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Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Dysautonomia
Mental Health
Long COVID
Covid-19
Postural Orthostatic Tachycardia Syndrome (POTS)
Nutrition
Chronic Fatigue Syndrome
Ehlers-Danlos Syndrome
Anxiety
Lyme Disease
Chronic Illness Awareness
Hormones
Functional Medicine
Integrative Medicine
MCAS
Chronic Illness Management

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded5 years ago
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MedicineEducationHealth & FitnessSelf-Improvement

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Artwork for The POTScast

Latest Episodes

Dr. Debra Hawkins, DNP, is an advanced practice nurse and cardiology provider at Cardiovascular Health Clinics in Oklahoma specializing in POTS and autonomic dysfunction.  She brings a unique perspective -- from initially overlooking these conditions... more

Nicole is a live morning news reporter (on her feet from 1am to 9am!) and horse lover in Hawaii who has dealt with type 1 diabetes, cyclic vomiting syndrome, POTS and more.  In this episode Nicole describes her journey and how she is using her commun... more

Dr. Kamal Chemali is an autonomic neurologist, Professor of Medicine and Director of the Autonomic Nervous system Program at Case Western Reserve University. He started studying the piano at age seven and today is a conservatory-trained pianist who s... more

Krista Day-Gloe is a licensed clinical social worker and therapist who focuses on the mind–body connection. She’s the author of Mood & Moon: A Body-Led Guide to Understanding Cycling Bodies, a practical guide and tracking workbook that helps people c... more

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Recent Guests

Kamal Chémali
Autonomic neurologist, professor of medicine, director of autonomic programs
Case Western Reserve University
Episode: Dr. Kamal Chemali on Music and Medicine
Krista Day-Gloe
Licensed clinical social worker and therapist focusing on mind-body connections; author of Mood & Moon
Healing Roots Wellness Center
Episode: Moon and Mood: Tracking and managing hormone shifts with Krista Day-Gloe, LCSW
Nellie Clay
Western folk singer-songwriter living with POTS
Independent artist
Episode: Tinsley on law school, a dream job, marriage, and making it work with severe POTS
Simone Erdner
Dr., host of The Nutcracker Syndrome Podcast, associate professor of sports psychology
Nutcracker Syndrome Podcast; University/academic role not fully specified in transcript
Episode: A happy ending after surgeries, stenting, & a renal auto-transplant - with Simone Erdner, PhD
Betsy Harmon
RN, CRNI, CPUI, VA-BC; infusion nurse with extensive experience in Alaska
Alaska Infusion Center; Alaska Native Medical Center (former)
Episode: All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC
Sally Daganzo
Board certified internal medicine physician with advanced training in psychiatry, eating disorders, and functional medicine
Private practice, San Rafael, California
Episode: Dr. Sally Daganzo on eating disorders, physical drivers of mental health and more
Dr. Jennifer Curtin
Chief Medical Officer and Co-Founder of the RTHM Clinic
RTHM Clinic
Episode: The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone
Charlie McCone
Patient advocate with extensive non-profit experience
Patient-Led Research Collaborative
Episode: The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone
Krysti Monaco
Attorney specializing in children's disability benefits in dysautonomia
KB Law (Law Offices of Nancy Cavey)
Episode: Attorney Krysti Monaco on winning children's social security benefits

Host

Jill Brook
Host of The POTScast, Standing Up to POTS (The POTScast) and related programs; leads conversations with patients, clinicians, and advocates to shed light on POTS, MCAS, and related conditions.

Reviews

4.9 out of 5 stars from 295 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United States10 months ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United States2 years ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United States2 years ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United States2 years ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Many praise the host's empathy, thorough questioning, and ability to translate medical concepts for patients.
Episodes are described as uplifting, informative, and supportive for those navigating diagnosis and treatment.
Some listeners appreciate the mix of patient stories and clinical guidance, though a portion notes the need for more diverse patient perspectives.
A few listeners request coverage of additional topics like teen POTS experiences and practical insurance advice.
Listeners find the show to be a valuable resource for understanding POTS and related conditions.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Dr. Kamal Chemali on Music and Medicine
Q: How is music therapy different from simply listening to music, and what is the most useful way to apply music for health?
Music therapy is a formal, clinician-guided intervention with defined goals and protocols, whereas listening is a personal, self-directed experience; the most useful approach combines evidence-based music therapy protocols—often involving tempo, rhythm, and harmonics—with patient-centered listening and participation.
A happy ending after surgeries, stenting, & a renal auto-transplant - with Simone Erdner, PhD
Q: Can you tell us a bit about your background and how you ended up dealing with Nutcracker Syndrome and POTS?
Dr. Erdner describes a lifelong athletic background, the emergence of vascular compression symptoms in 2023, and how Nutcracker, May-Thurner, and gynecologic issues intersected with POTS, leading to a complex treatment journey including a kidney auto-transplant.
All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC
Q: So how does somebody become an infusion nurse?
Betsy explains there isn't a single secret; the path involves hands-on learning, mentorship from experienced infusion nurses, formal training in IV techniques, and adherence to infusion standards of practice. Education often includes specialized courses and continuous skill development beyond nursing school.
Diaries with Amy on horses, family fun, and spending over half her life with POTS
Q: What are some practical tips for living with POTS?
Use hydration strategies (Liquid IV), portable cooling, a shower chair, and engage in grounding activities like time with horses to manage symptoms.
Diaries with Amy on horses, family fun, and spending over half her life with POTS
Q: What should we know about Amy and her experience with POTS?
Amy explains her diagnosis at 15, the long journey to understanding POTS, and how the condition shaped her education, family life, and coping strategies.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

The show centers on POTS, MCAS, and related chronic illnesses, offering patient stories, clinical insights, and practical guidance. Episodes balance clinician expertise with lived experience—from infusion techniques and sleep in POTS to long COVID treatment guides and advocacy—creating a resource that educates, validates, and motivates listeners to manage daily life, seek appropriate care, and engage with the medical system. A notable strength is the recurring Mast Cell Matters series, which brings top MCAS practitioners into focused conversations, along with patient-first episodes that illuminate diagnosis journeys, treatment trials, and resilience. The show's approachable format, emphasis on advocacy, and diverse guest mix—from nurses and... more

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How many episodes of The POTScast are there?

The POTScast launched 5 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Kamal Chémali
2. Krista Day-Gloe
3. Nellie Clay
4. Simone Erdner
5. Betsy Harmon
6. Sally Daganzo
7. Dr. Jennifer Curtin
8. Charlie McCone

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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