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The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.

PublishesInfrequentlyEpisodes9Founded3 years ago
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Artwork for The HDSA Podcast

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In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share p... more

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In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collab... more

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In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tu... more

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 In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research. 

Phyllis is the Senior Manager, Advocacy at HDSA

Dr. Sung is the Director of ... more

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In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities.

Leora is the Assistant Director of Research and P... more

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In this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew.

Leora is the Assistant Director of Research and Patient Engagement at HDSA.

Kelly is the Coordinator of Research and Mission Programs... more

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In this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick;   Dr. Jim Gusella and Dr. Marcy MacDonald.

Maryann is  HDSA's Manager, Youth & Community Services and an HD family member.

Dr. Gusella is a Professor... more

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In Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein. 

Chris Cosentino is HDSA's Director of Marketing & Communications and has been with the Society since 2014. 

Robi Blumenstein is President of CHDI and in ... more

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The HDSA Podcast launched 3 years ago and published 9 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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