Rare Research Report
RDCRNRare Research Report features summaries of recent scientific publications from the Rare Diseases Clinical Research Network, which is funded by the National Institutes of Health. The network includes 20 active consortia—teams of researchers, patients, and clinicians—each focused on a group of rare disorders. Join us for new episodes each month.Learn more about the RDCRN: www.rarediseasesnet... more
| Publishes | Daily | Episodes | 207 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Category | Science | |||
Listen to this Podcast
Latest Episodes
New research from the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). This summary is based on a paper published in the journal Molecular Genetics and Metabolism in March 2026 titled "A novel patient-Centered approach to clinical... more
New research from the Spastic Paraplegia Centers of Excellence Research Network (SP-CERN). This summary is based on a paper published in the journal Annals of Clinical and Translational Neurology on April 25, 2026, titled "Movement Disorders in Aicar... more
New research from the Urea Cycle Disorders Consortium (UCDC). This summary is based on a paper published in the Journal of Inherited Metabolic Disease on April 9, 2026, titled "Self-Reported Health-Related Quality of Life (HRQoL) in Adults With Urea ... more
New research from The IMPACT Study. This summary is based on a paper published in the journal Research and Practice in Thrombosis and Haemostasis on January 20, 2026, titled "Optimizing the management of congenital thrombotic thrombocytopenic purpura... more
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #193 |  Russia/Science |
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
|---|---|---|---|---|---|
| Interests | Professions | Age Range | |||
| Household Income | Social Media Reach | ||||
Frequently Asked Questions About Rare Research Report
What is Rare Research Report about and what kind of topics does it cover?
This program presents concise summaries of recent publications from a national network focused on rare diseases, with an emphasis on translating research into patient-centered care. Episodes commonly cover disease mechanisms, diagnostic advances, and emerging therapies across a broad spectrum of rare conditions, including leukodystrophies, urea cycle disorders, congenital thrombotic thrombocytopenic purpura, myasthenia gravis, and X-linked adrenoleukodystrophy. A recurring thread is the move toward early recognition, better outcome measurements, and more personalized management—ranging from clinical trial readiness and patient-centered endpoints to genome sequencing and biomarker approaches. The show often highlights the value of patient an... more
Where can I find podcast stats for Rare Research Report?
Rephonic provides a wide range of podcast stats for Rare Research Report. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Rare Research Report and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does Rare Research Report get?
Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for Rare Research Report, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.
What are the audience demographics for Rare Research Report?
Rephonic provides comprehensive predictive audience data for Rare Research Report, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.
How many subscribers and views does Rare Research Report have?
To see how many followers or subscribers Rare Research Report has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
Which podcasts are similar to Rare Research Report?
These podcasts share a similar audience with Rare Research Report:
How many episodes of Rare Research Report are there?
Rare Research Report launched 4 years ago and published 207 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Rare Research Report?
Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.
Where can I see ratings and reviews for Rare Research Report?
Rephonic pulls ratings and reviews for Rare Research Report from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.
View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.
How do I access podcast episode transcripts for Rare Research Report?
Rephonic provides full transcripts for episodes of Rare Research Report. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.