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Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Dysautonomia
Mental Health
Long Covid
Covid-19
Postural Orthostatic Tachycardia Syndrome (POTS)
Nutrition
Chronic Fatigue Syndrome
Ehlers-Danlos Syndrome
Anxiety
Lyme Disease
Chronic Illness Awareness
Hormones
Functional Medicine
Integrative Medicine
MCAS
Chronic Illness Management

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded5 years ago
Number of ListenersCategories
MedicineEducationHealth & FitnessSelf-Improvement

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Artwork for The POTScast

Latest Episodes

In this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on highly reactive MCAS patients, thoughts on the new Lyme vaccine, SOT the... more

Emily's daughter had sensitivities since a very young age.  Emily recounts their journey with mysterious symptoms, good and bad medical encounters, conventional and unconventional treatments, faith and prayer, an unfortunate drug reaction, progress a... more

Austin Walker sold his last company in 2020, then got COVID and never recovered. He spent 9 months bedridden, saw 20+ doctors who all dismissed it as stress. He eventually got better by joining online patient communities, collecting what was working ... more

After successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series, Dr. Robert Groysman has published a peer-reviewed article in Frontiers i... more

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Recent Guests

Austin Walker
Founder of Atlas AI
Atlas AI
Episode: Founder Austin Walker on Building the AI Layer for Chronic Illness
Tiffany Hoke
Doctor of Nursing Practice specializing in neurovascular care; CEO of Our Neuro Network
Our Neuro Network
Episode: Tiffany Hoke DNP, Complex neurovascular patient turned expert helping others
Debra Hawkins
Doctor of Nursing Practice and cardiology provider
Cardiovascular Health Clinics (Oklahoma)
Episode: Debra Hawkins, DNP, dysautonomia specialist with ER experience
Kamal Chémali
Autonomic neurologist, professor of medicine, director of autonomic programs
Case Western Reserve University
Episode: Dr. Kamal Chemali on Music and Medicine
Krista Day-Gloe
Licensed clinical social worker and therapist focusing on mind-body connections; author of Mood & Moon
Healing Roots Wellness Center
Episode: Moon and Mood: Tracking and managing hormone shifts with Krista Day-Gloe, LCSW
Nellie Clay
Western folk singer-songwriter living with POTS
Independent artist
Episode: Tinsley on law school, a dream job, marriage, and making it work with severe POTS
Simone Erdner
Dr., host of The Nutcracker Syndrome Podcast, associate professor of sports psychology
Nutcracker Syndrome Podcast; University/academic role not fully specified in transcript
Episode: A happy ending after surgeries, stenting, & a renal auto-transplant - with Simone Erdner, PhD
Betsy Harmon
RN, CRNI, CPUI, VA-BC; infusion nurse with extensive experience in Alaska
Alaska Infusion Center; Alaska Native Medical Center (former)
Episode: All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC
Sally Daganzo
Board certified internal medicine physician with advanced training in psychiatry, eating disorders, and functional medicine
Private practice, San Rafael, California
Episode: Dr. Sally Daganzo on eating disorders, physical drivers of mental health and more

Host

Jill Brook
Host of The POTScast, Standing Up to POTS (The POTScast) and related programs; leads conversations with patients, clinicians, and advocates to shed light on POTS, MCAS, and related conditions.

Reviews

4.9 out of 5 stars from 298 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United Statesa year ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United States2 years ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United States2 years ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United States2 years ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Many praise the host's empathy, thorough questioning, and ability to translate medical concepts for patients.
Episodes are described as uplifting, informative, and supportive for those navigating diagnosis and treatment.
Some listeners appreciate the mix of patient stories and clinical guidance, though a portion notes the need for more diverse patient perspectives.
A few listeners request coverage of additional topics like teen POTS experiences and practical insurance advice.
Listeners find the show to be a valuable resource for understanding POTS and related conditions.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Founder Austin Walker on Building the AI Layer for Chronic Illness
Q: What do you wish people understood about chronic illness?
He notes the invisibility of many chronic illnesses, the need to set expectations with others about how you want them to show up, and the desire for more accessible care and more dedicated clinicians in the field.
Founder Austin Walker on Building the AI Layer for Chronic Illness
Q: What are your plans for Atlas AI and how can people participate?
He envisions replacing scattered patient information sources with a single, adaptive platform and is inviting community feedback via a Discord server to shape a community-driven product; the product is currently free with potential usage limits in the future.
Founder Austin Walker on Building the AI Layer for Chronic Illness
Q: Can you explain how you balance health with being a founder?
He describes himself as all-in by default, often pushing long hours, but acknowledges that this is risky; he prioritizes the project when feeling well and recalibrates when hitting walls, balancing ambition with health constraints.
Connecting the Dots in Long COVID with Dr. Robert Groysman
Q: How does your network model apply to patients who had Long COVID symptoms years after the initial infection?
The model emphasizes persistent loops and amplifiers that can continue to drive symptoms even after the original trigger is gone, suggesting that treatment should target ongoing mechanisms and interactions rather than chasing a static diagnosis.
Connecting the Dots in Long COVID with Dr. Robert Groysman
Q: What problem were you trying to solve when you decided that COVID needed a new different model?
I initially sought something that would help my patients, but quickly realized existing models missed too many details to act on them, leading me to propose a network-based framework that accounts for multiple interacting mechanisms rather than a single cause.

Audience Metrics

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Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

The show centers on POTS, MCAS, and related chronic illnesses, offering patient stories, clinical insights, and practical guidance. Episodes balance clinician expertise with lived experience—from infusion techniques and sleep in POTS to long COVID treatment guides and advocacy—creating a resource that educates, validates, and motivates listeners to manage daily life, seek appropriate care, and engage with the medical system. A notable strength is the recurring Mast Cell Matters series, which brings top MCAS practitioners into focused conversations, along with patient-first episodes that illuminate diagnosis journeys, treatment trials, and resilience. The show's approachable format, emphasis on advocacy, and diverse guest mix—from nurses and... more

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How many episodes of The POTScast are there?

The POTScast launched 5 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Austin Walker
2. Tiffany Hoke
3. Debra Hawkins
4. Kamal Chémali
5. Krista Day-Gloe
6. Nellie Clay
7. Simone Erdner
8. Betsy Harmon

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