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Artwork for Tom's Hirschsprung's Podcast

Tom's Hirschsprung's Podcast

Tom
Hirschsprung's Disease
Chronic Illness
Mental Health
Surgery
Down Syndrome
Parenting Challenges
Enterocolitis
Stoma
Children's Health
Pediatric Care
Great Ormond Street Hospital
Parenting
Stoma Care
Genetics
Autism
Community Support
Postpartum Mental Health
Pediatric Surgery
Family Support
NICU

Welcome to the #1 Hirschsprung's Disease podcast...in the world!! I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide. This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achieve... more

PublishesWeeklyEpisodes139Founded3 years ago
Number of ListenersCategories
Personal JournalsSociety & Culture

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Artwork for Tom's Hirschsprung's Podcast

Latest Episodes

Mum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is and the multiple red flags missed by the hospital, as well as how her mothers instinct was... more

Natalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and surgeries. Within this episode Natalie gives us an insight into juggling hospital and family li... more

In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk.

After her son was born, Katie had an unfortunate time with m... more

A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's.

During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public... more

Key Facts

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Number of Listeners
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Recent Guests

Katie Thomson
Parent of a child with Hirschsprung's disease
Episode: Episode 131 - With Katie Thomson
Andrea Guse
Guest sharing the journey of parenting a child with Hirschsprung's disease
Episode: Episode 130 - With Andrea Guse
Jodie Mulrainey
Mother of Ollie, a child with Hirschsprung's disease
Family
Episode: Episode 129 - With Jodie Mulrainey
Stephanie Luster
Mother of Ayla with Hirschsprung's disease
Episode: Episode 128 - With Stephanie Luster
Zandra Thomas
Mother of child with Hirschsprung's disease, advocate
Episode: Episode 127 - With Zandra Thomas
Laura Rigg
Parent and advocate involved with Hirschsprung's Disease UK
Hirschsprung's Disease UK
Episode: Episode 126 - With Laura Rigg
Denise Welch
Actor, writer, broadcaster
Independent media
Episode: Episode 124 - With Denise Welch
Lauren Jewell
Parent of Freddie, medical journey participant
Family of Freddie (Hirschsprung's patient)
Episode: Episode 122 - With Lauren and Kieran Jewell
Kieran Jewell
Parent of Freddie, medical journey participant
Family of Freddie (Hirschsprung's patient)
Episode: Episode 122 - With Lauren and Kieran Jewell

Host

Tom
Host of the show, introducing and guiding the conversation with guests.

Reviews

5.0 out of 5 stars from 18 ratings
  • Love this Podcast!

    I am grateful for the community Tom is building with this Podcast and love hearing all of the courageous stories.

    Apple Podcasts
    5
    Robyn from Embrace Grace
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Creates a welcoming space for courageous illness stories.
Guest experiences are varied and informative, offering practical paths forward.
The host keeps conversations supportive and relatable for families.

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Talking Points

Recent interactions between the hosts and their guests.

Episode 130 - With Andrea Guse
Q: What are your hopes for the future for your child, particularly around education and independence?
Her hopes include school support, managing infections, potential homeschooling considerations, and ultimately enabling her child to live as normal a life as possible with appropriate medical and social accommodations.
Episode 130 - With Andrea Guse
Q: What have you learned about supporting your marriage and mental health while managing a child with a high-need medical condition?
Andrea discusses communication, setting realistic expectations, sharing caregiving duties, and prioritizing time for each other, along with acknowledging the emotional toll and the importance of community.
Episode 128 - With Stephanie Luster
Q: What has been most essential in managing Ayla's condition at home?
Having a reliable nurse practitioner, access to education on stomal care, and a clear plan for recognizing EC early, plus antibiotics and irrigation when needed, have been crucial. This approach helped us stay out of the hospital and catch problems quickly before they escalated.
Episode 128 - With Stephanie Luster
Q: How did you decide when the time was right for the pull-through surgery?
After experiencing repeated complications from the stoma and a persistent stricture that interfered with reliable drainage, we weighed the risks and consulted a trusted colorectal surgeon. The decision was driven by the goal of reducing EC episodes and improving quality of life, even though the process would be challenging.
Episode 124 - With Denise Welch
Q: Can you tell me about that moment when your mother's instinct saved your life?
Denise recounts how her mother noticed she was lethargic and not feeding properly at three weeks old, prompting urgent medical attention that likely saved her life, followed by rapid surgery and recovery.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
Gender Skew
Location
Interests
Professions
Age Range
Household Income
Social Media Reach

Frequently Asked Questions About Tom's Hirschsprung's Podcast

What is Tom's Hirschsprung's Podcast about and what kind of topics does it cover?

This show centers on personal journeys around Hirschsprung's disease and related experiences, featuring parents, patients, clinicians, and advocates. Episodes highlight neonatal crises, surgeries (including ostomies and pull-throughs), hospital care, long-term management, and the emotional and practical realities families navigate. There's a strong emphasis on community support, advocacy, fundraising, and awareness-building, often using real-life stories to illuminate medical decisions, parental intuition, and resilience. Noteworthy angles include cross-border care, pioneering treatments, and turning difficult experiences into actionable guidance for other families and caregivers. The format tends to combine intimate storytelling with pract... more

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How many episodes of Tom's Hirschsprung's Podcast are there?

Tom's Hirschsprung's Podcast launched 3 years ago and published 139 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Tom's Hirschsprung's Podcast?

Recent guests on Tom's Hirschsprung's Podcast include:

1. Katie Thomson
2. Andrea Guse
3. Jodie Mulrainey
4. Stephanie Luster
5. Zandra Thomas
6. Laura Rigg
7. Denise Welch
8. Lauren Jewell

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