Once Upon A Gene
Effie ParksAs a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my... more
| Publishes | Twice monthly | Episodes | 345 | Founded | 6 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Personal JournalsKids & FamilySociety & CultureParenting | |||
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Latest Episodes
Lana is a mom, software developer, and fierce advocate who created Q-Voice, an AAC system built out of love, frustration, and deep understanding. When her daughter Quinn struggled to connect through traditional speech apps, Lana and her husband decid... more
In this episode of Once Upon a Gene, host Effie Parks welcomes Geraldine Bliss — rare mom, co-founder of CureSHANK, and the powerhouse behind Start Genetic, a new movement empowering families to take control of their genetic testing journey.
Geraldi... more
In this episode of Once Upon a Gene, Effie sits down with Dr. Maya Gosztyla
from Brainstorm Therapeutics to explore one of the most exciting frontiers in rare disease research - organoids. These “mini brains in a dish” are clusters of real human bra... more
This episode of Once Upon a Gene is a little like a cafeteria tray - pick what feeds you and leave what doesn't.
Chatting with the zesty, vivacious, and wildly insightful Emma Nadler - psychotherapist, author of The Unlikely Village of Eden, rare mo... more
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Reviews
- Q-Voice discussion was fantastic
I loved the discussion with Lana Marcucio about Q-Voice. It’s inspiring to see what brilliant and dedicated parents can create! The AI features and the scripts have so much promise for anyone who has trouble speaking (including for anyone who has English as a second language). Thank you for exposing us to such interesting and creative individuals!
Apple Podcasts5DZDuck
United States12 days ago - SO encouraging and relatable!
I absolutely LOVE this podcast. From the second I found it after my sons diagnosis I knew I had found a support system of real, wise, and encouraging support from Effie and community💗✨. I’ve even had the opportunity to meet Effie in real life and she is the real deal! Such a heart to encourage and bring caregivers together to make our journeys a little more joyful and help us feel not so alone. Forever grateful for Effie, this community and all the resources!
Apple Podcasts5BrittaLambUnited States5 months ago - Power of community
Thank you for teaching us the power of community in rare disease! Your podcast is such a light in this world. You’ve inspired me to help establish a foundation for my family member 🩷
Apple Podcasts5review 838United States6 months ago - Best podcast
This is the absolute best podcast for parents with kids with disabilities. Effie is such a positive and amazing mom, friend, and a leader. Her positive energy is very contagious.
Apple Podcasts5Kasia LawUnited States8 months ago - A Great podcast!
I love listening to the podcast! Effie’s understanding and connection with her guests allows them to share their stories in an authentic way! Her podcast is uplifting, informative, and inspiring! Anyone on their rare disease journey or in the space should listen to Once Upon A Gene!
Apple Podcasts5Jamesgriff3United States9 months ago
Listeners Say
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Chart Rankings
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Apple Podcasts | #82 |  New Zealand/Society & Culture/Personal Journals |
Apple Podcasts | #214 |  Netherlands/Society & Culture/Personal Journals |
Apple Podcasts | #240 |  Chile/Society & Culture/Personal Journals |
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Frequently Asked Questions About Once Upon A Gene
What is Once Upon A Gene about and what kind of topics does it cover?
Conversations center on the emotional journey of parenting children with rare genetic syndromes and navigating the complexities of associated challenges. The themes of support, community, and shared experiences resonate throughout the episodes, as various guests share their personal stories, insights, and the importance of advocacy in rare disease circles. Listeners can find inspiration in the resilience displayed by families facing significant difficulties, emphasizing that they are not alone in their struggles. Unique topics discussed include innovative medical solutions, genetic testing, and emotional well-being, all contributing to a broader understanding of life with rare conditions and how families adapt and thrive together.
Where can I find podcast stats for Once Upon A Gene?
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How many listeners does Once Upon A Gene get?
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What are the audience demographics for Once Upon A Gene?
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How many subscribers and views does Once Upon A Gene have?
To see how many followers or subscribers Once Upon A Gene has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
Which podcasts are similar to Once Upon A Gene?
These podcasts share a similar audience with Once Upon A Gene:
1. Laugh Lines with Kim & Penn Holderness
2. The Rare Life
3. At Peace Parents Podcast
4. Armchair Expert with Dax Shepard
5. We Can Do Hard Things
How many episodes of Once Upon A Gene are there?
Once Upon A Gene launched 6 years ago and published 345 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Once Upon A Gene?
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Where can I see ratings and reviews for Once Upon A Gene?
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How do I access podcast episode transcripts for Once Upon A Gene?
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What guests have appeared on Once Upon A Gene?
Recent guests on Once Upon A Gene include:
1. Lana Marcucio
2. Geraldine Bliss
3. Maya Gosztyla
4. Emma Nadler
5. Dr. Wendy Chung
6. Amber Pierson
7. Chelsea Kuhn
8. Jeffrey Allen
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.