Café SYNGAP1
Syngap Research Fund, 501(c)(3)Bienvenidos al nuevo podcast de SRF en Español: Café Syngap1 pretender ser un espacio para encontrar apoyo, consejos y esperanza en una comunidad de Padres, Hermanos, Investigadores, Científicos, Terapeutas y todos aquellos involucrados en esta patología. La esperanza de nuestra presentadora Merlina Davila es que a partir de compartir nuestras historias, conocimientos, experiencias, retos, éxitos ... more
| Publishes | Weekly | Episodes | 14 | Founded | 8 months ago |
|---|---|---|---|---|---|
| Language |  Spanish | Number of Listeners | Categories | ParentingKids & Family |
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Latest Episodes
Ahora nos vamos al Sur de América para oír la historia de Diana Ramirez y su hija Luhana. Su caso fue el primer diagnóstico con Syngap1 encontrado en Perú. Con un reciente diagnóstico, Diana nos abre las puertas de su hogar para contarnos todo sobre ... more
Lucía María es escritora de profesión, editora y traductora que vive en Guadalajara, México. Nos comparte su pasión y experiencia con la escritura, traducción de texto, el lenguaje en diferentes culturas. También nos cuenta su experiencia con el Libr... more
En un especial de Hermanos, nos acompaña Victoria Polanco desde California, quien nos comparte su historia de cómo es ser hermana no de una, sino de gemelas con la enfermedad rara SYNGAP1. Ella nos demuestra a través del amor lo que ha aprendido para... more
En este episodio tenemos un invitado especial desde Argentina. Claudio Díaz es papá de Francisco quien tiene 9 años y fue diagnosticado con SYNGAP1 en 2021. Nos habla sobre su vida después del diagnóstico- cómo se compatibiliza el trabajo, consultas ... more
Insights
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Reviews
- Meaningful and respectful content in Spanish for the families
One of the primary objectives of SRF and Fondo Syngap is to ensure that families have access to content in Spanish that is both meaningful and respectful, in order to engage them and provide valuable information to the Community. more
Apple Podcasts5mamasyngaplatina
United States2 months ago - El apoyo de nuestra comunidad es lo mejor!!
Gracias Merlina por darnos este espacio para compartir nuestras experiencias con Syngap 💗💗💗💗
Apple Podcasts5Sofi’s momUnited States8 months ago - Congratulations on your new adventure
Well done!
Apple Podcasts5zuzia.United States8 months ago - Amazing Support for all. Love this!
This podcast provides amazing support and connections for families spanning the globe!
Apple Podcasts5Nancy (Caren's sister)United States8 months ago - Great resource for Spanish speaking viewers
SynGAP doesn’t just affect English speaking people. This is a great new resource for those in our community whose first language is Spanish! Thank you for offering this great new show!
Apple Podcasts5mom2afUnited States8 months ago
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Audience
Listeners, engagement and demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Engagement Score | |||
|---|---|---|---|---|---|
| Primary Location | Social Media Reach | ||||
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Café SYNGAP1 launched 8 months ago and published 14 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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