Rephonic
Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Long COVID
Functional Medicine
Health Care Strategy
Dancing
Acting
Brain Fog
Dizziness
Nausea
Vitamin B12
Mental Health
Venous Insufficiency
Mast Cells
Neurology
Panic Disorder
Psychiatric Symptoms
Mood Disorders

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded5 years ago
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EducationHealth & FitnessSelf-ImprovementMedicine

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Artwork for The POTScast

Latest Episodes

Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis.  After 5 years of struggling to be heard or helped, and wondering if the struggle was worth it, she ... more

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PA... more

Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not endorsing: talk to YOUR doctor about what is right for you), a lot of internet... more

Dr. Dempsey is always looking for new therapies that may help her complex patients.  In this episode Dr. Dempsey discusses how she incorporates treatments with Methylene Blue, peptides, and the Nanovi breathing device.  For each one she explains what... more

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Recent Guests

Joanna Behm
Occupational therapist and professor of occupational therapy at Amasaya University, vice president of medical affairs at Dysautonomia Support Network
Dysautonomia Support Network
Episode: The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Madison Thornton
Occupational therapist at Sky High Occupational Therapy, experienced in pediatric care and personal experience with dysautonomia
Sky High Occupational Therapy
Episode: The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Dr. Casey Kelley
Board certified physician in family and integrative medicine, founder of Case Integrative Health
Case Integrative Health
Episode: Dr. Casey Kelley on Mast Cell Matters
Dr. Tanya Dempsey
Johns Hopkins Med School graduate, world-renowned mast cell expert.
Episode: Dr. Casey Kelley on Mast Cell Matters
Nancy Cavey
Disability Benefits Attorney with extensive experience in social security and long-term disability cases, specializing in autonomic dysfunction and invisible illnesses.
Cavey Law
Episode: Attorney Nancy Cavey on disability benefits for POTS/dysautonomia
Dr. Zac Spiritos
Gastroenterologist specializing in GI and liver disorders, with a focus on POTS and MCAS
Ever Better Medicine
Episode: Zac Spiritos, MD, MPH on neurogastroenterology with Dr. Tania Dempsey on Mast Cell Matters
Deena Chihade
Board-certified vascular surgeon with extensive experience treating vascular issues
St. Louis Vascular Surgical Specialists
Episode: Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS
Robert Hacker
Board-certified general and vascular surgeon, fellow of multiple surgical organizations
St. Louis Vascular Surgical Specialists
Episode: Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS
Heather Perne
Nurse Practitioner specializing in vascular medicine and connective tissue disorders.
ProMedica Jobs Vascular Clinic
Episode: Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Host

Jill Brook
Host with expertise in chronic illness community education and advocacy.

Reviews

4.9 out of 5 stars from 288 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United States7 months ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United Statesa year ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United States2 years ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United States2 years ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The show is valued for practical tips and community-building around POTS/MCAS.
Guests are often experts who blend clinical insight with patient-centered storytelling.
Listeners praise empathetic, hopeful hosting and clear explanations of complex conditions.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Julie on the lengths she had to go to for recovery
Q: What role did perseverance and advocacy play in your recovery?
Julie describes fighting dismissal as anxiety, pursuing multiple doctors, obtaining a lawsuit, and ultimately seeking out a specialized surgeon abroad to advocate for her health, which was crucial to achieving a meaningful recovery.
Julie on the lengths she had to go to for recovery
Q: How did the iliac vein compression discovery change your treatment?
The discovery led to four venous stents being placed, which markedly reduced her POTS symptoms; it didn't cure everything but brought substantial improvement and enabled greater mobility and activity.
Julie on the lengths she had to go to for recovery
Q: What was the turning point when you realized your symptoms were something more than anxiety?
After years of experiencing extreme vertigo, palpitations, and episodes following a neck surgery, and with doctors insisting it was anxiety, she finally received a concrete medical pathway through a vascular evaluation that revealed significant iliac vein compression.
The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Q: Why is it a workbook and not just a handbook?
Madison clarifies that they wanted to create an evidence-based resource that was also practical, allowing for interactive engagement with the content.
The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Q: Can you tell us more about your professional background and interest in occupational therapy for dysautonomia?
Madison explains her clinical experience as a pediatric occupational therapist and her personal connection to dysautonomia, influencing her approach and expertise.

Audience Metrics

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Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

This show centers on POTS, MCAS, and related chronic illnesses, balancing expert medical discussions with patient perspectives. Episodes frequently feature clinicians who specialize in dysautonomia, MCAS, and vascular or GI aspects of these conditions, alongside firsthand patient experiences that illuminate daily living, advocacy, and navigating healthcare. A notable pattern is the monthly Mast Cell Matters series, which spotlights top MCAS practitioners and multi-system disease management. Listeners often seek practical tips, treatment considerations, and stories of resilience to feel understood and empowered in their health journeys.

Where can I find podcast stats for The POTScast?

Rephonic provides a wide range of podcast stats for The POTScast. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to The POTScast and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does The POTScast get?

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What are the audience demographics for The POTScast?

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How many subscribers and views does The POTScast have?

To see how many followers or subscribers The POTScast has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

How many episodes of The POTScast are there?

The POTScast launched 5 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact The POTScast?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for The POTScast?

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What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Joanna Behm
2. Madison Thornton
3. Dr. Casey Kelley
4. Dr. Tanya Dempsey
5. Nancy Cavey
6. Dr. Zac Spiritos
7. Deena Chihade
8. Robert Hacker

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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