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The Incubator: Beyond The Beeps

The Incubator Podcast & ICU Baby
NICU
Parenting
Neonatology
Advocacy
Breastfeeding
ICU Baby
Preterm Birth
Healthcare
Grief Support
Mental Health
Maternal Health
Premature Birth
Pediatrics
Support Services For Parents
Family Support
Child Development
Children's Health
Family-Centered Care
Kangaroo Care
Healthcare Navigation

Hosted by Leah Jayanetti from parent support organization ICU Baby, Beyond the Beeps pulls back the curtain on the NICU experience, helping parents navigate this new world, understand their baby's journey, and learn about healthcare approaches and medical decision making. Through storytelling and education, we foster hope and empower parents to actively engage with their healthcare team, ultimatel... more

PublishesMonthlyEpisodes24Founded6 months ago
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Kids & FamilyParenting

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Artwork for The Incubator: Beyond The Beeps

Latest Episodes

This week, Leah sits down with Betsy Pilon, Executive Director of Hope for HIE, the global nonprofit dedicated to supporting families impacted by hypoxic ischemic encephalopathy. Betsy shares her personal journey as a NICU parent, from the frightenin... more

Amber and Andrew Vassell navigated two NICU stays with faith, advocacy, and what they call bubbling. From Austin, born at 25 weeks and one pound one ounce, to Aaliyah at 26 weeks, the Vassells built relationships with care teams, requested meetings, ... more

Victoria Varela-Hefty, director of programs at ICU Baby and mother of James, a 28-weeker born in 2024, shares her NICU journey with honesty and grace. From a high-risk pregnancy complicated by Sjögren's syndrome and preeclampsia to an emergency class... more

In this special double episode of Beyond the Beeps, we're marking ROP Awareness Week with a full look at Retinopathy of Prematurity — from the medical side to the deeply human side. First, Dr. Faizah Bhatti walks us through what ROP is, its causes, r... more

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Recent Guests

Betsy Pilon
Executive Director of Hope for HIE
Hope for HIE
Episode: #024 - What Does It Mean to Truly Support a Family Through HIE?
Amber Vassell
NICU mom, co-founder of Neo Haven
Neo Haven
Episode: #023 - How Did Faith and Advocacy Carry the Vassells Through the NICU Twice?
Andrew Vassell
NICU dad, co-founder of Neo Haven
Neo Haven
Episode: #023 - How Did Faith and Advocacy Carry the Vassells Through the NICU Twice?
Victoria Varela-Hefty
NICU parent and ICU Baby director of programs
ICU Baby
Episode: #022 - What Happens When Nobody Tells You What to Expect in the NICU?
Faizah Bhatti
Neonatologist with a focus on retinopathy of prematurity
Oklahoma Children's Hospital / University of Oklahoma
Episode: #021 - Fighting for Sight: ROP Awareness Week Special
Tyronza Williams
Founder of Feel Your Feelings; NICU advocate and parent of a 23-weeker
Feel Your Feelings; Storytime with Ty
Episode: #021 - Fighting for Sight: ROP Awareness Week Special
Alena Costume
Manager of Health Promotion and Wellness at Barry University, NICU mother, founder of Touching Tiny Hands
Touching Tiny Hands
Episode: #020 - Belonging in the NICU during the Holidays
Keira Sorrells
Founder of the NICU Parent Network
NICU Parent Network
Episode: #019 - Keira’s journey from the NICU to the NICU Parent Network
Jennifer Bernardo
A passionate advocate and author of 'Week 26,' documenting her NICU experience with her twins.
Episode: #018 - A Memoir of Hope: A Conversation with Jennifer Bernardo

Host

Leah Jayanetti
Host of Beyond The Beeps and related NICU-focused programming with ICU Baby.

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

#024 - What Does It Mean to Truly Support a Family Through HIE?
Q: What do you think providers can offer families in those first moments after birth with potential distress?
The guest emphasizes clear, transparent narration of events, compassionate communication, and hands-on support; she notes the importance of keeping parents informed, reducing fear through honest language, and maintaining a family-centered approach even under time pressure.
#024 - What Does It Mean to Truly Support a Family Through HIE?
Q: Tell me a little bit about your experience when you were in the NICU with your baby?
Betsy describes a rapid progression from a tight, information-poor initial phase to a highly supportive NICU experience, followed by gaps in education and the urgent need for connected advocacy and resources like Hope for HIE to guide families through cooling, MRI, feeding, and long-term planning.
#010 - Communicating in the NICU : Insights from Valerie Hernandez
Q: How did you find that experience as being put into the NICU, where that wasn't your native language and everybody's speaking French around you?
Valerie recounts the overwhelming challenges of navigating the NICU experience in a foreign language.
#010 - Communicating in the NICU : Insights from Valerie Hernandez
Q: Can you give us a little orientation about your NICU experience? What brought your two babies to the NICU?
Valerie shares her traumatic experiences with her son born at 32 weeks due to HELP syndrome and her daughter born at 34 weeks, highlighting the differences in their NICU stays.
#007 - The NICU is not just for preemies | Adriane's journey with her daughter born with CCAM/CPAM
Q: What would you share with someone who's in the NICU now?
Take it one day at a time and ask for help, as people want to support you during this journey.

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Frequently Asked Questions About The Incubator: Beyond The Beeps

What is The Incubator: Beyond The Beeps about and what kind of topics does it cover?

A compassionate, issue-focused series centered on the NICU journey, family-centered care, and practical advocacy. Episodes feature NICU parents sharing vivid personal stories alongside clinicians and advocates who translate medical concepts into actionable guidance for families. Topics span high-risk pregnancies, communication gaps with healthcare teams, trauma-informed and peer-supported care, parental empowerment during rounds and discharge planning, and tools to navigate emotional stress, insurance logistics, and logistics of care transitions. A standout quality across episodes is the blend of deeply personal storytelling with concrete tips, resources, and calls to action for better family engagement in medical decision making. The show ... more

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1. The Incubator

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The Incubator: Beyond The Beeps launched 6 months ago and published 24 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on The Incubator: Beyond The Beeps?

Recent guests on The Incubator: Beyond The Beeps include:

1. Betsy Pilon
2. Amber Vassell
3. Andrew Vassell
4. Victoria Varela-Hefty
5. Faizah Bhatti
6. Tyronza Williams
7. Alena Costume
8. Keira Sorrells

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