Staying Connected
Katie WrightSharing our stories with vascular and aortic connective tissue conditions
| Publishes | Weekly | Episodes | 123 | Founded | 8 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Personal JournalsMedicineHealth & FitnessSociety & Culture | |||
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Latest Episodes
Today we’re going to talk with Paul Korotish, who was just diagnosed with VEDS last year after an iliac artery rupture.
Information mentioned in the episode:
2017 International Classification of Ehlers-Danlos syndromes: onlinelibrary.wiley.... more
Today we’re going to talk with Dr. David Murdock, a clinical geneticist at the University of Texas Health Science Center who is doing research in connective tissue conditions, including VEDS, Marfan, and Loeys-Dietz.
Information and links mentioned ... more
In this episode, we’re going to talk with Mike Osuna and Jeanette Garcia-Osuna about their son, Lucas’s, story with Loeys-Dietz syndrome, type 2. Lucas died at the age of 15 from an aortic dissection and Loeys-Dietz, which he was diagnosed with in au... more
In this episode, we’re going to reconnect with Grace Barnhart, who was on the show a couple years ago sharing her personal story and caregiver story with Marfan syndrome. Grace is coming back on the show to talk about how her emotional experience wit... more
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Reviews
- Great Interviews, very informative
I just started binging this podcast after sending in a sample for DNA test for vEDS. I’ve suspected a connective tissue disorder ever since for ever but especially after researching the cause of a bilateral vertebral artery dissection after… existing? No bungee cord jumping, no football, no car accident, just minding my own business.
Doctors said no, you don’t have Marfan’s. Yup, this is true. I finally found doctors who agreed with me and noted there are EDS subtypes and I have many of the sig... more
Apple Podcasts5k-ji19
United Statesa year ago - Incredible gift to anyone connected to vEDS
The best and most informative podcast on vEDS. Incredible for anyone with the condition or related to someone who has it. Katie and her podcast are a gift to anyone dealing with vascular ehlers danlos syndrome.
Apple Podcasts5ConferenceAppUnited States4 years ago - Great content and super inspiring
Love Katie’s passion behind this podcast and love how she is giving people with veds a platform to tell and share their story!
Apple Podcasts5SlimDeCoUnited States4 years ago - A vital resource for those with a rare condition
This podcast provides a fascinating and informative window into a rare condition and its many serious issues. For those going through the often long diagnostic odyssey, it’s probably the best resource available online. It is frank and unflinching, but also deeply hopeful. It should be required listening for doctors who treat VEDS patients.
Apple Podcasts5WyattStanleyUnited States5 years ago - Interesting, informative and supportive podcast
I’ve been listening to Katie’s podcast since soon after it started, and it’s amazing! Her interviews with other people with vEDS around the world are so informative, whether you have vEDS, another type of EDS or are simply interested in learning more about this condition. Thanks Katie for all your hard work to spread awareness!
Apple Podcasts5FionaNZ
United Kingdom5 years ago
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Apple Podcasts | #81 |  New Zealand/Society & Culture/Personal Journals |
Apple Podcasts | #245 |  Denmark/Society & Culture/Personal Journals |
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Frequently Asked Questions About Staying Connected
What is Staying Connected about and what kind of topics does it cover?
The content focuses on personal narratives surrounding vascular and aortic connective tissue conditions, particularly Vascular Ehlers-Danlos Syndrome (vEDS) and Marfan syndrome. Episodes feature individuals sharing their journeys, including challenges faced due to their conditions, the impacts on family and personal health, and advocacy for awareness and education. Common themes include coping with chronic illness, navigating medical systems, and the emotional aspects of living with rare disorders. This series appears to provide support by fostering community engagement, promoting resilience, and raising awareness about often-overlooked health issues, making it a valuable resource for those affected by these conditions or their loved ones.
Where can I find podcast stats for Staying Connected?
Rephonic provides a wide range of podcast stats for Staying Connected. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Staying Connected and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does Staying Connected get?
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What are the audience demographics for Staying Connected?
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How many subscribers and views does Staying Connected have?
To see how many followers or subscribers Staying Connected has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
Which podcasts are similar to Staying Connected?
These podcasts share a similar audience with Staying Connected:
1. Huberman Lab
2. Crime Junkie
3. NPR News Now
4. Up First from NPR
5. Documentary on One Podcast
How many episodes of Staying Connected are there?
Staying Connected launched 8 years ago and published 123 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Staying Connected?
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Where can I see ratings and reviews for Staying Connected?
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What guests have appeared on Staying Connected?
Recent guests on Staying Connected include:
1. Grace Barnhart
2. Amos Marsters
3. Bella Marin
4. Marisa Hart
5. Tammy Asplund
6. Ryan Rodarmer
7. Claudia Arbelaez
8. Bridget Porter Metz
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.