Once Upon A Gene
Effie ParksAs a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my... more
| Publishes | Twice monthly | Episodes | 358 | Founded | 7 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Kids & FamilyParentingSociety & CulturePersonal Journals | |||
Listen to this Podcast
Latest Episodes
Bryan Docobo — attorney, father, rare disease advocate, and
founder of the Coats Plus Foundation. Bryan opens up about the devastating journey of losing his four-year-old son Ethan to Coats Plus Syndrome (a rare telomere disorder caused by a CTC1 gen... more
Get your free Nome report at www.nome.bio – Families can upload a genetic report and receive a free personalized therapy feasibility report in minutes.
In this powerful conversation, Effie Parks sits down with Steven Ringel — patient, sibling of a p... more
In the final episode of their four-part archetype series, Effie Parks and archetype expert Christy Foster explore the Victim Archetype—represented by the Cowardly Lion in The Wizard of Oz. They emphasize that archetypes are neutral energies (as taugh... more
In part 3 of our 4-part series on Caregiver Archetypes, my sister and somatic therapist Christy Foster returns to unpack the Saboteur — the clever inner voice that second-guesses you, overthinks everything, and talks you out of what you actually want... more
Key Facts
Similar Podcasts
People also subscribe to these shows.
Recent Guests
Host
Reviews
- Q-Voice discussion was fantastic
I loved the discussion with Lana Marcucio about Q-Voice. It’s inspiring to see what brilliant and dedicated parents can create! The AI features and the scripts have so much promise for anyone who has trouble speaking (including for anyone who has English as a second language). Thank you for exposing us to such interesting and creative individuals!
Apple Podcasts5DZDuck
United States8 months ago - SO encouraging and relatable!
I absolutely LOVE this podcast. From the second I found it after my sons diagnosis I knew I had found a support system of real, wise, and encouraging support from Effie and community💗✨. I’ve even had the opportunity to meet Effie in real life and she is the real deal! Such a heart to encourage and bring caregivers together to make our journeys a little more joyful and help us feel not so alone. Forever grateful for Effie, this community and all the resources!
Apple Podcasts5BrittaLambUnited Statesa year ago - Power of community
Thank you for teaching us the power of community in rare disease! Your podcast is such a light in this world. You’ve inspired me to help establish a foundation for my family member 🩷
Apple Podcasts5review 838United Statesa year ago - Best podcast
This is the absolute best podcast for parents with kids with disabilities. Effie is such a positive and amazing mom, friend, and a leader. Her positive energy is very contagious.
Apple Podcasts5Kasia LawUnited Statesa year ago - A Great podcast!
I love listening to the podcast! Effie’s understanding and connection with her guests allows them to share their stories in an authentic way! Her podcast is uplifting, informative, and inspiring! Anyone on their rare disease journey or in the space should listen to Once Upon A Gene!
Apple Podcasts5Jamesgriff3United Statesa year ago
Listeners Say
Key themes from listener reviews, highlighting what works and what could be improved about the show.
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #195 | United States/Society & Culture/Personal Journals |
Talking Points
Recent interactions between the hosts and their guests.
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | |
|---|---|
| Gender Skew | |
| Location | |
| Interests | |
| Professions | |
| Age Range | |
| Household Income | |
| Social Media Reach |
Frequently Asked Questions About Once Upon A Gene
What is Once Upon A Gene about and what kind of topics does it cover?
The show centers on the real-life journeys of families navigating rare genetic conditions, translating complex science and medical topics into relatable, practical guidance. Guests span parents, clinicians, researchers, and advocates, discussing genetics, pediatric care, advocacy, and emerging tech—from genetic testing and organoids to AAC tools and at‑home health solutions. A consistent throughline is community, resilience, and actionable support for families, caregivers, and professionals working in rare diseases and disability spaces. Notable strengths include candid storytelling, a balance of science and heart, and a strong emphasis on resources, community building, and practical steps for navigating diagnosis, treatment, and advocacy.
Where can I find podcast stats for Once Upon A Gene?
Rephonic provides a wide range of podcast stats for Once Upon A Gene. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Once Upon A Gene and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does Once Upon A Gene get?
Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for Once Upon A Gene, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.
What are the audience demographics for Once Upon A Gene?
Rephonic provides comprehensive predictive audience data for Once Upon A Gene, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.
How many subscribers and views does Once Upon A Gene have?
To see how many followers or subscribers Once Upon A Gene has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
Which podcasts are similar to Once Upon A Gene?
These podcasts share a similar audience with Once Upon A Gene:
1. Good Inside with Dr. Becky
2. The Rare Life
3. The Curiosity Shop with Brené Brown and Adam Grant
4. Radiolab
5. Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children
How many episodes of Once Upon A Gene are there?
Once Upon A Gene launched 7 years ago and published 358 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Once Upon A Gene?
Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.
Where can I see ratings and reviews for Once Upon A Gene?
Rephonic pulls ratings and reviews for Once Upon A Gene from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.
View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.
How do I access podcast episode transcripts for Once Upon A Gene?
Rephonic provides full transcripts for episodes of Once Upon A Gene. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.
What guests have appeared on Once Upon A Gene?
Recent guests on Once Upon A Gene include:
1. Steven Ringel
2. Brittni Lamb
3. Lana Marcucio
4. Geraldine Bliss
5. Maya Gosztyla
6. Emma Nadler
7. Dr. Wendy Chung
8. Amber Pierson
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.