evenyour purpose in life.
In this tender conversation, Stephanie Stanley shares what ... more
Sometimes the path to parenthood looks nothing like we planned.
For Kristen, years of infertility led to adoption... and ten days after bringing her daughter home from the NICU, a cystic fibrosis diagnosis turned her world upside down again.
In th... more
From the moment Ashley learned she was carrying twins, her life took a turn she would never have imagined.
A diagnosis of twin-to-twin transfusion syndrome set off a chain of events: heart-wrenching decisions for her twin daughters, another complica... more
Making friends as a disability parent sounds like it should be easy. We’ve already got so much in common. But in reality, it’s complicated.
In this episode, Alyssa and Madeline share community stories about what makes these friendships so hard to bu... more
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As a parent of a child with a disability and medical complexities this podcast meets me right where I am. I enjoy listening and have listened for several years.
As a parent of a child with a disability, this podcast has truly saved my sanity! Simply hearing that I am not alone and that what my husband and I go through is an experience shared by so many is extremely comforting. I wish I could meet all of these amazing parents that are shared on this podcast.
Thank You Madeline, so much for The Rare Life. Your content touches more people than you may think. I am a mother of a medically complex child, though he does not have a rare diagnosis of any kind. I had a complicated pregnancy and traumatic birth with my son Vincent, who arrived unduly early at 25 weeks gestation. Due to his very early arrival, he has a laundry list of diagnoses. He’s now 17 months and I only recently saw “medically complex child” written in his medical record. Interestingly en... more
I love this podcast because of the honest and authentic conversations Madeleine brings to the table. As a licensed psychologist that works with neurodivergent children, it makes my heart so full that there are resources like this podcast for all families to listen to!
I am a nicu nurse. It was so nice to hear how so many of us feel. And what parents can expect. I am retired now but I still miss the babies and the families I got close too. It is a privilege to take care of these little babies who fight to live. And make no mistake we do love the babies I mean real love.
Key themes from listener reviews, highlighting what works and what could be improved about the show.
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Content focuses on the challenges and emotional nuances of parenting children with disabilities, blending personal accounts and expert insights. Topics range from friendship dynamics among disability parents to navigating healthcare concerns, coping with grief, and understanding the realities of raising medically complex children. Notably, the conversations foster a sense of community and recognition among listeners, encouraging them to share their own stories and experiences. The emphasis on mental health and self-advocacy within the parenting landscape highlights a supportive environment where listeners feel acknowledged and empowered.
This platform's strength lies in its authentic and relatable discussions, unearthing the complexities t... more
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The Rare Life launched 5 years ago and published 268 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on The Rare Life include:
1. Kristen Henry
2. Ashley Kaywood
3. Madeline Cheney
4. Ali Platt
5. Jessica Loey
6. Suzi Boubion
7. Chrissy McGuire
8. Alyssa Nutile
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