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Behind the Genes

Genomics England
Genomics England
Genomics
Genetic Testing
Whole Genome Sequencing
Genomic Medicine
Clinical Genetics
Rare Conditions
100,000 Genomes Project
Genomic Testing
Genomic Healthcare
Cancer
Genetics
NHS
National Genomic Research Library
The Generation Study
Genetic Conditions
Rnu4-2 Gene
Neurodevelopmental Conditions
Generation Study
Genetic Counseling

At Genomics England, our vision is a world where everyone benefits from genomic healthcare.

From the latest research to the lived experiences of those affected by rare conditions and cancer, Behind the Genes brings you closer to the people behind the science.

Each month, we release a deep-dive episode, alongside our Genomics 101 series - short explainers designed to make complex terms in gene... more

PublishesTwice monthlyEpisodes100Founded5 years ago
Number of ListenersCategories
Life SciencesScienceSocial Sciences

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Artwork for Behind the Genes

Latest Episodes

When people think of midwives, they often think about pregnancy and birth, but the reality of modern midwifery is far broader.

In this episode of Behind the Genes, our guests explore the many different roles midwives play across healthcare, from cli... more

YouTube

In this explainer episode, we’ve asked Kate Stanbury, research midwife on the Generation Study, to tell us more about the vital role that midwives play.

You can also find a series of short videos explaining some of the common terms you might encount... more

YouTube

In this episode, we celebrate 10 years of the Participant Panel and explore how genomic research is being guided by patient and participant voices.

Made up of people who have consented for their genome, or the genome of their loved one, to be includ... more

YouTube

In this explainer episode, we’ve asked Lisa Beaton, Panel Member and Parent Representative for SWAN UK, to tell us about the Participant Panel.

You can also find a series of short videos explaining some of the common terms you might encounter about ... more

YouTube

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Recent Guests

Kate Stanbury
research midwife
Generation Study, Genomics England
Episode: What does a midwife do?
Kirsty Irvine
Chair of the Participant Panel
Genomics England Participant Panel
Episode: How is genomic research being guided by patient and participant voices?
Frances Allan
Panel member with lived experience
Genomics England Participant Panel
Episode: How is genomic research being guided by patient and participant voices?
Lisa Beaton
Parent representative for Syndrome Without a Name, Swan UK; member of the Participant Panel
Syndrome Without a Name, Swan UK
Episode: What is the Participant Panel at Genomics England?
Ana Lisa Tavares
Clinical Lead for Rare Disease Research at Genomics England; Consultant in Clinical Genetics at Cambridge University Hospital
Genomics England; Cambridge University Hospital
Episode: What if a treatment created for one person could transform care for thousands?
Mel Dixon
Member of the Participant Panel at Genomics England and CEO/founder of Cure DHDDS
Genomics England; Cure DHDDS
Episode: What if a treatment created for one person could transform care for thousands?
Georgia Chan
Senior Data Wrangler at Genomics England
Genomics England
Episode: What is de-identified data?
Katie Snape
Principal clinician at Genomics England and lead consultant for Cancer Genetics
Genomics England
Episode: How can genomics help us understand cancer?
Amanda Pichini
Registered genetic counsellor and clinical director for Genomics England
Genomics England
Episode: What is a genetic counsellor?

Hosts

Florence Cornish
Host of Behind the Genes
Sharon Jones
Host of Behind the Genes

Reviews

4.9 out of 5 stars from 77 ratings
  • Engaging and educational

    For anyone wanting to learn more about genomics but feels overwhelmed by the science, this podcast is for you. The moderator manages to simplify difficult topics through engaging discussions with leading experts in various fields.

    Apple Podcasts
    5
    emilie_scherrer
    United States4 years ago
  • Unmissable

    I work in healthcare and have recently been diagnosed with a rare genetic disease this ticks all my boxes

    Apple Podcasts
    5
    a*savin
    United Kingdom4 years ago
  • Fasinating listening

    Why it is challenging to capture the East Asians data due to the complexity of navigating cultural perceptions and trust.

    Apple Podcasts
    5
    Mandoclarkie
    New Zealand5 years ago
  • Inspiring, practical context for the most important medical innovations of the next decade

    Genomic medicine is complicated and cutting edge, but now has proven an ability to transform healthcare.

    This podcast is the tip of the spear of an essential society level education and re-alignment of healthcare around the new diagnostics and treatments unlocked by genomics

    Apple Podcasts
    5
    nb_bk
    United States5 years ago
  • Fantastic pod cast series

    Great series that covers a range of topics that related to genomics in an accessible and engaging way. Genomics is going to be more and more critical for treating the individual patient in the right way for them - and for preventing their illness in the first place. Impressive line up of interviewees that shows the esteem Genomics England is held in

    Apple Podcasts
    5
    torrich75
    United Kingdom5 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Engaging and educational: Complex genomics made accessible by a capable host.
Unmissable for healthcare professionals seeking patient perspectives.
Fascinating: addresses data challenges in diverse populations.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

What does a midwife do?
Q: What makes you passionate about working in the Generation Study and what motivates you in your role?
She is driven by the desire to improve care through evidence-based research and to be part of studies that can positively impact families and babies now and in the future.
What does a midwife do?
Q: Kate, could you tell me a little bit more about what led you to become a midwife? Like what was the journey that you took to get to this point?
She started a midwifery degree at 18, noting that it's the common route, and that some people come via adult nursing followed by a conversion course to midwifery.
What is the Participant Panel at Genomics England?
Q: Could you explain a little bit more about the practical role of the panel?
The panel meets quarterly, attends Lunch and Learns from researchers, and serves to hold the data governance process to account while representing public interests and lived experience to guide Genomics England.
Can blood cancer be inherited?
Q: What genomic advancements are we seeing or are we likely to see that could impact on the care of people with an increased genetic risk of blood cancer?
Expanding whole genome sequencing and establishing a National Inherited Cancer Predisposition Register are key advancements that can improve care for people with increased genetic risks.
Can blood cancer be inherited?
Q: If someone has an inherited blood cancer, does it also change the way that the patient is treated?
Yes, it can influence treatment recommendations based on the inherited predisposition and the specific blood cancer type.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About Behind the Genes

What is Behind the Genes about and what kind of topics does it cover?

This series centers Genomics England's work in genomic healthcare, balancing technical explanations with real-world experiences from families affected by rare conditions and cancer. Episodes frequently examine data governance, patient and participant voices shaping policy, and how genomic research translates to the NHS, including newborn sequencing initiatives, de-identified data safeguards, and the promise of precision medicine. A standout element is the blend of lived experience with clinical and governance expertise, plus a focus on accessible explanations for complex genomics concepts. Potential listeners include healthcare professionals, researchers, patient advocates, and families seeking clear insight into how genomics is changing ca... more

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Which podcasts are similar to Behind the Genes?

These podcasts share a similar audience with Behind the Genes:

1. ZOE Science & Nutrition
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3. The Rest Is Politics: Leading
4. The Life Scientific
5. The Rest Is Politics

How many episodes of Behind the Genes are there?

Behind the Genes launched 5 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Behind the Genes?

Recent guests on Behind the Genes include:

1. Kate Stanbury
2. Kirsty Irvine
3. Frances Allan
4. Lisa Beaton
5. Ana Lisa Tavares
6. Mel Dixon
7. Georgia Chan
8. Katie Snape

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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