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Artwork for Tom's Hirschsprung's Podcast

Tom's Hirschsprung's Podcast

Tom
Hirschsprung's Disease
Chronic Illness
Mental Health
Down Syndrome
Parenting Challenges
Surgery
Enterocolitis
Stoma
Children's Health
Pediatric Care
Great Ormond Street Hospital
Parenting
Stoma Care
Genetics
Community Support
Postpartum Mental Health
Pediatric Surgery
Family Support
NICU
Autism

Welcome to the #1 Hirschsprung's Disease podcast...in the world!! I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide. This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achieve... more

PublishesWeeklyEpisodes131Founded2 years ago
Number of ListenersCategories
Society & CulturePersonal Journals

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Artwork for Tom's Hirschsprung's Podcast

Latest Episodes

This week Bekki talks to me about her 2 year old son and his Hirschsprung's diagnosis.

In this episode we discuss preparing for surgeries, from both the parental and child point of view as well as how stomas can affect the body ability to retain wa... more

Actor, broadcaster and national icon Denise Welch joins me to talk about her son Louis' Hirschsprung's journey in depth for the first time!

Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of... more

Sadie talks about her 5 month old daughter and her experience with Total Colonic Hirschsprung's Disease.

Whilst the likelihood of Hirschsprung's was initialised dismissed , although the classic symptoms were present, a hospital in London (Ontorio) c... more

This week I am joined by 2 guests as Lauren and Kieran talk about their 3 year old son Freddie, and his journey with Hirschsprung's.

Lauren talks through Freddie's 3 surgeries and Kieran talks about stoma care, as they both share their thoughts over... more

Key Facts

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Recent Guests

Lauren Jewell
Parent of Freddie, medical journey participant
Family of Freddie (Hirschsprung's patient)
Episode: Episode 122 - With Lauren and Kieran Jewell
Kieran Jewell
Parent of Freddie, medical journey participant
Family of Freddie (Hirschsprung's patient)
Episode: Episode 122 - With Lauren and Kieran Jewell
Paul Leonard-Morgan
Scottish Bafta Award winner, composer for Cyberpunk 2077 and Netflix documentaries
Composer
Episode: Episode 121 - With Paul Leonard-Morgan
Tony Brattoli
Musician, IT manager, and Hirschsprung's survivor
tonybrattolimusic.com
Episode: Episode 118 - With Tony Brattoli
Shakeyra Sanders
Guest sharing her Hirschsprung's disease journey
Episode: Episode 117 - With Shakeyra Sanders
Annalise Steele
Guest sharing a personal family journey with Hirschsprung's disease
Episode: Episode 116 - With Annalise Steele
Hana Walker
Guest sharing personal journey with Hirschsprung's disease and ostomy
Episode: Episode 115 - With Hana Walker
Hannah Blewitt
Mother of Oliver, advocate and caregiver
Independent caregiver / patient advocate
Episode: Episode 113 - With Hannah Blewitt
James Brattoli
Actor, screenwriter, poet, and advocate sharing his lived experience with Hirschsprung's disease
Episode: Episode 112 - With James Brattoli

Host

Tom Hirschsprung
Host of the podcast focused on Hirschsprung's disease experiences and advocacy.

Reviews

5.0 out of 5 stars from 17 ratings
  • Love this Podcast!

    I am grateful for the community Tom is building with this Podcast and love hearing all of the courageous stories.

    Apple Podcasts
    5
    Robyn from Embrace Grace
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Audience appreciates the supportive community and courage in shared stories.
Guests bring hopeful, actionable insights for families facing Hirschsprung's disease.
Episodes feel authentic and empathetic, with a focus on real-world experiences and advocacy.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Episode 118 - With Tony Brattoli
Q: Would you like to take us back to the earliest point with Hirschsprung's in your life?
Tony shares that unlike his older brother, he has limited early memories and relies on his mother's recounting; the medical journey for him was challenging due to doctors not listening and a harsh medical culture, but a surgeon who had treated his brother eventually listened and operated.
Episode 111 - With Kayleigh Acquah
Q: How did Micah's condition present at birth and evolve in those first critical days?
Kayleigh describes a newborn with feeding difficulties, persistent vomiting, and a notably swollen abdomen, followed by rapid escalation to hospital care, a sepsis concern due to rash, and finally the diagnosis and surgical interventions for Hirschsprung's disease.
Episode 112 - With James Brattoli
Q: How did you get into acting given the medical challenges you faced as a child?
James explains that he shifted from pursuing basketball to acting due to physical limits, inspired by seeing actors on screen, and then discovered screenwriting as a way to keep creative momentum when acting opportunities waned.
Episode 108 - Ed Leach and Laura Wilson (Part 2)
Q: What do you kind of hope for the future for Elodie?
They hope for Elodie to be happy and healthy, while acknowledging potential challenges ahead.
Episode 103 - With Gemma Carter
Q: What do you see in Rowan's future?
Rowan's family is hopeful for a brighter future, looking to give back to the community through fundraising and support for families with similar challenges.

Audience Metrics

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Listeners per Episode
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Location
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Professions
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Frequently Asked Questions About Tom's Hirschsprung's Podcast

What is Tom's Hirschsprung's Podcast about and what kind of topics does it cover?

This show centers on personal journeys around Hirschsprung's disease, often told through the perspectives of parents, patients, and caregivers navigating diagnosis, treatment, and daily life. Episodes frequently explore early signs, hospital experiences, NICU stays, surgeries, long-term management, and the emotional toll on families, as well as practical topics like advocacy, genetics, and community support. A notable pattern is the mix of intimate family narratives, resilience in the face of chronic conditions, and emphasis on connecting with others facing similar challenges. The format tends to center authentic storytelling with a hopeful, community-driven angle that can inspire listeners and potential guests alike.

A standout trait is t... more

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Which podcasts are similar to Tom's Hirschsprung's Podcast?

These podcasts share a similar audience with Tom's Hirschsprung's Podcast:

1. Good Hang with Amy Poehler
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How many episodes of Tom's Hirschsprung's Podcast are there?

Tom's Hirschsprung's Podcast launched 2 years ago and published 131 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Tom's Hirschsprung's Podcast?

Recent guests on Tom's Hirschsprung's Podcast include:

1. Lauren Jewell
2. Kieran Jewell
3. Paul Leonard-Morgan
4. Tony Brattoli
5. Shakeyra Sanders
6. Annalise Steele
7. Hana Walker
8. Hannah Blewitt

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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