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Narcolepsy Navigators Podcast

Kerly Bwoga
Narcolepsy
Idiopathic Hypersomnia
Mental Health
Narcolepsy Type 1
Cataplexy
Sleep Disorders
Obstructive Sleep Apnea
Community Support
Chronic Illness
Self-Love
Advocacy
Kleine–levin Syndrome
Klein-Levin Syndrome
Menopause
NAPS For Life CIC
Sleep Apnea
Autoimmune Disease
Music Advocacy
Occupational Therapy
Social Isolation

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.

Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.

Beca... more

PublishesTwice monthlyEpisodes63Founded3 years ago
Number of ListenersCategories
Society & CultureHealth & FitnessMental Health

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Artwork for Narcolepsy Navigators Podcast

Latest Episodes

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What is the exact dollar value of staying awake? In this special episode, we dig into a real independent evidence report on Orzeyful (oporexin), a newly FDA-approved drug for narcolepsy type 1 that works completely differently from a... more

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It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH)  and when she finally did, she found almost nothing online to help her make sense of it. So she built it herself.

In this Advocacy Series episode, ... more

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What happens when you crack open the backend analytics of a podcast built for one of the rarest, most invisible patient communities on earth? In this special episode, we dig into the data behind Narcolepsy Navigators — the downloads,... more

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What happens when your teenage son stops closing doors, watches the same movie three times in one day without remembering, and disappears from his own life for weeks at a time? In this episode of Narcolepsy Navigators, hosts Kerly an... more

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Recent Guests

Alejandro Bruno Solas
Program manager for PWM; Narcolepsy Type 1 advocate
PWM; Narcolepsy advocacy community
Episode: S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy
Steve Lewis
Founder of Nabu AI, advocate and parent
Nabu AI
Episode: Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story
Vincent Arthur
Race car driver with narcolepsy type 2; advocate and sponsor partner
Wake Up Narcolepsy (sponsor) / Tri-Con Garage / Triad Racing Enterprises (team)
Episode: S4E9:Full Speed Ahead: How Narcolepsy Can't Stop This Race Car Driver
Ashley Blankenship
Narcolepsy Type 1 patient; resident of North Carolina
Individual guest
Episode: S4E8:Motherhood, Pregnancy & Narcolepsy with Ashley Blankenship
Javier Santa María
Nurse from Santiago, Chile
Individual living with idiopathic hypersomnia (IH)
Episode: S4E7: Redefining Strength: Javiera's story of Resilience with IH
Dr. Caitlin Chasser
Expert on sleep health and menopause
Sleep health and menopause specialist
Episode: Medical Series S1E4:Hot Flashes, Anxiety, Insomnia-The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser
Dr. Christopher J. Allen
Board-certified pediatric neurologist and sleep medicine specialist; founder of Quality Sleep and Neurology PC
Quality Sleep and Neurology PC
Episode: Medical Series S1E3 : Sleep Affects Everything: A Neurologist Breaks It Down”
Dr. Anne-Marie Morse
Neurologist with special training in child neurology and sleep medicine
Episode: Advocacy Series S1E1: Why Narcolepsy Is a Family Diagnosis, Not Just an Individual One
Dr. Jill McGarry
Clinical psychologist specializing in sleep health
Manchester Sleep Clinic / NHS / Sleep Unlimited
Episode: Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders

Hosts

Kerly Boga
Host of Narcolepsy Navigators with multiple episode appearances
Liz
Co-host
Carly Boga
Host of Narcolepsy Navigators

Reviews

4.9 out of 5 stars from 16 ratings
  • Grateful!!!

    I was diagnosed four years ago and I have already learned so much about narcolepsy that I can’t believe I was never told about. It’s very comforting and supportive to hear about others’ stories and it’s uplifting rather than depressing. So grateful that I found this and for the people who have worked hard to make it happen. I really recommend this podcast if you or a loved one has narcolepsy!

    Apple Podcasts
    5
    d00dles4science
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Content is practical and hopeful, with a strong emphasis on advocacy and peer networks.
Stories empower families and individuals new to narcolepsy.
Gratitude and community shine through; listeners feel supported and informed.

Top Society & Culture Podcasts

Stuff You Should Know
Stuff You Should KnowiHeartPodcasts
The Ezra Klein Show
The Ezra Klein ShowNew York Times Opinion
This American Life
This American LifeThis American Life
Freakonomics Radio
Freakonomics RadioFreakonomics Radio + Stitcher
Modern Wisdom
Modern WisdomChris Williamson
Determined Society with Shawn French | Adversity & Mindset
Determined Society with Shawn French | Adversity & MindsetShawn French | Adversity & Determination Expert

Talking Points

Recent interactions between the hosts and their guests.

S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser
Q: Is melatonin recommended long-term for menopause-related sleep issues?
Melatonin is not a silver bullet and should not replace behavioral sleep strategies; it may be helpful in certain scenarios (e.g., jet lag, shift work) but long-term use should be supervised by a sleep expert to avoid masking underlying issues and to ensure safety.
S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser
Q: What should someone consider when approaching menopause-related sleep problems?
Start with a broad assessment of sleep quality, daily routines, and menopause symptoms; optimize sleep environment, hydration, nutrition, and exercise; and consider CBT-I as a central therapy, with medications like melatonin only as a supplementary, time-limited option under a clinician's guidance.
S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD
Q: What does your day-to-day life look like with these overlapping conditions, and how do you manage visibility and understanding from others?
Rebecca discusses balancing diet, medication timing, and energy management, while also handling social situations and disclosing symptoms in a way that helps others understand without making excuses. The discussion covers how others react and how she navigates empathy and awareness.
S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD
Q: Do you mind sharing whether Narcolepsy played a role in your decision to leave your previous job?
She explains that the stress and sleep attacks from narcolepsy made her decision to leave the job feel necessary for her health, and the removal of that stress brought a sense of relief, even as she faced uncertainty about daily routines.
S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD
Q: Can you tell us about your diagnoses and your journey to get diagnosed?
Rebecca describes a long, complex process where multiple conditions were identified over time, including ADHD, anxiety, and narcolepsy with cataplexy, with diagnoses evolving as doctors listened and explored various possibilities. She emphasizes the persistence of finding doctors who believed her and the later realization of how interconnected all her conditions are.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About Narcolepsy Navigators Podcast

What is Narcolepsy Navigators Podcast about and what kind of topics does it cover?

A candid, patient-centered show focused on narcolepsy, idiopathic hypersomnia, and Klein-Levin syndrome, blending personal narratives with expert insights. Episodes span medical, lifestyle, and advocacy angles—from menopause-related sleep disruption and sleep-health education to patient-centered tech platforms and real-world coping strategies. A recurring strength is bringing in clinicians, advocates, and people living with sleep disorders to share practical tips, compassionate storytelling, and resources for navigating diagnosis, treatment, and daily life. The format often emphasizes community, peer support, and proactive advocacy, making it a valuable listen for people affected by these conditions, caregivers, and professionals seeking li... more

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Which podcasts are similar to Narcolepsy Navigators Podcast?

These podcasts share a similar audience with Narcolepsy Navigators Podcast:

1. The Project Sleep Podcast
2. Stuff You Should Know
3. But Why: A Podcast for Curious Kids

How many episodes of Narcolepsy Navigators Podcast are there?

Narcolepsy Navigators Podcast launched 3 years ago and published 63 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Narcolepsy Navigators Podcast?

Recent guests on Narcolepsy Navigators Podcast include:

1. Alejandro Bruno Solas
2. Steve Lewis
3. Vincent Arthur
4. Ashley Blankenship
5. Javier Santa María
6. Dr. Caitlin Chasser
7. Dr. Christopher J. Allen
8. Dr. Anne-Marie Morse

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