Rephonic
Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Dysautonomia
Mental Health
Long COVID
Covid-19
Postural Orthostatic Tachycardia Syndrome (POTS)
Nutrition
Chronic Fatigue Syndrome
Ehlers-Danlos Syndrome
Anxiety
Lyme Disease
Chronic Illness Awareness
Hormones
Functional Medicine
Integrative Medicine
MCAS
Chronic Illness Management

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded5 years ago
Number of ListenersCategories
MedicineEducationSelf-ImprovementHealth & Fitness

Listen to this Podcast

Artwork for The POTScast

Latest Episodes

Krista Day-Gloe is a licensed clinical social worker and therapist who focuses on the mind–body connection. She’s the author of Mood & Moon: A Body-Led Guide to Understanding Cycling Bodies, a practical guide and tracking workbook that helps people c... more

Tinsley has had POTS symptoms during two different stages of her life.  First at 16, in response to a severe allergic reaction to her braces, which went into remission when she had them removed; and second, during college, when she suddenly began hav... more

This is a not-to-be-missed episode!  Dr. Dempsey discusses the use of GLP-1 medications for MCAS, including her most recent observations and recommendations.  This is a follow-up to Dr. Dempsey's free online GLP-1 Masterclass, which covers all the ba... more

Simone was a professor of sport psychology enjoying a trip through Mexico when symptoms became too serious to ignore.  POTS was just one of many symptoms (many were gynecological) and she ultimately learned she had multiple compression syndromes incl... more

Key Facts

Accepts Guests
Contact Information
Podcast Host
Number of Listeners
Find out how many people listen to this podcast per episode and each month.

Recent Guests

Simone Erdner
Dr., host of The Nutcracker Syndrome Podcast, associate professor of sports psychology
Nutcracker Syndrome Podcast; University/academic role not fully specified in transcript
Episode: A happy ending after surgeries, stenting, & a renal auto-transplant - with Simone Erdner, PhD
Betsy Harmon
RN, CRNI, CPUI, VA-BC; infusion nurse with extensive experience in Alaska
Alaska Infusion Center; Alaska Native Medical Center (former)
Episode: All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC
Sally Daganzo
Board certified internal medicine physician with advanced training in psychiatry, eating disorders, and functional medicine
Private practice, San Rafael, California
Episode: Dr. Sally Daganzo on eating disorders, physical drivers of mental health and more
Charlie McCone
Patient advocate with extensive non-profit experience
Patient-Led Research Collaborative
Episode: The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone
Krysti Monaco
Attorney specializing in children's disability benefits in dysautonomia
KB Law (Law Offices of Nancy Cavey)
Episode: Attorney Krysti Monaco on winning children's social security benefits
Melanie Stein
Medical director of Restorative Health Clinic; expert in cell membrane therapy
Restorative Health Clinic of Portland
Episode: Cell membrane health with Dr. Melanie Stein on Mast Cell Matters with Dr. Tania Dempsey
Elizabeth Nielsen
Author of The Toll It Took, POTS patient and aspiring nurse
Episode: Elizabeth on her comeback and book: The Toll it Took
Kirti Sivakoti
Pediatrician focusing on medically complex children; POTS expert; Associate Medical Director, Pain and Autonomic Symptoms Evaluation and Support Program, Primary Children's Center; Affiliate at University of Utah
University of Utah; Primary Children's Center
Episode: Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti
Joanna Behm
Occupational therapist and professor of occupational therapy at Amasaya University, vice president of medical affairs at Dysautonomia Support Network
Dysautonomia Support Network
Episode: The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L

Host

Jill Brook
Host of The POTScast, Standing Up to POTS (The POTScast) and related programs; leads conversations with patients, clinicians, and advocates to shed light on POTS, MCAS, and related conditions.

Reviews

4.9 out of 5 stars from 295 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United States10 months ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United States2 years ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United States2 years ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United States2 years ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Many praise the host's empathy, thorough questioning, and ability to translate medical concepts for patients.
Episodes are described as uplifting, informative, and supportive for those navigating diagnosis and treatment.
Some listeners appreciate the mix of patient stories and clinical guidance, though a portion notes the need for more diverse patient perspectives.
A few listeners request coverage of additional topics like teen POTS experiences and practical insurance advice.
Listeners find the show to be a valuable resource for understanding POTS and related conditions.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

A happy ending after surgeries, stenting, & a renal auto-transplant - with Simone Erdner, PhD
Q: Can you tell us a bit about your background and how you ended up dealing with Nutcracker Syndrome and POTS?
Dr. Erdner describes a lifelong athletic background, the emergence of vascular compression symptoms in 2023, and how Nutcracker, May-Thurner, and gynecologic issues intersected with POTS, leading to a complex treatment journey including a kidney auto-transplant.
All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC
Q: So how does somebody become an infusion nurse?
Betsy explains there isn't a single secret; the path involves hands-on learning, mentorship from experienced infusion nurses, formal training in IV techniques, and adherence to infusion standards of practice. Education often includes specialized courses and continuous skill development beyond nursing school.
Diaries with Amy on horses, family fun, and spending over half her life with POTS
Q: What are some practical tips for living with POTS?
Use hydration strategies (Liquid IV), portable cooling, a shower chair, and engage in grounding activities like time with horses to manage symptoms.
Diaries with Amy on horses, family fun, and spending over half her life with POTS
Q: What should we know about Amy and her experience with POTS?
Amy explains her diagnosis at 15, the long journey to understanding POTS, and how the condition shaped her education, family life, and coping strategies.
Attorney Krysti Monaco on winning children's social security benefits
Q: When should parents involve a attorney in the process?
Attorneys can help from the start, especially in organizing evidence and communicating with doctors and schools; you should consider hiring counsel for the hearing stage to ensure your story is presented in line with Social Security rules.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
Gender Skew
Location
Interests
Professions
Age Range
Household Income
Social Media Reach

Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

The show centers on POTS, MCAS, and related chronic illnesses, offering patient stories, clinical insights, and practical guidance. Episodes balance clinician expertise with lived experience—from infusion techniques and sleep in POTS to long COVID treatment guides and advocacy—creating a resource that educates, validates, and motivates listeners to manage daily life, seek appropriate care, and engage with the medical system. A notable strength is the recurring Mast Cell Matters series, which brings top MCAS practitioners into focused conversations, along with patient-first episodes that illuminate diagnosis journeys, treatment trials, and resilience. The show's approachable format, emphasis on advocacy, and diverse guest mix—from nurses and... more

Where can I find podcast stats for The POTScast?

Rephonic provides a wide range of podcast stats for The POTScast. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to The POTScast and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does The POTScast get?

Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for The POTScast, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.

What are the audience demographics for The POTScast?

Rephonic provides comprehensive predictive audience data for The POTScast, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.

How many subscribers and views does The POTScast have?

To see how many followers or subscribers The POTScast has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

How many episodes of The POTScast are there?

The POTScast launched 5 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact The POTScast?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for The POTScast?

Rephonic pulls ratings and reviews for The POTScast from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.

How do I access podcast episode transcripts for The POTScast?

Rephonic provides full transcripts for episodes of The POTScast. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.

What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Simone Erdner
2. Betsy Harmon
3. Sally Daganzo
4. Charlie McCone
5. Krysti Monaco
6. Melanie Stein
7. Elizabeth Nielsen
8. Kirti Sivakoti

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

Find and pitch the right podcasts

We help savvy brands, marketers and PR professionals to find the right podcasts for any topic or niche. Get the data and contacts you need to pitch podcasts at scale and turn listeners into customers.
Try it free for 7 days