Unstoppable Strides: Navigating Runner's Dystonia
Julie BergfeldJoin Julie and JoJo for information, exploration, stories of hope and real talk related to running with dystonia. Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well.
Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of... more
| Publishes | Twice monthly | Episodes | 29 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | MedicineHealth & FitnessMental Health | |||
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Latest Episodes
Julie talks with Ariel Beccia, a researcher with the Harvard School of Public Health, on her dystonia story and how she got from not running 10 years ago to where she is now with running and racing and workouts.
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Julie sits down with Dr. Bernard Ravina, CEO and founder of Vima Therapeutics. His company is developing a drug that looks promising in helping those with dystonia.
Vima Therapeutic website
Vima Therapeutics team
Site for current Phase 2 dystonia... more
Neurologist Erik van Wensen shares his personal story and where we are with current understanding and research in the area of dystonia and specifically task-specific sports dystonia.
Mentioned in the recording:
EMDR - Eye Movement Desensitization ... more
Julie has a conversation with Boulder, CO runner David Abelson. David has cervical dystonia and has been active in running for more than 30 years. In 2022, he developed dystonia and shares his 4 keys to his path of recovery.
"Don't give up"
Mentio... more
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- Knowledge is Power
A wonderful place to learn about a still mysterious diagnosis “dystopia”. Julie is a skilled interviewer and is able to bring out the emotional as well as the physical aspects of this “challenge”. I highly recommend following this series. The information is powerful for people with dystopia, their families and their medical team.
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Apple Podcasts | #95 |  Brazil/Health & Fitness/Medicine |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
The show centers on running with dystonia, blending personal journeys with medical science and practical strategies. Episodes showcase athletes, clinicians, and researchers discussing diagnosis, treatments, and coping methods—ranging from Botox and deep brain stimulation to brain-body approaches like neuroplasticity training, EMDR, and hypnotherapy. A notable throughline is resilience: reframing illness around adaptive training, community support, and advocacy, with guests sharing lived experiences and professional insights to help listeners stay active and informed. The format often pairs expert perspectives with first-person narratives, offering actionable tips for diagnosis, training adjustments, and mental health alongside exploration o... more
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1. Nobody Asked Us with Des & Kara
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3. unPAUSED with Dr. Mary Claire Haver
4. The Rich Roll Podcast
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this podcast launched 2 years ago and published 29 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Ariel Beccia
2. Bernard Ravina
3. Erik van Wensen
4. David Abelson
5. Whitney Dittmar
6. Dr. Iahn Cajigas
7. Stacey Ginesin
8. Mark Spewak
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