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Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Long Covid
Functional Medicine
Health Care Strategy
Dancing
Acting
Nausea
Dizziness
Brain Fog
Vitamin B12
Mental Health
Venous Insufficiency
Neurology
Mast Cells
Panic Disorder
Psychiatric Symptoms
Mood Disorders

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded4 years ago
Number of ListenersCategories
Self-ImprovementHealth & FitnessMedicineEducation

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Artwork for The POTScast

Latest Episodes

Patrick Ussher is an author, advocate, educator and patient himself.  His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies. ... more

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PA... more

Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions and adding a service dog, Milo, to her already signi... more

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conference.  He and Dr. Dempsey discuss what he learne... more

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Recent Guests

Dr. Gregory Plotnikoff
Founder and medical director of Minnesota Personalized Medicine, an expert in patient care with more than three decades of experience, and noted for his work in the field of personalized medicine and chronic conditions.
Minnesota Personalized Medicine
Episode: Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters
Dr. Asad Khan
Retired physician and respiratory consultant from Manchester, England, and expert on long COVID and associated disorders.
Episode: Dr. Asad Khan on long COVID, micro-clots and more
Caelum Schild
Senior exercise physiologist and founder of Lofty Health and Wellness, and a POTS patient himself
Lofty Health and Wellness
Episode: Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild
Dr. Todd Maderis
World-renowned expert in environmental medicine, specializing in treating chronic illnesses.
Member of various medical organizations including the International Society for Environmentally Acquired Illness.
Episode: Todd Maderis, ND on novel treatments - Mast Cell Matters with Dr. Tania Dempsey
Dr. Jennifer Curtin
Co-founder and chief medical officer of RTHM, physician and expert in infection-associated illnesses.
RTHM Clinic
Episode: POTS Practitioners: Dr. Jen Curtin on the RTHM approach to improving care for complex patients
Marie-Claire Seeley
a clinical nurse and postdoctoral fellow at the University of Adelaide, founder and director of the Australian POTS Foundation
University of Adelaide, Australian POTS Foundation
Episode: Biological Sex Differences in POTS with Marie-Claire Seeley, RN, PhD
Dr. Anna Cabeca
Best-selling author, triple board certified physician specializing in gynecology, integrative medicine, and anti-aging.
Episode: Women’s sexual health with Dr. Anna Cabeca: Mast Cell Matters
Jacquie Baker
Postdoctoral associate studying POTS and autonomic disorders
University of Calgary, Department of Cardiac Sciences
Episode: Hyperventilation in POTS with Jacquie Baker, PhD
Dr. Donna Kirchoff
Developmental pediatrician with a focus on behavioral challenges and integrative medicine.
Episode: MCAS in developmental & behavioral pediatrics with Donna Kirchoff, MD, FAAP: Mast Cell Matters with Dr. Tania Dempsey

Host

Jill Brook
Host focusing on chronic illnesses, patient experiences, and advocating for greater awareness and understanding of POTS and MCAS. Engages in thoughtful discussions with both patients and healthcare professionals.

Reviews

4.8 out of 5 stars from 283 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United Statesa month ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United States10 months ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United Statesa year ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United Statesa year ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the wealth of information and insights provided by both guests and hosts, highlighting how the content resonates deeply with their personal experiences in navigating chronic illnesses.
A recurring theme in reviews is gratitude for the helpful tips and actionable strategies discussed in episodes, as listeners are eager to apply these insights to their own health journeys.
Some concerns have been raised regarding the sensitivity of medical advice provided and the balance between empowerment and the realities of accessing care, yet many still find the podcast invaluable for education and support.
Positive feedback underscores the sense of community fostered through shared stories and advice, providing comfort and validation for listeners dealing with similar challenges.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert
Q: Are there very many of you? Do you have many colleagues who are like you?
There are not many pediatricians specifically working on dysautonomia. There are only one or two colleagues at different institutions.
Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert
Q: How much improvement do you see in children and adolescents?
Most patients improve, with about 75 to 80 percent of patients showing improvement when following the prescribed treatment plan.
Taylor’s pleasure cruise that turned into another journey
Q: So how would your friends or family describe your personality?
They would probably describe me as very outgoing, self-disciplined, and positive, even in the worst situations.
Valerie is thriving in law school after a life-threatening reaction to medication
Q: What do you wish more people understood about POTS?
POTS affects almost every aspect of your body, not just heart rate. People need to recognize the complexity and gravity of the condition.
Valerie is thriving in law school after a life-threatening reaction to medication
Q: What advice do you have for fellow POTS patients?
Focus on one, advocating for yourself and keeping the peace in your life. Surround yourself with supportive people and don't feel guilty about putting yourself first.

Audience Metrics

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Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

Content primarily revolves around Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS), exploring both medical perspectives and personal narratives. Episodes include expert discussions with leading healthcare professionals about recent findings, genetic research, and innovative treatment approaches. Additionally, poignant patient stories are shared, highlighting their experiences and journeys with chronic illness, thereby fostering both empowerment and community support. Unique segments, such as 'Mast Cell Matters', focus specifically on MCAS management from the viewpoint of experienced practitioners, emphasizing holistic care and the interconnection between conditions. This emphasis on patient advocacy,... more

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How many episodes of The POTScast are there?

The POTScast launched 4 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Dr. Gregory Plotnikoff
2. Dr. Asad Khan
3. Caelum Schild
4. Dr. Todd Maderis
5. Dr. Jennifer Curtin
6. Marie-Claire Seeley
7. Dr. Anna Cabeca
8. Jacquie Baker

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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