
Welcome to the #1 Hirschsprung's Disease podcast...in the world!! I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide. This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achieve... more
| Publishes | Weekly | Episodes | 139 | Founded | 3 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Personal JournalsSociety & Culture | |||

Mum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is and the multiple red flags missed by the hospital, as well as how her mothers instinct was... more
Natalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and surgeries. Within this episode Natalie gives us an insight into juggling hospital and family li... more
In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk.
After her son was born, Katie had an unfortunate time with m... more
A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's.
During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public... more
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I am grateful for the community Tom is building with this Podcast and love hearing all of the courageous stories.
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This show centers on personal journeys around Hirschsprung's disease and related experiences, featuring parents, patients, clinicians, and advocates. Episodes highlight neonatal crises, surgeries (including ostomies and pull-throughs), hospital care, long-term management, and the emotional and practical realities families navigate. There's a strong emphasis on community support, advocacy, fundraising, and awareness-building, often using real-life stories to illuminate medical decisions, parental intuition, and resilience. Noteworthy angles include cross-border care, pioneering treatments, and turning difficult experiences into actionable guidance for other families and caregivers. The format tends to combine intimate storytelling with pract... more
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Tom's Hirschsprung's Podcast launched 3 years ago and published 139 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on Tom's Hirschsprung's Podcast include:
1. Katie Thomson
2. Andrea Guse
3. Jodie Mulrainey
4. Stephanie Luster
5. Zandra Thomas
6. Laura Rigg
7. Denise Welch
8. Lauren Jewell
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