Double Rare: A Mother's Path With Two Rare Diseases
Katie CanningJoin us on a deeply moving journey as we delve into the remarkable story of a mother's unwavering love for her son, who battles not one, but two rare diseases. Through candid conversations and heartfelt moments, listeners will gain insight into the challenges, triumphs, and resilience of a family navigating the complexities of rare medical conditions. From the initial shock of diagnosis to the dai... more
| Publishes | Twice weekly | Episodes | 11 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Categories | ParentingEducationKids & Family | ||||
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Latest Episodes
I am live with my fb and I am doing updates from surgeries to new therapy and we got to go to Boston
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So yea what's good without the bad?
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Talking about good things happening obviously :) I mean....vacation for a medical family?
enjoy our info and our podcast? leave a review please!
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On this episode i discuss what happened during my trip to Winston Salem as well as Carters MRI experience. Carter got to see the pulmonologist and an allergist.
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During our trip to Washington, DC for medical research related to my son's Leukodystrophy gene mutation (UBTF), we stayed at the Ronald McDonald House for accommodations. In addition to focusing on medical appointments and research, we took the oppor... more
In this Episode I will talk about our son being discharged from therapies and what appointments we have coming up
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In this episode we will give a little life update. Stay tuned for some news!
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On todays episode we dive into the mental health aspect behind a diagnosis
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Apple Podcasts | #2 |  Brazil/Kids & Family/Parenting |
Apple Podcasts | #30 | Brazil/Kids & Family |
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this podcast launched 2 years ago and published 11 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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