Once Upon A Gene
Effie ParksAs a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my... more
| Publishes | Twice monthly | Episodes | 342 | Founded | 6 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Personal JournalsParentingKids & FamilySociety & Culture | |||
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Latest Episodes
This episode of Once Upon a Gene is a little like a cafeteria tray - pick what feeds you and leave what doesn't.
Chatting with the zesty, vivacious, and wildly insightful Emma Nadler - psychotherapist, author of The Unlikely Village of Eden, rare mo... more
In this conversation, Wendy Chung discusses the evolution of understanding genetic conditions, particularly in relation to autism, and the role of Simons Searchlight in patient advocacy. She emphasizes the importance of community support, global incl... more
ONCE UPON A GENE - EPISODE 100
A Rare Collection- Because of You with Kyle Bryant, Jennifer Siedman, Liz Morris, and Ashley Fortney Point
There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series fea... more
Discount Code for 20% off: ONCEUPONAGENE
Chelsea and Amber of Lemon Cake—two fellow rare moms on a mission—pop in to remind you that even when seizures, meltdowns, and endless therapies feel like they’re winning, there’s still room for belly laughs,... more
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Reviews
- SO encouraging and relatable!
I absolutely LOVE this podcast. From the second I found it after my sons diagnosis I knew I had found a support system of real, wise, and encouraging support from Effie and community💗✨. I’ve even had the opportunity to meet Effie in real life and she is the real deal! Such a heart to encourage and bring caregivers together to make our journeys a little more joyful and help us feel not so alone. Forever grateful for Effie, this community and all the resources!
Apple Podcasts5BrittaLamb
United States4 months ago - Power of community
Thank you for teaching us the power of community in rare disease! Your podcast is such a light in this world. You’ve inspired me to help establish a foundation for my family member 🩷
Apple Podcasts5review 838United States5 months ago - Best podcast
This is the absolute best podcast for parents with kids with disabilities. Effie is such a positive and amazing mom, friend, and a leader. Her positive energy is very contagious.
Apple Podcasts5Kasia LawUnited States7 months ago - A Great podcast!
I love listening to the podcast! Effie’s understanding and connection with her guests allows them to share their stories in an authentic way! Her podcast is uplifting, informative, and inspiring! Anyone on their rare disease journey or in the space should listen to Once Upon A Gene!
Apple Podcasts5Jamesgriff3United States8 months ago - Effie is lighting a path forward
Effie Parks is a brilliant podcast host who exudes warmth as she invites her listeners up to share a cup of coffee with her. Her episodes feel so relatable and easy to listen to like a friend you’ve known forever. So glad we found this podcast when we did as it was a turning point in our personal rare disease journey. Thank you, Effie!
Apple Podcasts5missyrogers25United States8 months ago
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Frequently Asked Questions About Once Upon A Gene
What is Once Upon A Gene about and what kind of topics does it cover?
Conversations center on the emotional journey of parenting children with rare genetic syndromes and navigating the complexities of associated challenges. The themes of support, community, and shared experiences resonate throughout the episodes, as various guests share their personal stories, insights, and the importance of advocacy in rare disease circles. Listeners can find inspiration in the resilience displayed by families facing significant difficulties, emphasizing that they are not alone in their struggles. Unique topics discussed include innovative medical solutions, genetic testing, and emotional well-being, all contributing to a broader understanding of life with rare conditions and how families adapt and thrive together.
Where can I find podcast stats for Once Upon A Gene?
Rephonic provides a wide range of podcast stats for Once Upon A Gene. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Once Upon A Gene and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does Once Upon A Gene get?
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What are the audience demographics for Once Upon A Gene?
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How many subscribers and views does Once Upon A Gene have?
To see how many followers or subscribers Once Upon A Gene has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
Which podcasts are similar to Once Upon A Gene?
These podcasts share a similar audience with Once Upon A Gene:
1. The Rare Life
2. Moms Talk Autism Podcast
3. The Lazy Genius Podcast
4. Park Predators
5. Good Inside with Dr. Becky
How many episodes of Once Upon A Gene are there?
Once Upon A Gene launched 6 years ago and published 342 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Once Upon A Gene?
Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.
Where can I see ratings and reviews for Once Upon A Gene?
Rephonic pulls ratings and reviews for Once Upon A Gene from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.
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How do I access podcast episode transcripts for Once Upon A Gene?
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What guests have appeared on Once Upon A Gene?
Recent guests on Once Upon A Gene include:
1. Emma Nadler
2. Dr. Wendy Chung
3. Amber Pierson
4. Chelsea Kuhn
5. Jeffrey Allen
6. Tim Coleman
7. Heather Strauter
8. Taylor Beery
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.