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Artwork for Conversations About Advance Care Planning

Conversations About Advance Care Planning

Clare Fuller
Advance Care Planning
End Of Life Care
Palliative Care
Lasting Power Of Attorney
End-Of-Life Care
Mental Capacity Act
East Grinstead Hospital
Digital Legacy
Omi Interactive
Gold Standards Framework
Advanced Care Planning
Assisted Dying
Healthcare Professionals
Life Stories Initiative
Wound Care
Death Competency
Urgent Community Response
Respect Process
Power Of Attorney Day
Organ Donation

Welcome to conversations about Advance Care Planning. This is the podcast where we talk about Advance Care Planning, what it is, how to do it and why it matters. Conversations about Advance Care Planning has grown from my passion to support professional understanding and promote public awareness about planning ahead. If you are a team looking to provide better end of life care, or set up a one off... more

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Artwork for Conversations About Advance Care Planning

Latest Episodes

Get Ahead of Being Dead is Evie King's new book. In this discussion Evie shares why the book has been written and takes us on a journey through the chapters in classic Evie King style. Listen, learn…and laugh too.

For information about Advance Care... more

The ReSPECT process has been widely implemented. It stands for the Recommended Summary Plan for Emergency Care and Treatment and, when used well, it provides a guide for clinicians to ensure people's wishes and values are respected in an emergency si... more

In this episode I talk with Dr Barny Hole, a kidney doctor and researcher, about patient preferences for kidney failure treatments. We discuss a review paper and focus specifically on the biomedical versus person-centred paradigms of nephrology pract... more

Talking with Jorden helped me to understand how not to compartmentalise EDI. Advance Care Planning is about what matters most to a person, with identity and inclusivity at the very heart of care.

Find out more about EDI and planning ahead through t... more

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Recent Guests

Dr. Barny Hole
Kidney doctor and researcher
Episode: #163 Beyond Survival: Rethinking Decisions in Advanced Kidney Disease with Dr Barny Hole
Sonya Bushell
Doctor balancing clinical work in Scarborough and palliative care; researcher on Advance Care Planning
Scarborough Hospital; St Catharine's Hospice
Episode: #161 Could we start planning ahead earlier? Findings from research with Dr Sonya Bushell
Sharan Harris-Christensen
Manager of Education and Communication Skills at Treetops Hospice
Treetops Hospice, Derby
Episode: #160 From Missed Opportunities to Meaningful Conversations with Sharan Harris Christensen
Emma Clare
Chartered Psychologist, end-of-life doula and founder of Death Wired Differently
Death Wired Differently
Episode: #159 What we need to learn about neurodiversity in relation to Advance Care Planning with Dr Emma Clare
Alison Harvie
Campaign lead for Power of Attorney Day
Care UK (Care as UK)
Episode: #158 Power of Attorney Day with Alison Harvie
Jude Partridge
Consultant geriatrician
Guys and St Thomas' Hospital; King's College London
Episode: #157 Realistic Choice, Shared Decision Making and planning ahead: what evidence and experience tells us with Dr Jude Partridge
Jugdeep Dhesi
Professor of Geriatric Medicine, President of the British Geriatric Society
King's College London; Guy's and St Thomas'
Episode: #156 How can geriatricians join the dots in Advance Care Planning with Professor Jugdeep Dhesi
Clare Fuller
Nurse, palliative care specialist, founder of Speak For Me
Speak For Me
Episode: #145 Clare features on "So Who Cares Anyway?" with Ruth Germaine
James Norris
Founder of the Digital Legacy Association; founder of My Wishes
Digital Legacy Association; My Wishes
Episode: #144 Communication Technology & Bereavement with James Norris

Host

Clare Fuller
A passionate host dedicated to enhancing understanding and awareness of Advance Care Planning through conversations that educate and empower listeners.

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Talking Points

Recent interactions between the hosts and their guests.

#143 Deciding place of care: Advance Care Planning decision making with paramedic Tom Pullen
Q: So hi, Tom, thank you so much for joining me again. How are you doing this morning?
I'm good, thanks. It was great to reflect on a challenging case and to discuss how we balance potential benefits of hospital care with the option to manage at home through community services, while keeping the patient at the center and ensuring clear communication with families.
#139 Bridging Research and Practice in Palliative Care with Professor Katherine Sleeman
Q: What is the goal of the Impact Centre and how does it differ from traditional research?
Its goal is to translate existing evidence into practical tools and guidance that decision-makers can use day-to-day, effectively bridging the gap between what we know and what gets done in care settings.
#144 Communication Technology & Bereavement with James Norris
Q: What is the key takeaway for listeners about integrating technology with bereavement support?
Technology should be used to enhance comfort and practical planning for bereavement, such as documenting digital assets, sharing meaningful memories, and using accessible educational resources, while carefully considering ethical implications and consent in AI-assisted posthumous interactions.
#144 Communication Technology & Bereavement with James Norris
Q: Can you explain digital and social wills in simple terms and what people can realistically do right now?
Digital and social wills are documents or plans that specify how digital assets, accounts, and online content should be handled after death, including access for loved ones and preservation or deletion preferences. The practical steps include downloading and saving photos and videos, coordinating with platforms, and documenting wishes so trusted people know what to do.
#138 The impact of planning on End-of-Life Care with Nicola Bonthron
Q: What personal advance care planning steps have you taken yourself?
I have an organ donor registration, Lasting Power of Attorney, a letter of wishes, and a detailed preparedness spreadsheet listing contacts, debts, and how to access health information, ensuring my plans are clear and actionable for family and clinicians.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

Focusing on the critical topic of Advance Care Planning (ACP), the content features in-depth discussions surrounding the process, its importance, and personal stories that highlight the human aspect of care planning. Episodes examine various elements such as organ donation, legacy, and the implications of decisions related to end-of-life care, aiming to educate both healthcare professionals and the public. Notably, the podcast emphasizes community engagement and cultural perspectives, making it a unique resource for listeners interested in healthcare advocacy and personal empowerment in the face of serious illness.

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These podcasts share a similar audience with this podcast:

1. The Rest Is Politics
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4. Dig It with Jo Whiley and Zoe Ball
5. The Trial

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this podcast launched 4 years ago and published 165 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Dr. Barny Hole
2. Sonya Bushell
3. Sharan Harris-Christensen
4. Emma Clare
5. Alison Harvie
6. Jude Partridge
7. Jugdeep Dhesi
8. Clare Fuller

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