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What Am I Thankful For

What am I Thankful For

We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-... more

PublishesWeeklyEpisodes9Founded5 years ago
Categories
ParentingKids & Family

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Latest Episodes

Update on how our 2022 has been going Why we haven't been recording Update on Maddux's school year Professional Updates Brain Surgery #14 Diagnosis from routine MRI Typical signs of shunt failure Famous sports figures who wore #14 (www.ranker... more

As we continue to tell our story of Fetal Surgery at UCSF we get into post-surgical and recovery topics such as:

-The 1st ultrasound after fetal surgery

-How to help your loved ones in the hospital

-Life on bedrest

-A surprise request to sign... more

In Episode 5, we discuss the amazing experience that is Fetal Surgery to repair Spina Bifida (Myelomeningocele).  This process includes a surgical repair to a fetus at roughly the half-way point of a pregnancy.  The baby is operated on in-utero and t... more

In Episode 4, we continue to unpack the moments and reactions to receiving Maddux's diagnosis of Spina Bifida.  In this episode, we take a deeper dive into how we dealt with our feelings and depression.  How we each managed to pick ourselves up from ... more

Topics:

Creating the Podcast

* We discuss the challenges in writing, creating, recording, editing and publishing new episodes.  We also discuss feedback from our listeners

Special Needs Parenting Means______?

* We discuss what Special Need... more

In Episode 3, we discuss the events surrounding Maddux's diagnosis of Spina Bifida.  This diagnosis happened in the first trimester of the pregnancy and forced us to deal with the so many emotions.  Any parent that has faced the diagnosis of a disabi... more

In Episode 2, we begin to tell our story. The first chapter of which is about Unexplained Infertility. We wanted to jump right in and discuss a topic that many have experienced but almost nobody talks about. Other subtopics include: -The Stigma of In... more

We discuss the following: -Additional Goals for the Podcast Create awareness towards Local, State and Federal programs that help families with children that have disabilities How we manage to balance Maddux's schedule and needs with our marriage and ... more

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What Am I Thankful For launched 5 years ago and published 9 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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