The Dysunderstood Podcast
Ella EastinDysunderstood exists to share stories and and foster community of the dysunderstood- those living with complex, misunderstood, chronic illness. The Dysunderstood podcast provides a platform to patients, providers and the community collectively working towards increased understanding of infection-associated conditions like dysautonomia, Long Covid, ME/CFS, chronic lyme, and more. Guests share their... more
| Publishes | Weekly | Episodes | 13 | Founded | 3 years ago |
|---|---|---|---|---|---|
| Categories | Personal JournalsEducationSelf-ImprovementSociety & Culture | ||||
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Latest Episodes
Ella sits down with chronic illness advocate Cate Siniscalchi, who has spent over a decade navigating a complex and often misunderstood medical journey. Living with POTS, EDS, SMA, MALS, Nutcracker Syndrome, SIH, MCAS, and more, Cate shares what it’s... more
Corri, a returning community member talks about how POTS has led her to reimagine movement, creativity, and self-compassion. She opens up about her evolving relationship with dance, how art became a new outlet for healing, and why she’s pursuing a fu... more
Meet Sarah- she’s navigating life with POTS, MCAS, and Autism. She has entrenched herself in advocacy and the disability community, providing many recommendations to learn more about bias and the medical system. Topics we discuss include appointment ... more
James, our first male patient guest talks about his experience with Long COVID POTS, his perspective changes and managing life with a great sense of humor in the face of disabling illness. James insightfully provides several metaphors to describe his... more
Olga, a proud mom of two with POTS, openly shares her journey to diagnosis, the challenges of balancing parenthood and chronic illness. She discusses the small victories that have helped her regain some strength and control over her life with an unpr... more
Ella talks with Dr. Bruce Feldstein, a former emergency medicine physician who, after a disabling injury, transitioned into spiritual care at Stanford as a chaplain. They discuss themes of identity, the desire for control, and navigating life's uncer... more
Season 2's first community story is shared by Samantha Pearson, a Stanford University swimmer diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) and long COVID after experiencing prolonged symptoms post-COVID infection. Sam shares her jo... more
Dr. Peter Rowe speaks about his pioneering work in identifying and treating ME/CFS, dysautonomia, and hypermobility in patients, including insights into long COVID, emphasizing his dedication to advancing medical understanding and patient care throug... more
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The Dysunderstood Podcast launched 3 years ago and published 13 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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