Rephonic
Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Long COVID
Functional Medicine
Health Care Strategy
Acting
Dancing
Nausea
Dizziness
Brain Fog
Vitamin B12
Mental Health
Venous Insufficiency
Mast Cells
Neurology
Mood Disorders
Psychiatric Symptoms
Panic Disorder

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded5 years ago
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Self-ImprovementEducationHealth & FitnessMedicine

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Artwork for The POTScast

Latest Episodes

Dr. Jen Curtin is the Medical Director and Co-founder of RTHM Clinic, which specializes in complex chronic conditions via their clinic, telemedicine services, Intelligence platform, medication access program and other innovative services. She is also... more

Aryn was a serious college athlete when her POTS developed, and in this episode she shares how she has adapted and how despite having world class cardiology care for her symptoms, her diagnosis would have been missed if it hadn't been for another POT... more

Krysti Monaco helps families apply for disability benefits when their children are too disabled to work.  In this episode she describes the available programs, application process, challenges, pitfalls, important deadlines and more.  Krysti's law fir... more

Dr. Melanie Stein, ND is a licensed Naturopathic Physician in Portland, Oregon and a recognized leader in Cell Membrane Therapy for the treatment of complex and chronic illness. She specializes in restoring health at the cellular level—repairing and ... more

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Recent Guests

Krysti Monaco
Attorney specializing in children's disability benefits in dysautonomia
KB Law (Law Offices of Nancy Cavey)
Episode: Attorney Krysti Monaco on winning children's social security benefits
Melanie Stein
Medical director of Restorative Health Clinic; expert in cell membrane therapy
Restorative Health Clinic of Portland
Episode: Cell membrane health with Dr. Melanie Stein on Mast Cell Matters with Dr. Tania Dempsey
Elizabeth Nielsen
Author of The Toll It Took, POTS patient and aspiring nurse
Episode: Elizabeth on her comeback and book: The Toll it Took
Kirti Sivakoti
Pediatrician focusing on medically complex children; POTS expert; Associate Medical Director, Pain and Autonomic Symptoms Evaluation and Support Program, Primary Children's Center; Affiliate at University of Utah
University of Utah; Primary Children's Center
Episode: Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti
Joanna Behm
Occupational therapist and professor of occupational therapy at Amasaya University, vice president of medical affairs at Dysautonomia Support Network
Dysautonomia Support Network
Episode: The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Madison Thornton
Occupational therapist at Sky High Occupational Therapy, experienced in pediatric care and personal experience with dysautonomia
Sky High Occupational Therapy
Episode: The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Dr. Casey Kelley
Board certified physician in family and integrative medicine, founder of Case Integrative Health
Case Integrative Health
Episode: Dr. Casey Kelley on Mast Cell Matters
Dr. Tanya Dempsey
Johns Hopkins Med School graduate, world-renowned mast cell expert.
Episode: Dr. Casey Kelley on Mast Cell Matters
Nancy Cavey
Disability Benefits Attorney with extensive experience in social security and long-term disability cases, specializing in autonomic dysfunction and invisible illnesses.
Cavey Law
Episode: Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Host

Jill Brook
Host with expertise in chronic illness community education and advocacy.

Reviews

4.9 out of 5 stars from 289 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United States8 months ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United Statesa year ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United States2 years ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United States2 years ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The show is valued for practical tips and community-building around POTS/MCAS.
Guests are often experts who blend clinical insight with patient-centered storytelling.
Listeners praise empathetic, hopeful hosting and clear explanations of complex conditions.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Attorney Krysti Monaco on winning children's social security benefits
Q: When should parents involve a attorney in the process?
Attorneys can help from the start, especially in organizing evidence and communicating with doctors and schools; you should consider hiring counsel for the hearing stage to ensure your story is presented in line with Social Security rules.
Attorney Krysti Monaco on winning children's social security benefits
Q: What evidence does Social Security require for children, and how is it different from adults?
Since children don't have a work history, Social Security evaluates six functional domains and requires medical records plus school-related documentation, such as IEPs or 504 plans, to show extreme or marked limitations in daily functioning.
Attorney Krysti Monaco on winning children's social security benefits
Q: How did you get into this space and decide to focus on children's disability benefits in the world of dysautonomia?
A pivotal moment at a Dysautonomia International Conference inspired me to shift our practice toward children, recognizing how hard it is for families to navigate benefits and how crucial it is to advocate with knowledge of the social security system.
Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti
Q: What role do medications play in managing sleep issues in POTS, and when might stimulants be appropriate?
Medications can be helpful when first-line measures are insufficient, with careful consideration of how they affect heart rate, blood pressure, and sleep architecture; stimulants may be appropriate in select cases with brain fog and wakefulness difficulties, particularly after addressing low ferritin and other modifiable factors, but should be used cautiously due to cardiovascular effects.
Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti
Q: When should caregivers consider sleep studies or sleep medicine referrals for a child with POTS?
Referral should be considered after thorough optimization of POTS management (fluids, salt, compression, exercise), assessment of ferritin and restless legs syndrome, and implementation of sleep hygiene and CBTI; if sleep disruption persists despite these efforts, a sleep study can help evaluate sleep architecture and potential comorbid sleep disorders.

Audience Metrics

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Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

This show centers on POTS, MCAS, and related chronic illnesses, balancing expert medical discussions with patient perspectives. Episodes frequently feature clinicians who specialize in dysautonomia, MCAS, and vascular or GI aspects of these conditions, alongside firsthand patient experiences that illuminate daily living, advocacy, and navigating healthcare. A notable pattern is the monthly Mast Cell Matters series, which spotlights top MCAS practitioners and multi-system disease management. Listeners often seek practical tips, treatment considerations, and stories of resilience to feel understood and empowered in their health journeys.

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How many episodes of The POTScast are there?

The POTScast launched 5 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Krysti Monaco
2. Melanie Stein
3. Elizabeth Nielsen
4. Kirti Sivakoti
5. Joanna Behm
6. Madison Thornton
7. Dr. Casey Kelley
8. Dr. Tanya Dempsey

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