Sharing our stories with vascular and aortic connective tissue conditions
Publishes | Weekly | Episodes | 118 | Founded | 7 years ago |
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Categories | Personal JournalsHealth & FitnessMedicineSociety & Culture |
It’s been a minute, and I am excited to get back to the show. If you’re interested in sharing your story on the next season, please let me know by filling out this form. calendly.com/d/z7h-2cc-g33
Look forward to talking with you soon!
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Today, we’re going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an aortic dissection in 2023 at the age of 14. This aortic dissection led to their diagnosis of Loeys-Dietz syndrome type 2, and also revealed that Carlos has Loe... more
Today, we’re going to talk to Carmen David, who is going to share her experience with an aortic dissection after the delivery of her second daughter, her experiences recovering from that physically and emotionally, how she handled the information of ... more
Today, we’re going to talk to Bella Marin, who was previously on the show to talk about her story with VEDS, or Vascular Ehlers-Danlos syndrome. In today’s episode, she is returning to the show to talk about her recent experience with a bowel perfora... more
I just started binging this podcast after sending in a sample for DNA test for vEDS. I’ve suspected a connective tissue disorder ever since for ever but especially after researching the cause of a bilateral vertebral artery dissection after… existing? No bungee cord jumping, no football, no car accident, just minding my own business.
Doctors said no, you don’t have Marfan’s. Yup, this is true. I finally found doctors who agreed with me and noted there are EDS subtypes and I have many of the sig... more
The best and most informative podcast on vEDS. Incredible for anyone with the condition or related to someone who has it. Katie and her podcast are a gift to anyone dealing with vascular ehlers danlos syndrome.
Love Katie’s passion behind this podcast and love how she is giving people with veds a platform to tell and share their story!
This podcast provides a fascinating and informative window into a rare condition and its many serious issues. For those going through the often long diagnostic odyssey, it’s probably the best resource available online. It is frank and unflinching, but also deeply hopeful. It should be required listening for doctors who treat VEDS patients.
I’ve been listening to Katie’s podcast since soon after it started, and it’s amazing! Her interviews with other people with vEDS around the world are so informative, whether you have vEDS, another type of EDS or are simply interested in learning more about this condition. Thanks Katie for all your hard work to spread awareness!
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The content revolves around personal stories from individuals affected by vascular and aortic connective tissue conditions, with a strong emphasis on community support, awareness, and advocacy. Themes such as grief, resilience, and empowerment are prominent throughout the discussions, offering listeners both informative insights and emotional connection. Guest narratives highlight the struggles faced by those living with various syndromes, including vascular Ehlers-Danlos Syndrome and Loeys-Dietz syndrome, often carrying a message of hope and the importance of understanding these health conditions in the medical community. It is likely that the podcast uniquely blends personal journeys with expert insights, creating a platform that fosters ... more
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Recent guests on Staying Connected include:
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2. Marisa Hart
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