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Behind the Genes

Genomics England
Genomics
100,000 Genomes Project
Genomics England
Genetic Testing
Rare Conditions
Whole Genome Sequencing
Healthcare
Artificial Intelligence
Genomic Healthcare
The Generation Study
Genomic Testing
Rare Diseases
NHS
Ethics In AI
Patient Outcomes
Multimodal Data
Human Genome Project
Data Privacy
Cystic Fibrosis
Genetic Conditions

We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we... more

PublishesTwice monthlyEpisodes100Founded5 years ago
Number of ListenersCategories
Social SciencesLife SciencesScience

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Latest Episodes

In this explainer episode, we’ve asked Dr Emily Perry, research engagement manager at Genomics England, to explain what the Genomics England Research Environment is.

You can also find a series of short videos explaining some of the common terms you ... more

In this episode, we step inside the NHS to explore how the Generation Study is brought to life - from posters in waiting rooms to midwife training. We follow the journey of parents joining the study at the very start of their baby’s life, and hear fr... more

YouTube

In this explainer episode, we’ve asked Dr Nour Elkhateeb, clinical fellow at Genomics England and clinical geneticist for the NHS, to explain the role of a clinical geneticist.

The previous episode mentioned in the conversation is linked below.

• W... more

YouTube

In this episode of Behind the Genes, we explore how Artificial Intelligence (AI) is being applied in genomics through cross-sector collaborations. Genomics England and InstaDeep are working together on AI and machine learning-related projects to acce... more

YouTube

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Recent Guests

Rachel Peck
Mother of baby Amber, participant in the Generation Study
Episode: Jenna Cusworth-Bolger, Tracie Miles and Rachel Peck: How are families and hospitals bringing the Generation Study to life?
Nour Elkhateeb
Clinical geneticist for the NHS and fellow at Genomics England
NHS, Genomics England
Episode: Dr Nour Elkhateeb: What is a clinical geneticist?
Paul Arvidson
Member of the Participant Panel at Genomics England and poet
Genomics England
Episode: Dr Natalie Banner, Paul Arvidson, Dr Rich Gorman and Professor Bobbie Farsides: How can we enable ethical and inclusive research to thrive?
Rich Gorman
Senior Research Fellow at Brighton and Sussex Medical School
Brighton and Sussex Medical School
Episode: Dr Natalie Banner, Paul Arvidson, Dr Rich Gorman and Professor Bobbie Farsides: How can we enable ethical and inclusive research to thrive?
Bobbie Farsides
Professor of Clinical and Biomedical Ethics at Brighton and Sussex Medical School
Brighton and Sussex Medical School
Episode: Dr Natalie Banner, Paul Arvidson, Dr Rich Gorman and Professor Bobbie Farsides: How can we enable ethical and inclusive research to thrive?
Alice Tuff-Lacey
Programme Director for the Generation Study at Genomics England
Genomics England
Episode: Vivienne Parry, Alice Tuff-Lacey, Dalia Kasperaviciute and Kerry Leeson Bevers: What can we learn from the Generation Study?
Dalia Kasperaviciute
Scientific Director for Human Genomics at Genomics England
Genomics England
Episode: Vivienne Parry, Alice Tuff-Lacey, Dalia Kasperaviciute and Kerry Leeson Bevers: What can we learn from the Generation Study?
Kerry Leeson-Bevers
Chief Executive of Alström Syndrome UK
Alström Syndrome UK
Episode: Vivienne Parry, Alice Tuff-Lacey, Dalia Kasperaviciute and Kerry Leeson Bevers: What can we learn from the Generation Study?
Anne Lennox
Founder and CEO of the Myotubular Trust, a charity supporting families affected by myotubular myopathy
Myotubular Trust
Episode: Dr Ana Lisa Tavares, Anne Lennox, Dr Meriel McEntagart, Dr Carlo Rinaldi: Can patient collaboration shape the future of therapies for rare conditions?

Host

Francisco Azuaje
Host of a series exploring genomic healthcare and related topics, with a focus on real-life stories and scientific discussions.

Reviews

4.9 out of 5 stars from 76 ratings
  • Engaging and educational

    For anyone wanting to learn more about genomics but feels overwhelmed by the science, this podcast is for you. The moderator manages to simplify difficult topics through engaging discussions with leading experts in various fields.

    Apple Podcasts
    5
    emilie_scherrer
    United States3 years ago
  • Unmissable

    I work in healthcare and have recently been diagnosed with a rare genetic disease this ticks all my boxes

    Apple Podcasts
    5
    a*savin
    United Kingdom4 years ago
  • Fasinating listening

    Why it is challenging to capture the East Asians data due to the complexity of navigating cultural perceptions and trust.

    Apple Podcasts
    5
    Mandoclarkie
    New Zealand4 years ago
  • Inspiring, practical context for the most important medical innovations of the next decade

    Genomic medicine is complicated and cutting edge, but now has proven an ability to transform healthcare.

    This podcast is the tip of the spear of an essential society level education and re-alignment of healthcare around the new diagnostics and treatments unlocked by genomics

    Apple Podcasts
    5
    nb_bk
    United States4 years ago
  • Fantastic pod cast series

    Great series that covers a range of topics that related to genomics in an accessible and engaging way. Genomics is going to be more and more critical for treating the individual patient in the right way for them - and for preventing their illness in the first place. Impressive line up of interviewees that shows the esteem Genomics England is held in

    Apple Podcasts
    5
    torrich75
    United Kingdom4 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Engaging and educational for those wanting to learn more about genomics without feeling overwhelmed.
Provides fascinating insights into the complexities of genomic data representation among diverse communities.
Offers inspiring discussions that highlight the practical applications of genomic medicine for improving healthcare.
Covers a range of relevant topics for healthcare professionals, especially in relation to rare genetic diseases.
Accessibly presents complex topics, making it suitable for lay audiences curious about genomics.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Dr Nour Elkhateeb: What is a clinical geneticist?
Q: Could you explain how this role is different from a clinical geneticist?
A genetic counselor specializes in communication and emotional support, helping families understand genetic results and their implications, while a clinical geneticist focuses on diagnosis and analysis.
Dr Nour Elkhateeb: What is a clinical geneticist?
Q: Do you see adults as well?
Yes, clinical geneticists also see adults who develop health conditions, such as cancer, or who want to understand their inherited risks due to family history.
Dr Nour Elkhateeb: What is a clinical geneticist?
Q: What kind of thing does a geneticist actually do?
Clinical geneticists diagnose, manage, and support individuals and families affected by genetic conditions, serving as a bridge between the complex science of genomics and real-life health issues.
Dr Natalie Banner, Paul Arvidson, Dr Rich Gorman and Professor Bobbie Farsides: How can we enable ethical and inclusive research to thrive?
Q: Rich, I'd like to come to you now. How do you think the project has helped healthcare professionals understand their role in genomic services?
The project provided valuable insights into accessing genomic medicine from the patient perspective, helping healthcare professionals recognize the importance of the lived experiences of patients.
Dr Natalie Banner, Paul Arvidson, Dr Rich Gorman and Professor Bobbie Farsides: How can we enable ethical and inclusive research to thrive?
Q: Can you tell us a little bit about the origins of the Helix of Love, but also why storytelling, especially through poetry, was so important for the EPPiGen Project?
The project aimed to use innovative research methods such as poetry to help parents explore their feelings and share their experiences meaningfully.

Audience Metrics

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Frequently Asked Questions About Behind the Genes

What is Behind the Genes about and what kind of topics does it cover?

This podcast presents in-depth explorations of genomic healthcare, focusing on the intersection of cutting-edge research and personal narratives related to rare diseases and cancers. Engaging discussions with experts and patients highlight the transformative potential of genomics in redefining healthcare paradigms. Noteworthy features include a Genomics 101 series, which simplifies complex concepts, making scientific knowledge more accessible to a broader audience. Listeners can expect to learn about ethical considerations, the importance of collaboration in research, and the pressing human stories behind scientific advancements.

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How many listeners does Behind the Genes get?

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Which podcasts are similar to Behind the Genes?

These podcasts share a similar audience with Behind the Genes:

1. More or Less: Behind the Stats
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5. The Rest Is Politics: US

How many episodes of Behind the Genes are there?

Behind the Genes launched 5 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Behind the Genes?

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What guests have appeared on Behind the Genes?

Recent guests on Behind the Genes include:

1. Rachel Peck
2. Nour Elkhateeb
3. Paul Arvidson
4. Rich Gorman
5. Bobbie Farsides
6. Alice Tuff-Lacey
7. Dalia Kasperaviciute
8. Kerry Leeson-Bevers

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