This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working... more
Publishes | Weekly | Episodes | 246 | Founded | 5 years ago |
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Number of Listeners | Categories | ParentingKids & Family |
For the first time in The Rare Life history... we need a little extra time to work on the next few episodes. Not because we haven’t been preparing and planning, but because some current events have thrown a wrench into the works.
In this episode, Ma... more
When you’re the parent of a medically complex or disabled child, the experience touches every aspect of our life – including our faith, often in unique and surprising ways.
Today, I’m sharing a vulnerable and tender episode, where I interviewed four... more
For a lot of us, the answer isn’t simple. You can miss your lighter, less-traumatized self and feel proud of who you’ve become.
That’s the tension so many of us sit in as medical parents: grieving the carefree, well-rested version of ourselves while... more
When Leah Crum gave birth to her daughter Camilla, she had no idea she was about to be launched into a world of medical unknowns, an undiagnosed rare condition, and 118 days in the NICU.
In this episode, Leah talks about the emotional whiplash of li... more
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As a parent of a child with a disability and medical complexities this podcast meets me right where I am. I enjoy listening and have listened for several years.
As a parent of a child with a disability, this podcast has truly saved my sanity! Simply hearing that I am not alone and that what my husband and I go through is an experience shared by so many is extremely comforting. I wish I could meet all of these amazing parents that are shared on this podcast.
Thank You Madeline, so much for The Rare Life. Your content touches more people than you may think. I am a mother of a medically complex child, though he does not have a rare diagnosis of any kind. I had a complicated pregnancy and traumatic birth with my son Vincent, who arrived unduly early at 25 weeks gestation. Due to his very early arrival, he has a laundry list of diagnoses. He’s now 17 months and I only recently saw “medically complex child” written in his medical record. Interestingly en... more
I love this podcast because of the honest and authentic conversations Madeleine brings to the table. As a licensed psychologist that works with neurodivergent children, it makes my heart so full that there are resources like this podcast for all families to listen to!
I am a nicu nurse. It was so nice to hear how so many of us feel. And what parents can expect. I am retired now but I still miss the babies and the families I got close too. It is a privilege to take care of these little babies who fight to live. And make no mistake we do love the babies I mean real love.
Key themes from listener reviews, highlighting what works and what could be improved about the show.
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Focusing on the emotional complexities of raising children with disabilities, the content offers a blend of personal narratives, expert insights, and discussions on navigating the challenges that come with medically complex parenting. Guests include parents who share their heartwarming and heartbreaking stories, as well as professionals who provide valuable knowledge about the psychological and emotional landscapes of disability parenting. This platform fosters a sense of community among listeners, allowing them to feel seen, supported, and empowered as they engage with themes of trauma, grief, and resilience in the face of adversity. Moreover, it emphasizes self-care, advocacy, and the importance of finding joy amidst the struggles, making... more
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These podcasts share a similar audience with The Rare Life:
1. Neurodiversity Podcast
2. Good Hard Story Podcast
3. The Really Very Crunchy Podcast
4. Coffee + Crumbs Podcast
5. Confessions of a Rare Disease Mama
The Rare Life launched 5 years ago and published 246 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on The Rare Life include:
1. Rosey Schaefermeyer
2. Hailey Adkisson
3. Kait Parrish
4. Jessica Fein
5. Kara Berasi
6. Katie Taylor
7. Carolina Quijada
8. Alyssa Nutile
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