Rephonic
Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Long COVID
Functional Medicine
Health Care Strategy
Acting
Dancing
Brain Fog
Dizziness
Nausea
Vitamin B12
Mental Health
Venous Insufficiency
Neurology
Mast Cells
Panic Disorder
Psychiatric Symptoms
Mood Disorders

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded5 years ago
Number of ListenersCategories
Self-ImprovementEducationMedicineHealth & Fitness

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Artwork for The POTScast

Latest Episodes

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing venous compression syndromes such as May Thurner Syn... more

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling services to patients with suspected genetic conne... more

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new game plan....one that doesn't involve so many hours o... more

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light blood irradiation and more.  In this episode she ... more

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Recent Guests

Brianne Dressen
Founder and co-chair of React19, a nonprofit providing support for people suffering from COVID-19 vaccine injuries.
React19
Episode: Progress for the COVID vaccine injured with REACT19 Co-Chairman Brianne Dressen
Dr. Kathy Peterson
President and Founder of Standing Up to POTS
Standing Up to POTS
Episode: Live from the 12th annual Run for Research - interviews with participants
Matt Buer
Volunteer and generous sponsor of the event
Thrivent Main Street Financial Group
Episode: Live from the 12th annual Run for Research - interviews with participants
Dr. Robert Groysman
A physician with expertise in treating long COVID, POTS, MCAS, and dysautonomia.
Clinic in Irving, Texas
Episode: Dr. Robert Groysman on mechanisms, novel treatments, E.A.T., stellate ganglion block and more
Jill Krapf
Board-certified OBGYN specializing in female sexual pain disorders.
Center for Vulvovaginal Disorders, Florida
Episode: Jill Krapf, MD on painful sex, vulvovaginal disorders and mast cells with Dr. Tania Dempsey on Mast Cell Matters
Tristan Wheeler
POTS patient living in the Sierra Nevada Mountains.
Episode: Tristan, from hiking, skating and EMT training to a looong wait
Dr. Kendal Stewart
Neuroimmune specialist with a background in neurosurgery and functional medicine.
Neurosensory Centers of America
Episode: Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of POTS, genetics and novel treatments
Patrick Ussher
Author of Understanding ME, CFS and Strategies for Healing
Author, Speaker, and YouTuber
Episode: Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing
Dr. Gregory Plotnikoff
Founder and medical director of Minnesota Personalized Medicine, an expert in patient care with more than three decades of experience, and noted for his work in the field of personalized medicine and chronic conditions.
Minnesota Personalized Medicine
Episode: Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters

Host

Jill Brook
Host of the podcast, actively engages with guests to provide insights into living with POTS and MCAS by blending patient narratives with expert medical advice.

Reviews

4.9 out of 5 stars from 285 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United States4 months ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United Statesa year ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United States2 years ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United States2 years ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the informative nature of the content and how relatable the experiences shared are.
Overall, the discussions are regarded as compassionate and empathetic, making listeners feel understood and supported.
The personal stories shared by guests resonate deeply with the audience, fostering a sense of community.
Some feedback suggests a desire for more varied viewpoints on medical and dietary advice.
Many find the podcast to be an invaluable resource for managing chronic illnesses like POTS and MCAS.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Dr. Dempsey on leading edge treatments she is finding helpful
Q: How do you decide if a patient is ready for Therapeutic Plasma Exchange?
It doesn't have to be for the most severe cases; anyone looking to improve their quality of life may benefit, even if their symptoms are mild.
Dr. Dempsey on leading edge treatments she is finding helpful
Q: What is Therapeutic Plasma Exchange and when do you use it?
It's a process of cleaning the blood from bad antibodies in autoimmune diseases, and it's increasingly being used for chronic conditions, including MCAS.
Jace on health policy, why “being a burden is a blessing”, and much more
Q: What advice do you have for people who are either looking for jobs or thinking about accepting jobs, or thinking about whether to tell a potential employer that they have POTS?
It's important to discuss your symptoms upfront and ascertain the employer's readiness to provide accommodations based on those needs.
Jace on health policy, why “being a burden is a blessing”, and much more
Q: How did you manage to get through college and grad school with all this going on?
Support from friends and professors, plus online classes that let him rest, helped him cope with his POTS symptoms during his studies.
Sarah from FL on life after COVID/POTS/MCAS
Q: Did you feel that your friends and family understood your experience?
Sarah mentions that she was often dismissed and felt misunderstood, particularly at the beginning of her health journey.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

This podcast focuses on providing comprehensive information about Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS), along with other related chronic illnesses. Episodes feature insightful discussions with leading medical professionals as well as personal stories from patients, aiming to foster a supportive community and empower listeners with useful tools and knowledge to manage their conditions effectively. The unique monthly series, Mast Cell Matters, highlights advanced treatment approaches and the experiences of experts in mast cell disorders, enhancing its appeal to those seeking specific information on this often-overlooked aspect of chronic health issues.

Where can I find podcast stats for The POTScast?

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How many listeners does The POTScast get?

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What are the audience demographics for The POTScast?

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To see how many followers or subscribers The POTScast has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

How many episodes of The POTScast are there?

The POTScast launched 5 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact The POTScast?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for The POTScast?

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What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Brianne Dressen
2. Dr. Kathy Peterson
3. Matt Buer
4. Dr. Robert Groysman
5. Jill Krapf
6. Tristan Wheeler
7. Dr. Kendal Stewart
8. Patrick Ussher

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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