Staying Connected
Katie WrightSharing our stories with vascular and aortic connective tissue conditions
| Publishes | Weekly | Episodes | 125 | Founded | 8 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Personal JournalsSociety & CultureMedicineHealth & Fitness | |||
Listen to this Podcast
Latest Episodes
In this episode, we talk with Robyn Beer, who was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, last year. One of her sons was also diagnosed. In this episode, she shares how she got her diagnosis, and how she is moving forward with it. more
In this episode, I have the honor of talking with Dr. Hal Dietz about his research in VEDS, Marfan, and Loeys-Dietz syndromes. Hal is well known in our community for his research and dedication to improving lives for people with these conditions.
more
Today we’re going to talk with Paul Korotish, who was just diagnosed with VEDS last year after an iliac artery rupture.
Information mentioned in the episode:
2017 International Classification of Ehlers-Danlos syndromes: onlinelibrary.wi... more
Today we’re going to talk with Dr. David Murdock, a clinical geneticist at the University of Texas Health Science Center who is doing research in connective tissue conditions, including VEDS, Marfan, and Loeys-Dietz.
Information and links mentione... more
Recent Guests
Reviews
- Great Interviews, very informative
I just started binging this podcast after sending in a sample for DNA test for vEDS. I’ve suspected a connective tissue disorder ever since for ever but especially after researching the cause of a bilateral vertebral artery dissection after… existing? No bungee cord jumping, no football, no car accident, just minding my own business.
Doctors said no, you don’t have Marfan’s. Yup, this is true. I finally found doctors who agreed with me and noted there are EDS subtypes and I have many of the sig... more
Apple Podcasts5k-ji19
United Statesa year ago - Incredible gift to anyone connected to vEDS
The best and most informative podcast on vEDS. Incredible for anyone with the condition or related to someone who has it. Katie and her podcast are a gift to anyone dealing with vascular ehlers danlos syndrome.
Apple Podcasts5ConferenceAppUnited States4 years ago - Great content and super inspiring
Love Katie’s passion behind this podcast and love how she is giving people with veds a platform to tell and share their story!
Apple Podcasts5SlimDeCoUnited States5 years ago - A vital resource for those with a rare condition
This podcast provides a fascinating and informative window into a rare condition and its many serious issues. For those going through the often long diagnostic odyssey, it’s probably the best resource available online. It is frank and unflinching, but also deeply hopeful. It should be required listening for doctors who treat VEDS patients.
Apple Podcasts5WyattStanleyUnited States5 years ago - Interesting, informative and supportive podcast
I’ve been listening to Katie’s podcast since soon after it started, and it’s amazing! Her interviews with other people with vEDS around the world are so informative, whether you have vEDS, another type of EDS or are simply interested in learning more about this condition. Thanks Katie for all your hard work to spread awareness!
Apple Podcasts5FionaNZ
United Kingdom5 years ago
Listeners Say
Key themes from listener reviews, highlighting what works and what could be improved about the show.
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #102 |  New Zealand/Society & Culture/Personal Journals |
Talking Points
Recent interactions between the hosts and their guests.
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | |
|---|---|
| Gender Skew | |
| Location | |
| Interests | |
| Professions | |
| Age Range | |
| Household Income | |
| Social Media Reach |
Frequently Asked Questions About Staying Connected
What is Staying Connected about and what kind of topics does it cover?
The content focuses on personal narratives surrounding vascular and aortic connective tissue conditions, particularly Vascular Ehlers-Danlos Syndrome (vEDS) and Marfan syndrome. Episodes feature individuals sharing their journeys, including challenges faced due to their conditions, the impacts on family and personal health, and advocacy for awareness and education. Common themes include coping with chronic illness, navigating medical systems, and the emotional aspects of living with rare disorders. This series appears to provide support by fostering community engagement, promoting resilience, and raising awareness about often-overlooked health issues, making it a valuable resource for those affected by these conditions or their loved ones.
Where can I find podcast stats for Staying Connected?
Rephonic provides a wide range of podcast stats for Staying Connected. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Staying Connected and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does Staying Connected get?
Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for Staying Connected, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.
What are the audience demographics for Staying Connected?
Rephonic provides comprehensive predictive audience data for Staying Connected, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.
How many subscribers and views does Staying Connected have?
To see how many followers or subscribers Staying Connected has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
Which podcasts are similar to Staying Connected?
These podcasts share a similar audience with Staying Connected:
How many episodes of Staying Connected are there?
Staying Connected launched 8 years ago and published 125 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Staying Connected?
Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.
Where can I see ratings and reviews for Staying Connected?
Rephonic pulls ratings and reviews for Staying Connected from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.
View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.
How do I access podcast episode transcripts for Staying Connected?
Rephonic provides full transcripts for episodes of Staying Connected. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.
What guests have appeared on Staying Connected?
Recent guests on Staying Connected include:
1. Dr. Hal Dietz
2. Paul Korotish
3. Dr. David Murdock
4. Grace Barnhart
5. Amos Marsters
6. Bella Marin
7. Marisa Hart
8. Tammy Asplund
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.