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Artwork for Staying Connected

Staying Connected

Katie Wright

Sharing our stories with vascular and aortic connective tissue conditions

PublishesWeeklyEpisodes100Founded6 years ago
Number of ListenersCategories
Health & FitnessPersonal JournalsMedicineSociety & Culture

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Artwork for Staying Connected

Latest Episodes

My brother, Jacob Frederick, rejoins the show. Our last interview was only a couple weeks before my recent renal artery dissection/kidney infarction and iliac dissection. In this episode, we talk about both of our experiences with those medical event... more

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12 days ago
YouTube

Today we’re going to hear from Sheila Felske, who is joining us to share her experience with Vascular Ehlers-Danos Syndrome (VEDS), which she was diagnosed with last year. Sheila had her first carotid artery dissection soon after her first daughter w... more

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19 days ago
YouTube

Deb Kruk was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in her mid-60s, following the loss of her 40 year old son, Brian, to an aortic dissection. They did not know Brian had VEDS when he died. In this episode, she shares that experience, ... more

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a month ago
YouTube

Betsy Matarrita was born and raised in Costa Rica, and was diagnosed with Marfan syndrome when she was a young child. Growing up, she didn’t know anyone else with Marfan syndrome, and they had to come to the US to get medical care for scoliosis as a ... more

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a month ago
YouTube

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Reviews

4.8 out of 5 stars from 36 ratings
  • Incredible gift to anyone connected to vEDS

    The best and most informative podcast on vEDS. Incredible for anyone with the condition or related to someone who has it. Katie and her podcast are a gift to anyone dealing with vascular ehlers danlos syndrome.

    Apple Podcasts
    5
    ConferenceApp
    United States2 years ago
  • Great content and super inspiring

    Love Katie’s passion behind this podcast and love how she is giving people with veds a platform to tell and share their story!

    Apple Podcasts
    5
    SlimDeCo
    United States3 years ago
  • A vital resource for those with a rare condition

    This podcast provides a fascinating and informative window into a rare condition and its many serious issues. For those going through the often long diagnostic odyssey, it’s probably the best resource available online. It is frank and unflinching, but also deeply hopeful. It should be required listening for doctors who treat VEDS patients.

    Apple Podcasts
    5
    WyattStanley
    United States3 years ago
  • Interesting, informative and supportive podcast

    I’ve been listening to Katie’s podcast since soon after it started, and it’s amazing! Her interviews with other people with vEDS around the world are so informative, whether you have vEDS, another type of EDS or are simply interested in learning more about this condition. Thanks Katie for all your hard work to spread awareness!

    Apple Podcasts
    5
    FionaNZ
    United Kingdom4 years ago
  • Great podcast!

    Definitely worth subscribing to.

    Apple Podcasts
    5
    Cheshie1103
    United States6 years ago

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How many episodes of Staying Connected are there?

Staying Connected launched 6 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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