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The World's Tightest Community - A Podcast About Vulvodynia, Vaginismus & Women's Pelvic Pain

Mathilde Olstad
Vulvodynia
Vaginismus
Pelvic Pain
Pelvic Floor Therapy
Endocannabinoid System
Pudendal Neuralgia
Traditional Chinese Medicine
Medroots
CBD
Vestibulodynia
Arousal
Pelvic Floor Dysfunction
Instagram
Light Therapy
Fascia
Hormonal Health
Acupuncture
Tampa Bay
Pregnancy
Pudendal Nerve Entrapment

Chronic pelvic pain doesn't have great PR. Vulvodynia, vaginismus, painful sex, pelvic floor dysfunction - conditions that affect 1 in 4 women and still get treated like a secret. This podcast is trying to change that.

The World's Tightest Community is a weekly podcast hosted by Mathilde - a patient-turned-advocate who built this space out of her own experience with vulvodynia and vaginismus. Eac... more

PublishesWeeklyEpisodes34Foundeda year ago
Number of ListenersCategories
Health & FitnessSexuality

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Artwork for The World's Tightest Community

Latest Episodes

Why does the body sometimes hold onto pain long after there's a clear physical reason for it? And what would it take to actually shift that?

In this episode, I speak with Brooke Bralove, a Licensed Clinical Social Worker (LCSW-C), psychotherapist, A... more

YouTube

What happens to the person standing closest to your pain - the one who witnesses it but is almost never asked about?

In this episode, I speak with Linn Myrtveit-Stensrud, a clinical psychologist and postdoctoral researcher at UiT The Arctic Universi... more

YouTube

For years, the hormonal and muscular causes of vulvar pain have become easier to understand and treat. Inflammation is the part we still understand the least - and it may be one of the biggest missing pieces in provoked vestibulodynia.

Dr Jill Krapf... more

YouTube

Why do so many people with vulvovaginal pain leave their OBGYN's office feeling dismissed - or worse, like the problem is in their head? The answer might have less to do with individual doctors and more to do with what they were never taught.

In thi... more

YouTube

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Recent Guests

Linn Myrtveit-Stensrud
Clinical psychologist and researcher
UiT
Episode: Vulvodynia and the Partner: What the Research Reveals About the Relationship in Chronic Pain
Noa Fleischacker
Executive Director of TightLipped, patient advocate
TightLipped
Episode: The gap in OBGYN training: what doctors never learn about vulvovaginal pain I Tightlipped
Saige Evans
Clinical Director at Bloom Pelvic Therapy; Occupational Therapist specializing in pelvic health
Bloom Pelvic Therapy
Episode: Vaginismus and Pregnancy: TTC Options, Birth Planning, and What Happens to Your Pelvic Floor
Sara Sturek
Writer and founder of Writing Shamelessly
Writing Shamelessly
Episode: Vulvodynia, Desire, and the Diagnostic Odyssey: One Writer's Journey from Shamans to Sex Toys
Tamar Hill
Co-founder of Medroots, a company making CBD and low dose THC suppositories for pelvic and sexual health
Medroots
Episode: Can CBD Suppositories Help With Vulvodynia, Vaginismus, and Pelvic Pain? A Deep Dive
Carli Cutchin
Writer and disability advocate with lived pudendal neuralgia
Independent/Writer & Advocate
Episode: Pudendal Nerve Entrapment Surgery: One Woman's 15-Year Road to the Right Diagnosis
John Connell
Chief Scientific Officer at MAC Clinical Research, leading the Pudafensin vulvodynia program
MAC Clinical Research
Episode: Vulvodynia Clinical Trial: The First Drug Being Developed Specifically for This Condition
Kelley Satovsky
Co-founder of Pelva, experienced with vaginismus and provoked vestibulodynia
Pelva
Episode: Painful Sex and Vaginismus: The Femtech Device Designed to Change How Treatment Feels
Heather Coppard
Educator and author focused on vulval and vaginal pain; former nurse; clinician turned patient advocate
Private practice in the UK; author of Optimising Recovery for Vulval and Vaginal Pain
Episode: Vulvar Pain Recovery: The Nocebo Effect, Medical Dismissal, and What Finally Worked

Host

Mathilde
Host of The World's Tightest Community and related shows focused on vulvodynia and pelvic pain.

Reviews

5.0 out of 5 stars from 32 ratings
  • Frida

    Absolutely love this podcast, it’s host, guests and content! A highly informative listen on a topic that is really difficult to navigate ✨

    Apple Podcasts
    5
    Fridzha
    Norwaya year ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Aspiring guests should note the show welcomes clinicians and patients with a clear mission to destigmatize pelvic pain.
Sponsorship value is high for healthcare brands focused on women's health and pelvic wellness.
Listeners praise the host's empathy and the depth of expert guests.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Mast Cells and Vestibulodynia: The Inflammation Root Cause and A New Treatment Trial I Dr Jill Krapf
Q: What is Pelva and why is it relevant?
Pelva is a product designed to cushion and lubricate during vaginal penetration, described as an insole-like device for the vagina, potentially helping with comfort as patients manage vestibulodynia and related pain.
Mast Cells and Vestibulodynia: The Inflammation Root Cause and A New Treatment Trial I Dr Jill Krapf
Q: Can you explain the ketotapin trial?
The ketotapin trial is a double-blind, randomized study comparing a ketotapin cream to placebo in provoked vestibulodynia, using Q-tip testing and a Wagner pressure monitor, across three sites to assess pain during insertion over about 15 weeks.
Mast Cells and Vestibulodynia: The Inflammation Root Cause and A New Treatment Trial I Dr Jill Krapf
Q: What are the current treatment options and their limitations?
Historically, treatments have included topical lidocaine, topical gabapentin, and capsaicin, with limited cure rates; surgery has been effective for some but is invasive, leaving a need for non-surgical options targeting mast cells and neural inflammation.
Mast Cells and Vestibulodynia: The Inflammation Root Cause and A New Treatment Trial I Dr Jill Krapf
Q: What is the role of inflammation in vestibulodynia?
Inflammation is linked to mast cell activation and neuroproliferation in vestibulodynia, contributing to neural and tissue changes; the concept of a neuroinflammatory process is being explored as a central mechanism.
Vulvodynia Root Causes: Hormonal, Muscular, Nerve, and Inflammatory I Dr. Jill Krapf
Q: How do you differentiate between hormonal and muscular contributions during diagnosis?
The diagnosis blends clinical examination of the vestibule and glands with history and selective blood work; examination findings and response to topical hormones help separate hormonal from muscular contributions.

Audience Metrics

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Frequently Asked Questions About The World's Tightest Community

What is The World's Tightest Community about and what kind of topics does it cover?

A thoughtful show exploring vulvodynia, vaginismus, and broader pelvic pain through in-depth conversations with clinicians, researchers, and people with lived experience. Episodes span diagnosis journeys, medical frameworks, emerging therapies, and patient-centered care, often highlighting medical gaslighting, access barriers, and practical strategies for navigating care. Noteworthy are the blend of personal storytelling with evidence-based discussion and a clear emphasis on destigmatizing sexuality and empowering listeners to advocate for their health. This mix makes it a likely strong fit for audiences seeking actionable insights, empathetic storytelling, and expert perspectives on women's pelvic health.

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Which podcasts are similar to The World's Tightest Community?

These podcasts share a similar audience with The World's Tightest Community:

1. You Are Not Broken
2. Fertility Friday | Fertility Awareness Mastery for Women's Health Professionals
3. Ologies with Alie Ward
4. unPAUSED with Dr. Mary Claire Haver
5. The Diary Of A CEO with Steven Bartlett

How many episodes of The World's Tightest Community are there?

The World's Tightest Community launched a year ago and published 34 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on The World's Tightest Community?

Recent guests on The World's Tightest Community include:

1. Linn Myrtveit-Stensrud
2. Noa Fleischacker
3. Saige Evans
4. Sara Sturek
5. Tamar Hill
6. Carli Cutchin
7. John Connell
8. Kelley Satovsky

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