Min Sjældne Sygdom
SanofiAt få en diagnose på en 'sjælden sygdom' - og dermed tilhøre en meget lille patientgruppe - giver anledning til flere spørgsmål hos patienten. I podcastserien 'Min Sjældne Sygdom' inviterer vært Bo Rafn, medicinsk rådgiver fra Sanofi, en af Danmarks førende specialister i studiet for at tale om et sjældent sygdomsområde. Sammen med eksperten i hver episode giver de lytteren en unik mulighed for at... more
| Publishes | Infrequently | Episodes | 6 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Language | Danish | Number of Listeners | Category | Health & Fitness |
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Latest Episodes
Klinisk diætist Mette Borre er ansat på Aarhus Universitetshospital med speciale i sygdomme i mavetarm kanalen og i denne episode fortæller hun om fordøjelsesproblemer hos patienter med Fabry sygdom. Mette Borre påpeger hvordan Fabry sygdom påvirker ... more
I denne episode af podcastserien er overlæge og kardiolog Bo Gregers Winkel gæst. Han deler sin omfattende viden og indsigt fra sit arbejde med Fabry patienter på Kardiologisk afdeling. Fabry sygdom påvirker ofte flere vitale organer, herunder hjerte... more
I denne episode taler Professor Astrid Juhl Terkelsen fra neurologisk afdeling på Aarhus Universitetshospital om forstyrrelser i det autonome nervesystem. Hun fremhæver, hvordan sådanne forstyrrelser kan påvirke forskellige organer i kroppen og beskr... more
I episode 3 fortæller Professor og Overlæge Allan Lund fra Center for Sjældne Sygdomme på Rigshospitalet i København om, hvordan børn som oftest får stillet en Fabry-diagnose. Han gennemgår bl.a., hvordan drenge eller piger arver deres sygdom fra én ... more
Professor Caroline Kistorp fra Rigshospitalet dykker ned i et specifikt organ, som påvirkes ved en bestemt type af Fabry. I denne episode er det nyrerne der sættes fokus på, hvor vi bl.a. hører mere om, hvilken type af Fabry, der giver problemer med ... more
Du møder Professor Caroline Kistorp fra Rigshospitalet i København, som er specialist på Fabry sygdom. Hun fortæller, hvad Fabry er for en sygdom og hvordan denne sjældne sygdom, diagnosticeres, påvirker kroppens specifikke organer og de mulige behan... more
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Min Sjældne Sygdom launched 2 years ago and published 6 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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